Stroke family caregivers' support needs change across the care continuum: a qualitative study using the timing it right framework.
OBJECTIVE
Family caregivers provide essential support as stroke survivors' return to community living, but it is not standard clinical practice to prepare or provide ongoing support for their care-giving role. In addition, health care professionals (HCPs) experiences with providing support to caregivers have not been explored previously. The objectives of this qualitative study were to: (1) explore the support needs over time from the perspective of caregivers, (2) explore the support needs over time from the perspective of HCPs, and (3) compare and contrast caregivers' and HCPs' perspectives.


METHODS
A qualitative study with stroke family caregivers (n = 24) and HCPs (n = 14). In-depth interviews were audio taped, transcribed, and analyzed using Framework Analysis.


RESULTS
Three main themes emerged concerning: (1) types and intensity of support needed; (2) who provides support and the method of providing support; and (3) primary focus of care. These themes are discussed in relation to the TIR framework.


CONCLUSIONS
Caregivers' needs for support and the individuals most suited to providing support change across the stroke survivor's recovery trajectory. Changes to service delivery to better support caregivers may include: (1) addressing caregivers' changing needs across the care continuum; (2) implementing a family-centered model of care; and (3) providing 7-day per week inpatient rehabilitation.
Department of Occupational Sciences and Occupational Therapy, University of Toronto, Toronto, Canada. jill.cameron@utoronto.ca
Jill I
JI
Cameron
Gary
G
Naglie
Frank L
FL
Silver
Monique A M
MA
Gignac
D000328:Adult; D000368:Aged; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology*; D003142:Communication; D016001:Confidence Intervals; D003266:Continuity of Patient Care / Q000458:organization & administration*; D005190:Family / Q000523:psychology; D005260:Female; D017144:Focus Groups; D006282:Health Personnel; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D008960:Models, Psychological; D020380:Needs Assessment / Q000458:organization & administration*; D036301:Qualitative Research; D012944:Social Support; D020521:Stroke / Q000523:psychology* / Q000628:therapy; D000071939:Stroke Rehabilitation; D017741:Survivors / Q000523:psychology; D013997:Time Factors