title: Self-reported health of people with intellectual disability.
abstract: Self-reported health is an important outcome in the evaluation of health care but is largely ignored in favor of proxy-based reporting for people with an intellectual disability. This study briefly reviews the role of self-report in health assessment of people with intellectual disability and the challenges and recommendations that have emerged from the considerable body of research on interviewing and self-report. Limitations in current recommendations are addressed from the perspective of the cognition of self-report. The review describes conceptual directions for the reconciliation of the two contradictory themes in the treatment of self-report: the centrality given to personal perceptions and choices and the methodological concerns over the meaningfulness and validity of the self-reporting process.
authors.affiliation: Department of Disability and Human Development, University of Illinois at Chicago, Chicago, IL 60608, USA. gfujiura@uic.edu
authors.forename: Glenn T
authors.initials: GT
authors.lastname: Fujiura
mesh_terms: D006304:Health Status; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology*; D057566:Self Report