title: The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability.
abstract: This article describes how evidence-based outcomes (EBOs) can be used to improve clinical, managerial, and policy decisions. As a component of evidence-based practices, EBOs are defined as measures obtained from the assessment of quality of life-related indicators that are based on a cross-culturally validated quality of life conceptual and measurement model, have utility in that they can be used for multiple purposes, and have robustness in reference to reliability and validity of the assessment strategy employed. A 5-component EBO model is described that provides a framework for the activities involved in selecting, developing, and implementing evidence-based outcomes. Three international examples based on the reliable, valid, and standardized assessment of individual quality of life outcomes are presented that demonstrate how EBOs can be used to improve clinical, managerial, and policy decision making. The article concludes with a discussion of guidelines for developing and using EBOs, and the challenges involved in their use.
authors.affiliation: Arduin Foundation, The Netherlands. JLoon@arduin.nl
authors.forename: Jos H M
authors.initials: JH
authors.lastname: van Loon
authors.forename: Gordon S
authors.initials: GS
authors.lastname: Bonham
authors.forename: Dale D
authors.initials: DD
authors.lastname: Peterson
authors.forename: Robert L
authors.initials: RL
authors.lastname: Schalock
authors.forename: Claudia
authors.initials: C
authors.lastname: Claes
authors.forename: Adelien E M
authors.initials: AE
authors.lastname: Decramer
mesh_terms: D003657:Decision Making; D055317:Evidence-Based Practice / Q000458:organization & administration*; D006801:Humans; D008607:Intellectual Disability / Q000534:rehabilitation*; D020380:Needs Assessment / Q000458:organization & administration*; D010043:Outcome and Process Assessment, Health Care / Q000458:organization & administration*; D011050:Policy Making; D019984:Quality Indicators, Health Care; D011788:Quality of Life; D013597:Systems Analysis