The New York State cardiac registries: history, contributions, limitations, and lessons for future efforts to assess and publicly report healthcare outcomes.
In 1988, the New York State Health Commissioner was confronted with hospital-level data demonstrating very large, multiple-year, interhospital variations in short-term mortality and complications for cardiac surgery. The concern with the extent to which these differences were due to variations in patients' pre-surgical severity of illness versus hospitals' quality of care led to the development of clinical registries for cardiac surgery in 1989 and for percutaneous coronary interventions in 1992 in New York. In 1990, the Department of Health released hospitals' risk-adjusted cardiac surgery mortality rates for the first time, and shortly thereafter, similar data were released for hospitals and physicians for percutaneous coronary interventions, cardiac valve surgery, and pediatric cardiac surgery (only hospital data). This practice is still ongoing. The purpose of this communication is to relate the history of this initiative, including changes or purported changes that have occurred since the public release of cardiac data. These changes include decreases in risk-adjusted mortality, cessation of cardiac surgery in New York by low-volume and high-mortality surgeons, out-of-state referral or avoidance of cardiac surgery/angioplasty for high-risk patients, alteration of contracting choices by insurance companies, and modifications in market share of cardiac hospitals. Evidence related to these impacts is reviewed and critiqued. This communication also includes a summary of numerous studies that used New York's cardiac registries to examine a variety of policy issues regarding the choice and use of cardiac procedures, the comparative effectiveness of competing treatment options, and the examination of the relationship among processes, structures, and outcomes of cardiac care.
University at Albany, State University of New York, 12144-3456, USA. elh03@health.state.ny.us
Edward L
EL
Hannan
Kimberly
K
Cozzens
Spencer B
SB
King
Gary
G
Walford
Nirav R
NR
Shah
D022126:Access to Information / Q000266:history; D015906:Angioplasty, Balloon, Coronary / Q000401:mortality; D006348:Cardiac Surgical Procedures / Q000009:adverse effects / Q000401:mortality* / Q000592:standards; D016507:Cardiology Service, Hospital / Q000266:history / Q000592:standards*; D001026:Coronary Artery Bypass / Q000401:mortality; D019317:Evidence-Based Medicine; D019538:Health Care Surveys; D049673:History, 20th Century; D049674:History, 21st Century; D017052:Hospital Mortality / Q000266:history / Q000639:trends*; D006801:Humans; D009203:Myocardial Infarction / Q000175:diagnosis / Q000401:mortality / Q000628:therapy; D009518:New York; D010043:Outcome and Process Assessment, Health Care / Q000266:history / Q000639:trends; D010820:Physicians / Q000592:standards*; D058996:Quality Improvement; D011787:Quality of Health Care / Q000266:history / Q000639:trends; D012017:Referral and Consultation; D016079:Refusal to Treat; D012042:Registries; D018570:Risk Assessment; D012307:Risk Factors