Validation of the Subjective Handicap of Epilepsy (SHE) in Brazilian patients with epilepsy.
The objectives of the study were to translate and adapt the Subjective Handicap of Epilepsy (SHE) instrument to Brazilian Portuguese and to determine its psychometric properties for the evaluation of quality of life in patients with epilepsy. A sample of 448 adult patients with epilepsy with different clinical profiles (investigation, preoperative period, postoperative period, and drug treatment follow-up) was evaluated with the SHE and the Epilepsy Surgery Inventory (ESI-55). Exploratory factorial analysis demonstrated that four factors explained 60.47% of the variance and were sensitive to discriminate the different clinical groups, with the preoperative group having the poorest quality of life. Internal consistency ranged from 0.92 to 0.96, and concurrent validity with the ESI-55 was moderate/strong (0.32-0.70). Test-retest reliability was confirmed, with an ICC value of 0.54 (2 days), 0.91 (7 days), and 0.97 (30 days). The SHE had satisfactory psychometric qualities for use in the Brazilian population, similar to those of the original version. The instrument seems to be more adequate in psychometric terms for the postoperative and drug treatment follow-up groups, and its use should be encouraged.
Department of Neuroscience and Behavior, Medical School of Ribeirão Preto, University of São Paulo, Avenida dos Bandeirantes 3900, CEP 14048-900, Ribeirão Preto, São Paulo, Brazil.
Edna de Almeida
Ede A
Monteiro
Flávia de Lima
Fde L
Osório
Alexandre
A
Veriano
Roberto Souza
RS
Molina
Sandra Souza
SS
Funayama
Vera Cristina
VC
Terra
Tonicarlo R
TR
Velasco
Ricardo
R
Guarnieri
Marino
M
Bianchin
João Alberto
JA
Assirati
Americo Ceiki
AC
Sakamoto
Jaime Eduardo Cecílio
JE
Hallak
D000328:Adult; D001938:Brazil; D003431:Cross-Cultural Comparison; D004827:Epilepsy / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011594:Psychometrics; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D014177:Translations