Learning to manage COPD: a qualitative study of reasons for attending and not attending a COPD-specific self-management programme.
The aim of this article is to understand the reasons for attending a chronic obstructive pulmonary disease (COPD)-specific self-management (SM) programme and how attendance at such programmes might be improved. A total of 20 qualitative semistructured interviews were carried out with patients and with lay programme tutors involved in the Better Living with Long term Airways disease (BELLA) pilot trial. Thematic framework data analysis was used. Common reasons for participant attendance arising from patients and tutors include (1) desire to learn about SM, (2) social benefits of meeting others with COPD and (3) altruism. Patients' reasons for poor attendance include (1) being too ill or not feeling ill enough and (2) practical, physical and emotional barriers. Tutor's explanations for patients' poor attendance were (1) failure to accept their condition, (2) fear of making a change, (3) lack of adequate support, (4) guilt about smoking and (5) the 'scripted' nature of the course. Suggestions for improving programme participation included (1) having choice of several start dates, (2) minimal delay inviting participant onto courses, (3) planning for 'special needs'. Participation may be better amongst those who have accepted their condition or who are motivated towards improving their condition or to help others. Providing solutions for practical barriers may improve participation. However, alternatives to group-based interventions need to be developed for people with functional and emotional barriers to attendance.
Centre for Primary Care and Public Health, Barts and The London School of Medicine and Dentistry, London, UK. r.sohanpal@qmul.ac.uk
Ratna
R
Sohanpal
Clive
C
Seale
Stephanie J C
SJ
Taylor
D000368:Aged; D000369:Aged, 80 and over; D004644:Emotions; D005260:Female; D006167:Guilt; D006304:Health Status; D006801:Humans; D008297:Male; D008875:Middle Aged; D010358:Patient Participation / Q000523:psychology; D029424:Pulmonary Disease, Chronic Obstructive / Q000523:psychology* / Q000534:rehabilitation; D036301:Qualitative Research; D045808:Refusal to Participate / Q000523:psychology; D012648:Self Care / Q000523:psychology*; D012907:Smoking