title: Preferences for support services among adolescents and young adults with cancer or a blood disorder: a discrete choice experiment.
abstract: BACKGROUND
  Life-threatening illnesses in young people are traumatic for patients and their families. Support services can help patients and families deal with various non-medical impacts of diagnosis, disease and treatment. The aim of this study was to determine which types of support are most valued by adolescents and young adults (AYA) with cancer or blood disorders and their families.
  
  
  METHODS
  A discrete choice experiment (DCE). Separate experiments were conducted with AYA and their carers.
  
  
  RESULTS
  Completed surveys were returned by 83 patients and 78 carers. AYA preferred emotional support for themselves (either by counsellors and/or peers), emotional support for their family, financial support and assistance returning to school/work over services relating to cultural and spiritual needs. Covariate analysis indicated female AYA were more likely than males to prefer emotional support, while males were more likely to prefer assistance returning to work/school. Carers preferred emotional support for their AYA and assistance returning to school/work. Like AYA, they were indifferent about services relating to cultural and spiritual needs.
  
  
  CONCLUSIONS
  Providing the types of support services that people prefer should maximise effectiveness. This study suggests that AYA patients require support services that included financial aid, assistance returning to work/study, emotional support for themselves and for their family.
authors.affiliation: Centre for Health Economics Research and Evaluation, University of Technology, Sydney, Australia. stephen.goodall@chere.uts.edu.au
authors.forename: Stephen
authors.initials: S
authors.lastname: Goodall
authors.forename: Madeleine
authors.initials: M
authors.lastname: King
authors.forename: Jane
authors.initials: J
authors.lastname: Ewing
authors.forename: Narelle
authors.initials: N
authors.lastname: Smith
authors.forename: Patricia
authors.initials: P
authors.lastname: Kenny
mesh_terms: D000293:Adolescent; D000328:Adult; D001315:Australia; D017028:Caregivers; D005260:Female; D006402:Hematologic Diseases; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms; D057240:Patient Preference; D012944:Social Support; D011795:Surveys and Questionnaires; D055815:Young Adult