title: Parent and pediatrician perspectives regarding the primary care of children with autism spectrum disorders.
abstract: Parents of children with autism spectrum disorders (ASD) (n = 144) and primary care providers (PCPs) (n = 144) completed similar surveys assessing the ability of the PCP to address ASD-specific needs. Parents also rated their PCP's ability to deliver family-centered care. A majority of parents rated their PCP's ability as "not good" in addressing 14 of 17 ASD-specific needs, while a majority of PCPs rated themselves as "good" in addressing 10 of 17 areas. On 7 of 17 items, parents rated their PCPs lower than PCPs rated themselves. Parents who reported receiving family-centered care were more likely to rate the PCP's ability to meet ASD specific needs as "good". Both parents and PCPs identified areas for improvement in caring for children with ASD.
authors.affiliation: Division of General Pediatrics, Department of Pediatrics, University of Utah Health Sciences Center, Salt Lake City, UT 84108, USA. aul.carbone@hsc.utah.edu
authors.forename: Paul S
authors.initials: PS
authors.lastname: Carbone
authors.forename: Nancy A
authors.initials: NA
authors.lastname: Murphy
authors.forename: Chuck
authors.initials: C
authors.lastname: Norlin
authors.forename: Virgina
authors.initials: V
authors.lastname: Azor
authors.forename: Xiaoming
authors.initials: X
authors.lastname: Sheng
authors.forename: Paul C
authors.initials: PC
authors.lastname: Young
mesh_terms: D000328:Adult; D002648:Child; D002659:Child Development Disorders, Pervasive / Q000534:rehabilitation*; D002675:Child, Preschool; D005260:Female; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology; D017060:Patient Satisfaction; D010372:Pediatrics / Q000592:standards*; D058007:Physicians, Primary Care / Q000523:psychology; D011320:Primary Health Care / Q000592:standards*; D011795:Surveys and Questionnaires