title: 'You needed to rehab … families as well': family members' own goals for aphasia rehabilitation.
abstract: BACKGROUND
  Aphasia affects family members in addition to the individuals with the communication disorder. In order to develop appropriate services for the relatives of people with aphasia post-stroke, their rehabilitation goals need to be identified.
  
  
  OBJECTIVE
  The aim of the current investigation was to identify the rehabilitation goals that family members of individuals with aphasia have for themselves.
  
  
  METHODS
  Forty-eight family members of adults with aphasia post-stroke participated in in-depth semi-structured interviews to identify the rehabilitation goals they had for themselves. All the interviews were transcribed verbatim and analysed using qualitative content analysis.
  
  
  RESULTS
  Analysis revealed seven categories of goals that the family members had for themselves: to be included in rehabilitation, to be provided with hope and positivity, to be able to communicate and maintain their relationship with the person with aphasia, to be given information, to be given support, to look after their own well-being, and to be able to cope with new responsibilities. A few participants reported that, at certain times during the rehabilitation process, they did not have any goals for themselves.
  
  
  CONCLUSIONS
  This study highlights that family members of individuals with aphasia have a number of aphasia-related rehabilitation goals for themselves. In order to provide a family-centred approach to rehabilitation, health professionals, including speech-language pathologists, need systematically to identify and address family members' goals in light of the categories revealed in this investigation.
authors.affiliation: University of Canterbury, Christchurch, New Zealand. tami.howe@canterbury.ac.nz
authors.forename: Tami
authors.initials: T
authors.lastname: Howe
authors.forename: Bronwyn
authors.initials: B
authors.lastname: Davidson
authors.forename: Linda
authors.initials: L
authors.lastname: Worrall
authors.forename: Deborah
authors.initials: D
authors.lastname: Hersh
authors.forename: Alison
authors.initials: A
authors.lastname: Ferguson
authors.forename: Sue
authors.initials: S
authors.lastname: Sherratt
authors.forename: Jocelyn
authors.initials: J
authors.lastname: Gilbert
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001037:Aphasia / Q000534:rehabilitation*; D001315:Australia; D017028:Caregivers / Q000523:psychology*; D005190:Family / Q000523:psychology*; D005260:Female; D006266:Health Education; D006801:Humans; D008297:Male; D008875:Middle Aged; D033262:Narration; D020380:Needs Assessment; D011368:Professional-Family Relations; D036301:Qualitative Research; D012944:Social Support; D000071939:Stroke Rehabilitation