Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
This article examines public perceptions of biobanks in Europe using a multi-method approach combining quantitative and qualitative data. It is shown that public support for biobanks in Europe is variable and dependent on a range of interconnected factors: people's engagement with biobanks; concerns about privacy and data security, and trust in the socio-political system, key actors and institutions involved in biobanks. We argue that the biobank community needs to acknowledge the impact of these factors if they are to successfully develop and integrate biobanks at a pan-European level.
London School of Economics and Political Science, London, UK. g.gaskell@lse.ac.uk
George
G
Gaskell
Herbert
H
Gottweis
Johannes
J
Starkbaum
Monica M
MM
Gerber
Jacqueline
J
Broerse
Ursula
U
Gottweis
Abbi
A
Hobbs
Ilpo
I
Helén
Maria
M
Paschou
Karoliina
K
Snell
Alexandra
A
Soulier
D018070:Biological Specimen Banks / Q000458:organization & administration; D016494:Computer Security; D032962:Consent Forms; D003625:Data Collection; D005060:Europe; D006801:Humans; D018907:Privacy; D011639:Public Opinion