Validity and reliability of the Korean version of the pediatric quality of life ESRD module.
BACKGROUND
Health-related quality of life is a very important issue in children with end-stage renal disease and their family. Moreover, this can be a lifelong problem. In this study, we performed a cross-sectional investigation of the health-related quality of life in Korean children, undergoing renal replacement therapies, such as dialysis and renal transplantation.


RESULTS
We validated the Korean version of the PedsQL 3.0 End-Stage Renal Disease Module by comparing with the PedsQL 4.0 Generic Core Scales. A total of 92 pediatric patients with end-stage renal disease, aged 2-18 year old, were enrolled in four teaching hospitals in Korea. The module was acceptable for both parent proxy-report and child self-report. The response rate was acceptable, since no reminders were delivered. A large proportion of the responders answered > 90% of the items, which suggests a good face validity. The PedsQL 4.0 Generic Core Scales and the PedsQL 3.0 End-Stage Renal Disease Module showed minimal missing values in the current study, which supported feasibility. The validation analyses revealed acceptable floor and ceiling effects and an acceptable construct validity.


CONCLUSIONS
The PedsQL 3.0 End-stage Renal Disease Module may be useful as an end-stage renal disease -specific instrument in the evaluation of the health-related quality of life in Korean children; however, a larger, longitudinal prospective study is needed.
Department of Preventive Medicine and Institute of Health Sciences, Gyeongsang National University Hospital, 816-15 Jinjudae-ro, Jinju 660-751, South Korea.
Ki-Soo
KS
Park
Min Hyun
MH
Cho
Il Soo
IS
Ha
Hee Gyung
HG
Kang
Hae Il
HI
Cheong
Young Seo
YS
Park
Yoon Jung
YJ
Lee
Joo Hoon
JH
Lee
Hee Yeon
HY
Cho
D000293:Adolescent; D002648:Child; D003430:Cross-Sectional Studies; D005260:Female; D006784:Hospitals, Teaching; D006801:Humans; D007676:Kidney Failure, Chronic / Q000523:psychology* / Q000628:therapy; D007802:Language; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D010372:Pediatrics; D019727:Proxy / Q000523:psychology; D011594:Psychometrics / Q000379:methods*; D011788:Quality of Life; D017582:Renal Replacement Therapy / Q000523:psychology; D015203:Reproducibility of Results; D056910:Republic of Korea; D057566:Self Report; D011795:Surveys and Questionnaires / Q000592:standards*; D014175:Translating