title: Developing a long-term ventilation service in a children's hospice:  an illustrative case study.
abstract: Children who use long-term ventilation at home and their parents find it difficult to access suitable respite services for short breaks. This article describes, through the use of a case study, a project to develop a respite service for such children at a children's hospice in England. The service development was a response to local need, which included a requirement to develop bespoke assessment documentation and processes as well as a comprehensive staff development package. The article follows the journey of one family through the development and use of the new service.
authors.affiliation: Florence Nightingale School of Nursing and Midwifery, King's College London, London, England. andrea.cockett@kcl.ac.uk
authors.forename: Andrea
authors.initials: A
authors.lastname: Cockett
mesh_terms: D002648:Child; D002675:Child, Preschool; D006699:Home Care Services / Q000458:organization & administration*; D006738:Hospices; D006801:Humans; D019982:Organizational Case Studies; D010166:Palliative Care / Q000458:organization & administration*; D012121:Respiration, Artificial; D012144:Respite Care / Q000458:organization & administration*; D006113:United Kingdom