title: Characteristics of patients with epilepsy who use a website providing healthcare information about epilepsy in South Korea.
abstract: We studied characteristics of epilepsy patients who use 'Epilia', a healthcare website for epilepsy patients, and the impact of 'Epilia' on patient satisfaction and attitude about epilepsy. A total of 153 epilepsy patients from 'Epilia' (online group) and 367 patients from epilepsy clinics (offline group) were recruited. A survey was done to investigate their socio-demographic, epilepsy-related, and psychological characteristics, as well as attitude alterations after beginning to use 'Epilia'. Factors affecting attitude were also identified in the online group. Online group had more severe and more frequent seizures, more adverse effects, more anxiety and depression, and worse quality of life than offline group. Online group patients who are more satisfied, who take two or more antiepileptic drugs, who visit to 'Epilia' more and longer had a greater positive attitude change than those without these characteristics. A healthcare website can contribute to self-management by providing useful information and education for epilepsy patients.
authors.affiliation: Department of Neurology, Korea University College of Medicine, Seoul, Republic of Korea.
authors.forename: Yong Seo
authors.initials: YS
authors.lastname: Koo
authors.forename: Kyung-Sook
authors.initials: KS
authors.lastname: Yang
authors.forename: Hung Youl
authors.initials: HY
authors.lastname: Seok
authors.forename: Sang Kun
authors.initials: SK
authors.lastname: Lee
authors.forename: Il Keun
authors.initials: IK
authors.lastname: Lee
authors.forename: Yong Won
authors.initials: YW
authors.lastname: Cho
authors.forename: Joo Hwa
authors.initials: JH
authors.lastname: Lee
authors.forename: Hee
authors.initials: H
authors.lastname: Hwang
authors.forename: Ki Joong
authors.initials: KJ
authors.lastname: Kim
authors.forename: Ki-Young
authors.initials: KY
authors.lastname: Jung
mesh_terms: D000927:Anticonvulsants / Q000627:therapeutic use; D004827:Epilepsy / Q000523:psychology / Q000628:therapy*; D007722:Health Knowledge, Attitudes, Practice; D057220:Health Literacy; D006296:Health Services; D006801:Humans; D020407:Internet; D017060:Patient Satisfaction; D010549:Personal Satisfaction; D011788:Quality of Life; D056910:Republic of Korea; D012648:Self Care; D011795:Surveys and Questionnaires
chemical_list: D000927:Anticonvulsants