Power to the people: a wiki-governance model for biobanks.
Biobanks are adopting various modes of public engagement to close the agency gap between participants and biobank builders. We propose a wiki-governance model for biobanks that harnesses Web 2.0, and which gives citizens the ability to collaborate in biobank governance and policymaking.
Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, 740 Dr Penfield Avenue, Suite 5200, Montreal, Quebec, H3A 0G1, Canada. Edward.dove@mail.mcgill.ca
Edward S
ES
Dove
Yann
Y
Joly
Bartha M
BM
Knoppers
D002170:Canada; D003256:Community Participation; D023281:Genomics / Q000379:methods; D006801:Humans; D011050:Policy Making; D011639:Public Opinion; D014015:Tissue Banks / Q000941:ethics / Q000331:legislation & jurisprudence / Q000458:organization & administration*