title: Centering autism within the family: a qualitative approach to autism and the family.
abstract: The lived experience of parents of children with autism living in a rural area was explored through a phenomenological approach. Twenty-eight parents from multiple rural communities participated in semi-structured interviews. Van Manen's (1990) selective highlighting approach was used to isolate thematic statements of the experience. Findings revealed that autism became centered within the family thereby affecting how parents parented. Parenting now included: (a) multiple roles; (b) an intense focus on their child's needs; and (c) finding a balance. Although parents acquired multiple roles and faced many unmet needs, parents were determined to strive for balance within the family.
authors: Faculty of Nursing, University of Manitoba, Winnipeg, Manitoba, Canada. umhoogsl@cc.umanitoba.ca
authors: Lindsey
authors: L
authors: Hoogsteen
authors: Roberta Lynne
authors: RL
authors: Woodgate
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001321:Autistic Disorder; D002648:Child; D005192:Family Health; D005260:Female; D006801:Humans; D008297:Male; D008350:Manitoba; D008875:Middle Aged; D033262:Narration; D010287:Parent-Child Relations; D016487:Parenting; D036301:Qualitative Research; D012380:Role; D012424:Rural Population