Hospice providers' key approaches to support informal caregivers in managing medications for patients in private residences.
BACKGROUND
Managing and administering medications to relieve pain and symptoms are common, important responsibilities for informal caregivers of patients receiving end-of-life care at home. However, little is known about how hospice providers prepare and support caregivers with medication-related tasks.


OBJECTIVE
This qualitative study explores the key approaches that hospice providers use to facilitate medication management for caregivers.


METHODS
Semistructured, open-ended interviews were conducted with 22 providers (14 nurses, four physicians, and four social workers) from four hospice organizations around an urban setting in the midwestern U.S.


RESULTS
Based on the interviews, the following five key approaches emerged, constituting how the hospice team collectively helped caregivers manage medications: 1) establishing trust; 2) providing information; 3) promoting self-confidence; 4) offering relief (e.g., provided in-home medication assistance, mobilized supportive resources, and simplified prescriptions); and 5) assessing understanding and performance. Each hospice discipline used multiple approaches. Nurses emphasized tailoring information to individual caregivers and patients, providing in-home assistance to help relieve caregivers, and assessing caregivers' understanding and performance of medication management during home visits. Physicians simplified medication prescriptions to alleviate burden and reassured caregivers using their perceived medical authority. Social workers facilitated medication management by providing emotional support to promote self-confidence and mobilizing resources in caregivers' support networks and the community at large.


CONCLUSIONS
Hospice nurses, physicians, and social workers identified distinct, yet overlapping, approaches in aiding caregivers with medication management. These findings emphasize the importance of interdisciplinary teamwork among hospice providers. Future research should investigate how common, standardized, effective, and efficient these approaches are in practice.
Department of Pharmacy Administration, College of Pharmacy, University of Illinois at Chicago, Chicago, Illinois 60612, USA. dtlau@uic.edu
Denys T
DT
Lau
Brian
B
Joyce
Marla L
ML
Clayman
Sydney
S
Dy
Linda
L
Ehrlich-Jones
Linda
L
Emanuel
Joshua
J
Hauser
Judith
J
Paice
Joseph W
JW
Shega
D017028:Caregivers / Q000458:organization & administration*; D006701:Home Nursing / Q000458:organization & administration*; D017051:Hospice Care / Q000379:methods* / Q000458:organization & administration*; D006801:Humans; D007087:Illinois; D055118:Medication Adherence; D054539:Medication Therapy Management / Q000458:organization & administration*; D010348:Patient Care Team / Q000458:organization & administration*