title: The study of risk in pulmonary arterial hypertension.
abstract: A growing body of published evidence exists on the risk factors for disease progression in pulmonary arterial hypertension (PAH). The Scientific Steering Committee for the Study of Risk in PAH was established to bring together leading clinical and statistical experts in PAH and risk modelling, for the purpose of advancing the understanding of the risk of development and progression of PAH. Herein, we discuss the impact of this information on three key areas: 1) clinical decision-making; 2) policy and reimbursement; and 3) future trials and research.
authors.affiliation: School of Medicine, University of California San Diego, La Jolla, CA 92093, USA. ljr@lewisrubinmd.com
authors.forename: Lewis J
authors.initials: LJ
authors.lastname: Rubin
authors.forename: Gerald
authors.initials: G
authors.lastname: Simonneau
authors.forename: David
authors.initials: D
authors.lastname: Badesch
authors.forename: Nazzareno
authors.initials: N
authors.lastname: Galiè
authors.forename: Marc
authors.initials: M
authors.lastname: Humbert
authors.forename: Anne
authors.initials: A
authors.lastname: Keogh
authors.forename: Joseph
authors.initials: J
authors.lastname: Massaro
authors.forename: Marco
authors.initials: M
authors.lastname: Matucci Cerinic
authors.forename: Olivier
authors.initials: O
authors.lastname: Sitbon
authors.forename: Steven
authors.initials: S
authors.lastname: Kymes
mesh_terms: D003362:Cost-Benefit Analysis; D018450:Disease Progression; D065627:Familial Primary Pulmonary Hypertension; D017048:Health Care Costs; D006291:Health Policy; D006439:Hemodynamics; D006801:Humans; D006976:Hypertension, Pulmonary / Q000175:diagnosis / Q000191:economics / Q000401:mortality / Q000503:physiopathology / Q000628:therapy; D011379:Prognosis; D011651:Pulmonary Artery / Q000503:physiopathology*; D018570:Risk Assessment; D012307:Risk Factors; D013997:Time Factors