title: Simple and multistate survival curves: can people learn to use them?
abstract: OBJECTIVE AND SAMPLE: This investigation assessed the comprehension of survival curves in a community sample of 88 young and middle-aged adults when several aspects of good practice for graphical communication were implemented, and it compared comprehension for alternative presentation formats. DESIGN, METHOD, and
  
  
  
  After reading worked examples of using survival curves that provided explanation and answers, participants answered questions on survival data for pairs of treatments. Study 1 compared presenting survival curves for both treatments on the same figure against presentation via 2 separate figures. Study 2 compared presenting data for 3 possible outcome states via a single "multistate" figure for each treatment against presenting each outcome on a separate figure (with both treatments on the same figure). Both studies compared alternative forms of questioning (e.g., "number alive" versus "number dead"). Numeracy levels (self-rated and objective measures) were also assessed.
  
  
  
  Comprehension was generally good--exceeding 90% correct answers on half the questions--and was similar across alternative graphical formats. Lower accuracy was observed for questions requiring a calculation but was significantly lower only when the requirement for calculation was not explicit (13%-28% decrements in performance). In study 1, this effect was most acute for those with lower levels of numeracy. Subjective (self-rated) numeracy and objective (measured) numeracy were both moderate positive predictors of overall task accuracy (r ≈ 0.3).
  
  
  
  A high degree of accuracy in extracting information from survival curves is possible, as long as any calculations that are required are made explicit (e.g., finding differences between 2 survival rates). Therefore, practitioners need not avoid using survival curves in discussions with patients, although clear and explicit explanations are important.
authors: University of Essex, Colchester, United Kingdom (TR, RJW)
authors: Tim
authors: T
authors: Rakow
authors: University of Essex, Colchester, United Kingdom (TR, RJW)
authors: Rebecca J
authors: RJ
authors: Wright
authors: Hospital for Sick Children, Great Ormond Street, London, United Kingdom (KB)
authors: Catherine
authors: C
authors: Bull
authors: University of Cambridge, Cambridge, United Kingdom (DJS)
authors: David J
authors: DJ
authors: Spiegelhalter
mesh_terms: D000293:Adolescent; D000328:Adult; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D016019:Survival Analysis; D016896:Treatment Outcome; D055815:Young Adult