title: Quality of life of Iranian beta-thalassaemia major patients living on the southern coast of the Caspian Sea.
abstract: In the present study, the aim was to explore the quality of life of thalassaemia major (TM) patients according to age, sex, school performance, severity and complications of the disease. A cross-sectional descriptive study was conducted. Quality of life was evaluated by 4 questionnaires; demographic characteristics, the short form 36 health survey (SF-36), Persian version of symptoms checklist-90-revised (SCL-90-R) and life satisfaction index (LSI). 687 (41.08%) of the eligible patients with TM completed the questionnaires. With the SF-36 questionnaire, 329 (47.9%) participants had an excellent level of physical functioning. With the SCL-90-R questionnaire, 446 (64.9%) participants had a global severity index of > 0.7, considered psychiatric patients, 141 (20.5%) patients had GSI between 0.4 and 0.7, considered suspected psychiatric patients and 100 (14.6%) participants had GSI of < 0.4, considered non-psychiatric patients. The mean score of LSI questionnaire was 20.50 (SD 5.95), range 2-37. Beta-TM patients are at risk of psychiatric symptoms and need appropriate psychiatric counselling.
authors: Iranian Applied Research Center for Public Health and Sustainable Development (IRCPHD), North Khorasan University of Medical Sciences, Bojnurd, Islamic Republic of Iran. dr.h.khani@gmail.com
authors: H
authors: H
authors: Khani
authors: M R
authors: MR
authors: Majdi
authors: E Azad
authors: EA
authors: Marzabadi
authors: A
authors: A
authors: Montazeri
authors: A
authors: A
authors: Ghorbani
authors: M
authors: M
authors: Ramezani
mesh_terms: D000293:Adolescent; D000328:Adult; D015897:Comorbidity; D003430:Cross-Sectional Studies; D004522:Educational Status; D004651:Employment; D005260:Female; D006304:Health Status; D006306:Health Surveys; D006801:Humans; D007492:Iran / Q000453:epidemiology; D008297:Male; D001523:Mental Disorders / Q000453:epidemiology; D008603:Mental Health; D008875:Middle Aged; D011788:Quality of Life; D017086:beta-Thalassemia / Q000453:epidemiology* / Q000523:psychology / Q000534:rehabilitation*