Heart for bonding: a new protocol of care for hypoplastic left heart syndrome.
There are significant challenges involved in the perinatal and postnatal care of an infant with hypoplastic left heart syndrome (HLHS) and the infant's family. In the blink of an eye, the perfect child is lost, and a fragile infant is about to join the family. This case study and discussion is an overview of HLHS , a family's desire to make the birth of their infant normal, and how that desire initiated a change in philosophy and practice in our neonatal intensive care unit.
Neonatal Intensive Care Nursery, Duke University Medical Center, Durham, NC 27710, USA. mep71964@mindspring.com
Mary E
ME
Parker
Wanda T
WT
Bradshaw
Hope R
HR
Smith
D000328:Adult; D005260:Female; D006801:Humans; D018636:Hypoplastic Left Heart Syndrome / Q000175:diagnosis* / Q000451:nursing*; D017283:Neonatal Nursing / Q000379:methods*; D009769:Object Attachment; D010166:Palliative Care / Q000379:methods*; D011247:Pregnancy; D011296:Prenatal Diagnosis / Q000379:methods