Accessing donor conception information in Australia: a call for retrospective access.
Donor conception practices in Australia have left thousands of donor-conceived people, their families and gamete donors bereft of information. The lack of a nationally timeline-consistent approach to information access has driven these people to seek support and information from self-help groups, online communities and even their own DNA. This article examines the historical perspective of information access and how progress is being made through lobbying and public awareness. To determine the current status of information availability, fertility clinics around Australia were surveyed. It is argued that current practices continue to fail donor-conceived people, their families and gamete donors, and that until all donor offspring are afforded the right to know their genetic family history, they will continue to suffer discrimination, and potentially risk psychological and physical trauma.
Department of Nursing and Midwifery, Flinders University, Bedford Park, SA 5042, Australia. adam0072@flinders.edu.au
Damian
D
Adams
Caroline
C
Lorbach
D022126:Access to Information / Q000331:legislation & jurisprudence*; D001315:Australia; D003219:Confidentiality / Q000331:legislation & jurisprudence; D005260:Female; D006801:Humans; D008119:Lobbying; D008297:Male; D018587:Oocyte Donation / Q000331:legislation & jurisprudence*; D033283:Patient Access to Records / Q000331:legislation & jurisprudence*; D012661:Semen; D014019:Tissue Donors / Q000331:legislation & jurisprudence*; D014342:Truth Disclosure