title: Future MS care: a consensus statement of the MS in the 21st Century Steering Group.
abstract: The "MS in the 21st Century" initiative was established with the purpose of (1) defining how multiple sclerosis (MS) treatment and standards of care should look in the 21st century; (2) developing a minimum standard of care across the world; and (3) motivating the broad MS community to align standards of care and challenge the current treatment paradigm. The aim was to develop a consensus statement to reach and influence the broader MS community. An expert steering group from Europe and Canada-consisting of neurologists, patient advocates, a pharmacoepidemiologist/pharmacoeconomist, and representatives from national MS centers-participated in a series of workshop-driven meetings between February 2011 and 2012. After three phases of discussions, the steering group identified that the overall vision for future care of MS should be full access to personalized treatment, with reimbursement, to achieve freedom from disease. They constructed seven overall principles that support this vision: personalized care, patient engagement, commitment to research, regulatory body education and reimbursement issues, new endpoints in clinical trials, more therapy options, and MS centers of excellence. This consensus statement outlines the key aspects of the seven principles that need to be addressed. The "MS in the 21st Century Steering Group" hopes that this consensus statement acts as a call to action for healthcare providers and decision-makers to address simultaneously the overarching principles that will guide patient management in order to improve outcomes for people with MS.
authors.affiliation: Department of Neurology, Sozialstiftung Bamberg Hospital, Bamberg, Germany. msin21stcentury@is-health.co.uk
authors.forename: Peter
authors.initials: P
authors.lastname: Rieckmann
authors.forename: Alexey
authors.initials: A
authors.lastname: Boyko
authors.forename: Diego
authors.initials: D
authors.lastname: Centonze
authors.forename: Alasdair
authors.initials: A
authors.lastname: Coles
authors.forename: Irina
authors.initials: I
authors.lastname: Elovaara
authors.forename: Eva
authors.initials: E
authors.lastname: Havrdová
authors.forename: Otto
authors.initials: O
authors.lastname: Hommes
authors.forename: Jacques
authors.initials: J
authors.lastname: Lelorier
authors.forename: Sarah A
authors.initials: SA
authors.lastname: Morrow
authors.forename: Celia
authors.initials: C
authors.lastname: Oreja-Guevara
authors.forename: Nick
authors.initials: N
authors.lastname: Rijke
authors.forename: Sven
authors.initials: S
authors.lastname: Schippling
mesh_terms: D002170:Canada; D032921:Consensus; D003657:Decision Making; D019468:Disease Management; D005060:Europe; D006801:Humans; D009103:Multiple Sclerosis / Q000628:therapy*; D018802:Patient-Centered Care; D012106:Research / Q000592:standards / Q000639:trends