Patient and public involvement in the coproduction of knowledge: reflection on the analysis of qualitative data in a mental health study.
Patient and public involvement in health research is increasingly well established internationally, but the impacts of involvement on the research process are hard to evaluate. We describe a process of qualitative data analysis in a mental health research project with a high level of mental health service user and carer involvement, and reflect critically on how we produced our findings. Team members not from research backgrounds sometimes challenged academic conventions, leading to complex findings that would otherwise have been missing. An essential component of how we coproduced knowledge involved retaining methodological flexibility so that nonconventional research voices in the team could situate and critique what was conventionally known. Deliberate and transparent reflection on how "who we are" informed the knowledge we produced was integral to our inquiry. We conclude that reflecting on knowledge (co)production is a useful tool for evaluating the impact of patient and public involvement on health research.
Section of Mental Health, Division of Population Health Sciences and Education, St George's, University of London, London, United Kingdom. sgillard@sgul.ac.uk
Steve
S
Gillard
Lucy
L
Simons
Kati
K
Turner
Mike
M
Lucock
Christine
C
Edwards
D017028:Caregivers / Q000523:psychology*; D003625:Data Collection / Q000379:methods*; D004493:Education; D006302:Health Services Research; D006801:Humans; D019359:Knowledge; D008603:Mental Health; D008605:Mental Health Services; D010358:Patient Participation / Q000379:methods* / Q000523:psychology; D036301:Qualitative Research; D012648:Self Care; D006113:United Kingdom