title: Patients with genetic cancer undergoing surveillance at a specialized clinic rate the quality of their care better than patients at non-specialized clinics.
abstract: OBJECTIVE
  To compare ratings of quality of care between patients with genetic cancer who receive specialized care with patients who receive non-specialized care while controlling for socio-demographic and clinical variables;
  
  
  METHODS
  All patients in a national cohort of adult patients diagnosed with familial adenomatous polyposis (FAP) who had undergone prophylactic colorectal surgery were assessed (n = 276, response rate 76%). Quality of care was measured with the Quality of Care from the Patient Perspective (QPP). Univariate and multivariate logistic regression analyses were performed;
  
  
  RESULTS
  Patients receiving specialized care were significantly more likely to report the quality of care as better in all three QPP dimensions investigated than those receiving non-specialized care;
  
  
  CONCLUSIONS
  In order to promote and maintain good quality of care for surgically treated patients with FAP, and to minimize the risk of cancer, specialized care, including continuity and easy access of health care professionals, should be provided.
authors: Department of Neurobiology, Division of Nursing, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden. kaisa.fritzell@karolinska.se
authors: Kaisa
authors: K
authors: Fritzell
authors: Lars E
authors: LE
authors: Eriksson
authors: Jan
authors: J
authors: Björk
authors: Mirjam
authors: M
authors: Sprangers
authors: Lena
authors: L
authors: Wettergren
mesh_terms: D011125:Adenomatous Polyposis Coli / Q000150:complications / Q000175:diagnosis / Q000235:genetics / Q000628:therapy*; D000328:Adult; D000368:Aged; D015331:Cohort Studies; D003082:Colectomy / Q000379:methods / Q000706:statistics & numerical data; D015179:Colorectal Neoplasms / Q000175:diagnosis / Q000209:etiology / Q000628:therapy*; D003430:Cross-Sectional Studies; D003695:Delivery of Health Care / Q000379:methods / Q000458:organization & administration; D005260:Female; D033142:Genetic Services / Q000458:organization & administration; D006801:Humans; D008134:Long-Term Care / Q000379:methods / Q000458:organization & administration; D008297:Male; D008875:Middle Aged; D009426:Netherlands; D057240:Patient Preference / Q000706:statistics & numerical data; D011787:Quality of Health Care / Q000592:standards / Q000706:statistics & numerical data; D012044:Regression Analysis; D013038:Specialization / Q000592:standards*