title: IT behind a platform for Translational Cancer Research - concept and objectives.
abstract: The German Consortium for Translational Cancer Research (DKTK) and the Rhine-Main Translational Cancer Research Network (RM-TCRN) are designed to exploit large population cohorts of cancer patients for the purpose of bio-banking, clinical trials, and clinical cancer registration. Hence, the success of these platforms is heavily dependent on the close interlinking of clinical data from cancer patients, information from study registries, and data from bio-banking systems of different laboratories and scientific institutions. This article referring to the poster discusses the main challenges of the platforms from an information technology point of view, legal and data security issues, and outlines an integrative IT-concept concerning a decentralized, distributed search approach where data management and search is in compliance with existing legislative rules.
authors.affiliation: University Medical Center, Mainz, Germany. michael.steffens@uni-mainz.de
authors.forename: Michael
authors.initials: M
authors.lastname: Steffens
authors.forename: Gabriele
authors.initials: G
authors.lastname: Husmann
authors.forename: Mithat
authors.initials: M
authors.lastname: Koca
authors.forename: Martin
authors.initials: M
authors.lastname: Lablans
authors.forename: Martina
authors.initials: M
authors.lastname: Komor
authors.forename: Sylke
authors.initials: S
authors.lastname: Zeissig
authors.forename: Katharina
authors.initials: K
authors.lastname: Emrich
authors.forename: Christian
authors.initials: C
authors.lastname: Brandts
authors.forename: Hubert
authors.initials: H
authors.lastname: Serve
authors.forename: Maria
authors.initials: M
authors.lastname: Blettner
authors.forename: Frank
authors.initials: F
authors.lastname: Uckert
mesh_terms: D035843:Biomedical Research / Q000379:methods / Q000458:organization & administration*; D003628:Database Management Systems; D057286:Electronic Health Records / Q000458:organization & administration*; D005858:Germany; D055991:Health Records, Personal; D016247:Information Storage and Retrieval / Q000379:methods; D008490:Medical Informatics / Q000379:methods / Q000458:organization & administration*; D008495:Medical Oncology / Q000379:methods / Q000458:organization & administration*; D008498:Medical Record Linkage / Q000379:methods*; D009937:Organizational Objectives; D057170:Translational Research, Biomedical / Q000379:methods / Q000458:organization & administration*