title: Public participation in genomics research in the Netherlands: validating a measurement scale.
abstract: Nowadays, new technologies, like genomics, cannot be developed without the support of the public. However, although interested, the public does not always actively participate in science issues when offered the opportunity via public participation activities. In a study aimed at validating a measurement scale, first, we investigated if public participation existed, and, secondly, we investigated how levels of public participation in genomics research varied among groups. Finally, we studied which factors predicted public participation. Results were based on a questionnaire with four subsamples. Results confirmed, first of all, the internal consistency of the measurement scale to assess levels of public participation. Secondly, the groups differed significantly with regard to their levels of participation in genomics research. Finally, the findings revealed that information-seeking behaviour, knowledge and education were main predictors of public participation, while interest, social involvement, and trust and influence had some influence together with age and gender.
authors.affiliation: University of Twente, Faculty of Behavioural Sciences, Institute ELAN, Science Communication, Postbus 217,7500 AE Enschede, The Netherlands a.m.dijkstra@utwente.nl
authors.forename: Anne M
authors.initials: AM
authors.lastname: Dijkstra
authors.forename: Jan M
authors.initials: JM
authors.lastname: Gutteling
authors.forename: J A A
authors.initials: JA
authors.lastname: Swart
authors.forename: Nicolien F
authors.initials: NF
authors.lastname: Wieringa
authors.forename: Henny J
authors.initials: HJ
authors.lastname: van Derwindt
authors.forename: Erwin R
authors.initials: ER
authors.lastname: Seydel
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001290:Attitude; D035843:Biomedical Research; D003256:Community Participation; D005260:Female; D023281:Genomics; D006801:Humans; D008297:Male; D008875:Middle Aged; D009426:Netherlands; D035842:Research Subjects / Q000523:psychology; D011795:Surveys and Questionnaires; D055815:Young Adult