title: Adult cancer survivors discuss follow-up in primary care: 'not what i want, but maybe what i need'.
abstract: BACKGROUND Nearly one-third of office visits for cancer are handled by primary care physicians. Yet, few studies examine patient perspectives on these physicians' roles in their cancer follow-up care or their care preferences.  METHODS We explored survivor preferences through qualitative, semistructured, in-depth interviews drawing on patients recruited from 2 National Cancer Institute-designated comprehensive cancer centers and 6 community hospitals. We recruited a purposive sample of early-stage breast and prostate cancer survivors aged 47 to 80 years, stratified by age, race, and length of time from and location of cancer treatment. Survivors were at least 2 years beyond completion of their active cancer treatment  RESULTS Forty-two survivors participated in the study. Most participants expressed strong preferences to receive follow-up care from their cancer specialists (52%). They described the following barriers to the primary care physician's engagement in follow-up care: (1) lack of cancer expertise, (2) limited or no involvement with original cancer care, and (3) lack of care continuity. Only one-third of participants (38%) believed there was a role for primary care in cancer follow-up care and suggested the following opportunities: (1) performing routine cancer-screening tests, (2) supplementing cancer and cancer-related specialist care, and (3) providing follow-up medical care when "enough time has passed" or the survivors felt that they could reintegrate into the noncancer population.  CONCLUSION Survivors have concerns about seeing their primary care physician for cancer-related follow-up care. Research interventions to address these issues are necessary to enhance the quality of care received by cancer survivors.
authors.affiliation: The Cancer Institute of New Jersey, UMDNJ-Robert Wood Johnson Medical School, New Brunswick, New Jersey 08903-2681, USA. hudsonsh@umdnj.edu
authors.forename: Shawna V
authors.initials: SV
authors.lastname: Hudson
authors.forename: Suzanne M
authors.initials: SM
authors.lastname: Miller
authors.forename: Jennifer
authors.initials: J
authors.lastname: Hemler
authors.forename: Jeanne M
authors.initials: JM
authors.lastname: Ferrante
authors.forename: Jennifer
authors.initials: J
authors.lastname: Lyle
authors.forename: Kevin C
authors.initials: KC
authors.lastname: Oeffinger
authors.forename: Robert S
authors.initials: RS
authors.lastname: Dipaola
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D001943:Breast Neoplasms / Q000523:psychology*; D003266:Continuity of Patient Care; D055088:Early Detection of Cancer; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D057240:Patient Preference / Q000523:psychology*; D018802:Patient-Centered Care; D010819:Physician's Role; D010817:Physician-Patient Relations; D011320:Primary Health Care; D011471:Prostatic Neoplasms / Q000523:psychology*; D036301:Qualitative Research; D017741:Survivors / Q000523:psychology*