Sexual function in adults with anorectal malformation: psychosocial adaptation. German Network for Congenital Uro-REctal Malformations (CURE-Net).
OBJECTIVE
The aim of the German Network for Congenital Uro-REctal Malformations (CURE-Net) is to collect data of affected patients with anorectal malformation (ARM) to investigate molecular causes, clinical implications and psychosocial outcome. The current issue was to examine sexual function and to explore psychosocial adaptation in adults with ARM.


METHODS
This qualitative study using narrative inquiry is part of a larger multi-center study of clinical queries and quality of life in patients with ARM. The guided interview focused on analysis of sexual function.


RESULTS
55 adult patients with ARM (23 females, 32 males, median age 23 years, range from 18 to 56 years) were investigated via standardized case-report forms comprising interview, analysis of medical data and personal questionnaires. In the female patients, 8 (35 %) of them lived alone and 15 (65 %) had sexual intercourse. In the male patients, the majority of 20 (69 %) patients lived alone and 13 (45 %) had sexual intercourse. 6 of the females got pregnant, 5 got 2 or more children. 3 of the men induced 2 or more pregnancies and fathered children.


CONCLUSIONS
Besides reconstructing the ARM, another main goal is the preservation of sexual function. According to our data, there seems to be a close relationship between psychosocial development and sexual activity.
Department of Pediatric Surgery, Charité Universitätsmedizin Berlin, Berlin, Germany.
Dominik
D
Schmidt
Sibylle
S
Winter
Ekkehart
E
Jenetzky
Nadine
N
Zwink
Eberhard
E
Schmiedeke
Stefanie
S
Maerzheuser
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001003:Anal Canal / Q000002:abnormalities / Q000503:physiopathology / Q000601:surgery; D000071056:Anorectal Malformations; D001006:Anus, Imperforate / Q000503:physiopathology / Q000523:psychology* / Q000601:surgery; D001828:Body Image; D004414:Dyspareunia; D005260:Female; D005858:Germany; D006801:Humans; D008297:Male; D008418:Masturbation; D008875:Middle Aged; D009948:Orgasm; D011788:Quality of Life; D012007:Rectum / Q000002:abnormalities / Q000503:physiopathology / Q000601:surgery; D012042:Registries; D012098:Reproduction / Q000502:physiology; D012725:Sexual Behavior / Q000502:physiology / Q000523:psychology; D055815:Young Adult