title: Supporting rural family palliative caregivers.
abstract: There is urgent need to effectively support the well-being of rural palliative family caregivers (FCGs). A mixed method study was conducted with 23 FCGs. Data collection included completion of an assessment questionnaire and semistructured interviews. The most prevalent needs identified by questionnaire were caring for the patient's pain, fatigue, body, and nourishment; FCG's fatigue and need for respite. Yet few FCGs wanted more attention to these needs by healthcare providers. FCGs resisted considering their own personal needs. Instead, they focused on needs related to providing care including to be(come) a palliative caregiver, be skilled and know more, navigate competing wishes, needs, demands, and priorities, and for "an extra pair of hands." Gaps in rural palliative services contributed to low expectations for assistance; reluctance to seek assistance was influenced by FCGs' resourcefulness and independence. Findings suggest that supporting FCGs will most likely be successful when framed in relation to their caregiving role.
authors.affiliation: University of British Columbia, Kelowna, BC, Canada. carole.robinson@ubc.ca
authors.forename: Carole A
authors.initials: CA
authors.lastname: Robinson
authors.forename: Barbara
authors.initials: B
authors.lastname: Pesut
authors.forename: Joan L
authors.initials: JL
authors.lastname: Bottorff
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers / Q000523:psychology; D015400:Clinical Nursing Research; D022143:Family Nursing; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D010166:Palliative Care; D012424:Rural Population; D012648:Self Care; D012944:Social Support; D011795:Surveys and Questionnaires