title: Oral health -- not a priority issue a grounded theory analysis of barriers for young patients with disabilities to receive oral health care on the same premise as others.
abstract: Oral health problems are reported more frequently in children with disabilities, but the reasons for this are not fully known. The present study was conducted to illuminate and to gain a deeper understanding of the possible barriers preventing children with disabilities from receiving oral health care on the same premise as others. Transcribed in-depth interviews with 65 informants (14 parents, 18 dental health-care professionals, 17 medical health-care professionals, and 16 individuals with disabilities) were analysed in open, axial, and selective coding processes according to Grounded Theory. The results showed that no-one seems to take an overriding responsibility for the oral health of young patients with disabilities. This was described in a formal theory showing that defective knowledge about importance of oral health, limited ability to focus on oral health, and uncertainty in treating the unknown in patients, family, and dental and medical health-care professionals result in a situation in which oral health is left out in young patients with disabilities; it is not a priority issue.
authors.affiliation: Mun-H-Center, National Orofacial Resource Centre for Rare Disorders, Göteborg, Sweden. gunilla.klingberg@vgregion.se
authors.forename: Gunilla
authors.initials: G
authors.lastname: Klingberg
authors.forename: Ulrika
authors.initials: U
authors.lastname: Hallberg
mesh_terms: D000293:Adolescent; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology / Q000706:statistics & numerical data; D003730:Dental Care for Persons with Disabilities / Q000706:statistics & numerical data*; D006233:Persons with Disabilities / Q000523:psychology / Q000706:statistics & numerical data*; D006297:Health Services Accessibility / Q000706:statistics & numerical data*; D006801:Humans; D008962:Models, Theoretical; D009909:Oral Health; D036301:Qualitative Research; D055815:Young Adult