title: Finding a wider horizon: experiences of being a next-of-kin of a person suffering from colorectal cancer as told after having participated in a psychoeducational program.
abstract: OBJECTIVE
  The aim of this study was twofold: first, to describe the experience of being the next-of-kin of a person suffering from colorectal cancer (CRC), and second, to describe how a psychoeducational program (PEP) might contribute to the next-of-kin's life experience. Psychosocial interventions for next-of-kin to cancer patients are effective in improving quality of life issues, although there are conflicting results in previous studies. Most studies have evaluated the effects of PEP for mixed cancer groups but there is little knowledge about how next-of-kin to a person treated for CRC describe their experience of life and their experience of participating in a PEP.
  
  
  METHODS
  The study used a qualitative descriptive design. Individual, open-ended interviews with each of the 18 next-of-kin, of persons receiving treatment for CRC, who participated in a PEP. Data were analyzed using content analysis.
  
  
  RESULTS
  Based on the experiences described by the next-of-kin to a person treated for CRC, the subtheme; Facing a personal challenge was developed. From their described experiences of participating in a PEP, the subtheme Obtaining New Insights and Perspectives emerged. One main theme was finally identified; Finding a Wider Horizon. The study illuminates the importance of integrating the next-of-kin/family in the colorectal cancer care.
  
  
  CONCLUSIONS
  The findings from this study can be used to plan future interventions for next-of-kin to patients with CRC as it offers possibilities to understand the next-of-kin's situation and experience from participating in a PEP.
authors.affiliation: Department of Surgery, Örebro University Hospital, Örebro, Sweden. emma.ohlsson-nevo@orebroll.se
authors.forename: E
authors.initials: E
authors.lastname: Ohlsson-Nevo
authors.forename: B
authors.initials: B
authors.lastname: Andershed
authors.forename: U G
authors.initials: UG
authors.lastname: Nilsson
authors.forename: A
authors.initials: A
authors.lastname: Anderzén-Carlsson
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers / Q000193:education / Q000523:psychology; D015179:Colorectal Neoplasms / Q000175:diagnosis / Q000523:psychology* / Q000628:therapy; D005260:Female; D006266:Health Education / Q000458:organization & administration*; D006801:Humans; D016901:Intergenerational Relations; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D010353:Patient Education as Topic / Q000458:organization & administration*; D016730:Program Development; D015397:Program Evaluation; D011584:Psychology; D011613:Psychotherapy / Q000458:organization & administration; D036301:Qualitative Research; D011788:Quality of Life; D018570:Risk Assessment; D013315:Stress, Psychological; D013548:Sweden