Significance of patient registries for dermatological disorders.
Patient registries for dermatological disorders are important sources of data for researchers, clinicians, and patients. The majority of registries are maintained by academic investigators with funding from federal agencies. However, these registries are fragmented and are maintained only as long as federal funding exists. Patient organizations and companies can serve as alternative sources of funding for registries.
Lotus Tissue Repair, Cambridge, Massachusetts, USA. mark@lotustr.com
Mark P
MP
de Souza
Vanessa
V
Rangel Miller
D006801:Humans; D007057:Ichthyosis / Q000453:epidemiology*; D012042:Registries