Listening to lupus patients and families: fine tuning the assessment.
Given the chronicity and uncertainty of lupus, patients and their family members will face physical, financial, social, and emotional challenges that can be overwhelming. This article records the experiences of three different families affected by lupus. Although these patients and families are very different, their perspectives identify common emotional challenges. Understanding these experiences from their perspectives can help facilitate an assessment that is highly attuned to the potential psychosocial impact of lupus on the patient and the family.
Wurzweiler School of Social Work, Yeshiva University, New York, New York 10033, USA. nlbeckerman@gmail.com
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NL
Beckerman
Michele
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Sarracco
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000368:Aged; D001007:Anxiety / Q000209:etiology; D017028:Caregivers / Q000523:psychology*; D015897:Comorbidity; D003863:Depression / Q000209:etiology; D005195:Family Relations; D005260:Female; D017144:Focus Groups; D006801:Humans; D008180:Lupus Erythematosus, Systemic / Q000188:drug therapy / Q000191:economics / Q000523:psychology*; D008297:Male; D036301:Qualitative Research; D018434:Sickness Impact Profile; D012944:Social Support; D012947:Social Work / Q000379:methods*; D035501:Uncertainty