Beyond bioethics: reckoning with the public health paradigm.
In the wake of scandal over troubling research abuses, the 1970s witnessed the birth of a new system of ethical oversight. The bioethics framework, with its emphasis on autonomy, assumed a commanding role in debates regarding how to weigh the needs of society against the rights of individuals. Yet the history of resistance to oversight underscores that some domains of science hewed to a different paradigm of accountability--one that elevated the common good over individual rights. Federal officials have now proposed to dramatically limit the reach of ethical oversight. The Institute of Medicine has called for a rollback of the federal privacy rule. The changing emphasis makes it imperative to grapple with the history of the public interest paradigm.
Center for the History and Ethics of Public Health, Department of Sociomedical Sciences, Mailman School of Public Health, Columbia University, New York, NY 10032, USA. alf4@columbia.edu
Amy L
AL
Fairchild
David Merritt
DM
Johns
D001675:Bioethics; D035843:Biomedical Research / Q000941:ethics* / Q000331:legislation & jurisprudence; D026724:Ethical Review / Q000331:legislation & jurisprudence / Q000592:standards*; D033161:Government Regulation; D020408:Health Insurance Portability and Accountability Act; D049673:History, 20th Century; D049674:History, 21st Century; D006801:Humans; D018907:Privacy; D011634:Public Health; D012941:Social Responsibility; D014481:United States; D014483:United States Dept. of Health and Human Services