title: What women with breast cancer discuss with clinicians about risk for their adolescent daughters.
abstract: Recorded conversations between women undergoing BRCA genetic counseling with clinicians (N = 16) and follow-up consultation letters (N = 16) were analyzed to determine how and when communicating genetic risk information to women's adolescent daughters is discussed. Themes from conversations included mothers' worries about their daughters, perceptions of their daughters' coping, educational information, and clinicians' willingness or reluctance to communicate directly with daughters about their genetic risk. Letters referred to daughters when informing mothers about autosomal dominant inheritance patterns, psychosocial considerations, and screening recommendations. Results inform the value of educating mothers about how they might discuss these issues with their adolescent daughters.
authors: Department of Psychiatry & Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, New York, NY 10021, USA.
authors: Erin
authors: E
authors: Maloney
authors: Shawna
authors: S
authors: Edgerson
authors: Mark
authors: M
authors: Robson
authors: Ken
authors: K
authors: Offit
authors: Richard
authors: R
authors: Brown
authors: Carma
authors: C
authors: Bylund
authors: David W
authors: DW
authors: Kissane
mesh_terms: D000293:Adolescent; D000328:Adult; D001943:Breast Neoplasms / Q000235:genetics* / Q000523:psychology; D003142:Communication; D005260:Female; D005500:Follow-Up Studies; D005817:Genetic Counseling; D020022:Genetic Predisposition to Disease; D005820:Genetic Testing; D006801:Humans; D008875:Middle Aged; D009679:Nuclear Family / Q000523:psychology*; D011368:Professional-Family Relations; D011369:Professional-Patient Relations; D036301:Qualitative Research; D013997:Time Factors; D014741:Video Recording; D055815:Young Adult