title: Adolescents with celiac disease: a literature review of the impact developmental tasks have on adherence with a gluten-free diet.
abstract: Celiac disease is an autoimmune disease affecting individuals at any time across the developmental lifespan. The only treatment for celiac disease is lifelong adherence to a gluten-free diet to prevent future complications and malignancies. The ratio of occurrence between children and adolescents is 1:104. When the phase of adolescence is coalesced with having celiac disease, normal developmental tasks become more challenging, therefore impacting adherence with the gluten-free diet. An abundance of both qualitative and quantitative studies from the Netherlands, Europe, and Canada focusing on adolescents with celiac disease and adherence to the gluten-free diet was found in the literature. Conversely, in the United States, there was a dearth of literature examining adolescents diagnosed with celiac disease, their adherence to a gluten-free diet, and their lived experience of having celiac disease. The relevance to nursing practice and recommendations for future research are discussed in light of these findings.
authors: Kean University, Union, New Jersey, USA. jackiea412@aol.com
authors: Jacqueline
authors: J
authors: Arnone
authors: Virginia
authors: V
authors: Fitzsimons
mesh_terms: D000293:Adolescent; D041923:Adolescent Development; D002446:Celiac Disease / Q000178:diet therapy* / Q000451:nursing / Q000523:psychology; D055050:Diet, Gluten-Free; D006801:Humans; D010349:Patient Compliance / Q000523:psychology*; D010353:Patient Education as Topic; D010379:Peer Group; D012309:Risk-Taking; D012933:Social Identification; D057545:Social Stigma; D012944:Social Support