title: Is a QALY still a QALY at the end of life?
abstract: Recent research into end of life and palliative care has focused on the development of a replacement for the quality adjusted life year (QALY) as an outcome measure. Reasons given range from the lack of anticipated survival benefit from treatment to the inappropriateness of death as an anchor for valuing health states, or the increased value of time to the individual at the end of life. The Palliative Care Yardstick, has been proposed as an alternative. In this paper, I argue that the QALY should not be abandoned as an outcome measure in end of life and palliative care populations and suggest possible methods for generating empirical data to support or refute this. I show why the arguments made for replacement of the QALY are not supported by current evidence and how in some cases the abandonment of the QALY framework would lead to an unjustifiable inequitable distribution of resources.
authors.affiliation: Marie Curie Palliative Care Research Unit, Department of Mental Health Sciences, Charles Bell House, 67-73 Riding House Street, W1W 7EJ, United Kingdom. j.round@ucl.ac.uk
authors.forename: Jeff
authors.initials: J
authors.lastname: Round
mesh_terms: D003362:Cost-Benefit Analysis; D036262:Empirical Research; D055317:Evidence-Based Practice; D015276:Health Care Rationing; D006801:Humans; D017063:Outcome Assessment, Health Care / Q000379:methods*; D010166:Palliative Care / Q000191:economics; D011788:Quality of Life; D019057:Quality-Adjusted Life Years; D013727:Terminal Care / Q000191:economics