title: Working with previously anonymous gamete donors and donor-conceived adults: recent practice experiences of running the DNA-based voluntary information exchange and contact register, UK DonorLink.
abstract: This article describes recent practice experiences with donor conceived adults, donors, non-donor-conceived adult children of donors using the voluntary DNA-based register, UK DonorLink. It highlights additional complexities faced when using DNA rather than paper records for searching, in particular from the risk of false positives, low chances of success and potential inclusion of biological parents' DNA. Professionals' experiences in supporting those being "linked" suggest challenges as well as rewards. Registration carries the potential to be therapeutic for donor-conceived adults and donors and to enhance their political awareness regardless of links being made. Registrants value both peer and professional support, providing the latter can respond flexibly and be delivered by staff experienced in intermediary work. Given that the majority of those affected by donor conception internationally come from anonymous donation systems, these findings are highly pertinent and argue the need for political and moral debate about such service provision.
authors.affiliation: UK DonorLink, Leeds, UK. marilyn.crawshaw@york.ac.uk
authors.forename: Marilyn
authors.initials: M
authors.lastname: Crawshaw
authors.forename: Christine
authors.initials: C
authors.lastname: Gunter
authors.forename: Christine
authors.initials: C
authors.lastname: Tidy
authors.forename: Freda
authors.initials: F
authors.lastname: Atherton
mesh_terms: D000328:Adult; D000368:Aged; D003219:Confidentiality / Q000941:ethics; D004247:DNA / Q000235:genetics; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D018587:Oocyte Donation / Q000331:legislation & jurisprudence; D027724:Reproductive Techniques, Assisted; D014019:Tissue Donors / Q000523:psychology*; D006113:United Kingdom; D055815:Young Adult
chemical_list: D004247:DNA