A new model for integrated heart failure and palliative advanced homecare--rationale and design of a prospective randomized study.
BACKGROUND
Guidelines have concluded that there is a great need for new models of integrated care, e.g., heart failure and palliative care, in order to facilitate equality of care for dying patients, regardless of diagnosis. We found no evidence in the literature concerning the advantages and effects of integrated heart failure and palliative advanced home care for patients with severe chronic heart failure.


OBJECTIVE
The primary aim is to study the effects of integrated Palliative advanced homecarRE and heart FailurE caRE (PREFER) on patients' symptom burden, quality of life, and activities of daily living (ADL) as compared to usual care.


METHODS
Prospective, randomized study with an open-evaluation PROBE design. Optimally treated outpatients with chronic heart failure of varying aetiologies in New York Heart Association classes III-IV will be eligible to participate.


CONCLUSIONS
The PREFER study is designed to investigate whether a new concept of managing patients with severe chronic heart failure by integrating palliative homecare and active heart failure treatment will reduce symptom burden, increase quality of life and ADL, and reduce the number of hospitalizations in patients with severe chronic heart failure.
Strategic Research Program in Health Care Sciences (SFO-V), Bridging Research and Practice for Better Health at Karolinska Institutet and Umeå University, Department of Nursing, Umeå University, Umeå, Sweden. margareta.brannstrom@nurs.umu.se
Margareta
M
Brännström
Kurt
K
Boman
D000203:Activities of Daily Living; D017281:Cost of Illness; D019033:Delivery of Health Care, Integrated / Q000458:organization & administration*; D006333:Heart Failure / Q000097:blood / Q000523:psychology / Q000628:therapy*; D006699:Home Care Services / Q000458:organization & administration*; D006760:Hospitalization; D006801:Humans; D045265:Natriuretic Peptides / Q000097:blood; D010043:Outcome and Process Assessment, Health Care / Q000458:organization & administration; D010166:Palliative Care / Q000458:organization & administration*; D017060:Patient Satisfaction; D011446:Prospective Studies; D011788:Quality of Life; D012107:Research Design
D045265:Natriuretic Peptides