Beyond diversity to inclusion: recruitment and retention of diverse groups in Alzheimer research.
This article provides a discussion on using an inclusive approach to recruitment and retention of diverse groups in Alzheimer research. The discussion begins by framing the issues of diversity and inclusion and reviewing some of the conceptual and theoretical frameworks that can help researchers develop an inclusive approach to research. Next, some specific inclusive strategies that the researchers can use to recruit and retain diverse samples are discussed. Last, ideas on a retooling process that can prepare researchers to use inclusive approaches are discussed. Ultimately, an inclusive approach to recruitment and retention goes beyond diversity and instead, emphasizes shared interest and representation by researchers and participants in the research process.
Department of Health Policy and Management and UNC Institute on Aging, University of North Carolina, Chapel Hill, Chapel Hill, NC, 27599, USA. dilworth@email.unc.edu
Peggye
P
Dilworth-Anderson
Monique D
MD
Cohen
D000368:Aged; D000544:Alzheimer Disease / Q000208:ethnology*; D035843:Biomedical Research; D002986:Clinical Trials as Topic; D054521:Cultural Competency; D018864:Cultural Diversity; D005006:Ethnicity; D006801:Humans; D008913:Minority Groups; D018579:Patient Selection; D011157:Population Dynamics