title: Evaluation of a patient information website for childhood cancer survivors.
abstract: OBJECTIVE
  Childhood cancer survivors (CCS) are in need of specialized information about late effects of treatment. In the current study, we assessed the perceived usability and satisfaction with the content of a national website with information on late effects and analyzed possible determinants related to website usability and content satisfaction.
  
  
  METHODS
  CCS and their parents were contacted through our local follow-up program and via online media to complete an online questionnaire regarding their baseline characteristics, medical decision style, and the usability and content of the website. Usability was evaluated using the System Usability Scale (SUS), a validated questionnaire resulting in a score from 0 to 100. For the content rating, we constructed a six-item scale resulting in a score from 1 to 5 (Cronbach's α, 0.83). Comments were analyzed qualitatively.
  
  
  RESULTS
  Fifty-five survivors and forty-three parents of survivors completed the questionnaire. Median age of respondents was 41 years (range, 17-58). Respondents rated the website's usability with a mean SUS score of 72.5 (95 % CI, 69.2-74.9). The mean content rating was 3.7 (95 % CI, 3.5-3.8). No determinants were significantly related to the perceived usability or content satisfaction in multivariate analyses. Qualitative analysis revealed respondents' preference for more detailed and even scientific information on late effects.
  
  
  CONCLUSIONS
  Respondents were satisfied with the usability and the contents of a website that targeted at their information needs. As knowledge about late effects is still limited among survivors, a website can be a valuable resource to improve their knowledge, promote healthy behavior, and in the end, improve their quality of life.
authors.affiliation: Department of Medical Informatics, Academic Medical Center, Room J1B-113.2, Meibergdreef 9, 1105 AZ, Amsterdam, The Netherlands. S.L.Knijnenburg@amc.uva.nl
authors.forename: Sebastiaan L
authors.initials: SL
authors.lastname: Knijnenburg
authors.forename: Leontien C
authors.initials: LC
authors.lastname: Kremer
authors.forename: A Birgitta
authors.initials: AB
authors.lastname: Versluys
authors.forename: Katja I
authors.initials: KI
authors.lastname: Braam
authors.forename: Minke S
authors.initials: MS
authors.lastname: Mud
authors.forename: Heleen J
authors.initials: HJ
authors.lastname: van der Pal
authors.forename: Huib N
authors.initials: HN
authors.lastname: Caron
authors.forename: Monique W
authors.initials: MW
authors.lastname: Jaspers
mesh_terms: D000293:Adolescent; D000328:Adult; D016001:Confidence Intervals; D005260:Female; D006801:Humans; D020407:Internet; D008297:Male; D008875:Middle Aged; D009369:Neoplasms; D009426:Netherlands; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D011795:Surveys and Questionnaires; D017741:Survivors; D055815:Young Adult