title: Experiences of adult stroke survivors and their parent carers: a qualitative study.
abstract: OBJECTIVE
  To explore the experiences of adult stroke survivors and their parent carers.
  
  
  METHODS
  Qualitative methodology: interpretative phenomenological analysis.
  
  
  METHODS
  Six residential areas across England and south Wales.
  
  
  METHODS
  Six adult stroke survivors (aged 27-46), six mothers (aged 59-76) and five fathers (aged 55-76).
  
  
  METHODS
  Semi-structured interviews to explore the relationship and interactions between parent and survivor prior to and after a stroke, with opportunities to explore both positive and negative changes. All interviews were transcribed and analysed by a six step interpretative phenomenological analysis process. Survivors, mothers and fathers were analysed as three separate groups and the results were synthesised.
  
  
  RESULTS
  Identical and interconnected themes emerged from the three groups, permitting synthesis into a single organising framework with four superordinate themes capturing the key issues for all three groups. The four superordinate themes were: 'emotional turmoil'; 'significance of parents'; 'negotiating independence versus dependence' and 'changed relationships'.
  
  
  CONCLUSIONS
  Parents reported adjusting to caring with relative ease. Survivors did not adjust to being cared for with such ease and felt positioned in a child role. Balancing independence and dependence was a challenge for survivors and parents and is considered within a systemic theory framework. Implications for service developments and guidelines are considered.
authors: Rookwood Hospital, Fairwater Road, Llandaff, Cardiff, UK.
authors: Lisa
authors: L
authors: Jones
authors: Reg
authors: R
authors: Morris
mesh_terms: D000328:Adult; D032721:Adult Children / Q000523:psychology; D000367:Age Factors; D000368:Aged; D017028:Caregivers / Q000523:psychology*; D004739:England; D005195:Family Relations; D005220:Fathers / Q000523:psychology*; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D009035:Mothers / Q000523:psychology*; D036301:Qualitative Research; D020521:Stroke / Q000523:psychology*; D017741:Survivors / Q000523:psychology*; D014852:Wales