title: Personal financial effects of multiple myeloma and its treatment.
abstract: BACKGROUND
  Improvements in some treatment programs for multiple myeloma (MM) are increasing survival. As patients live longer with MM as a chronic disease, the personal financial effects of MM treatment become a serious concern.
  
  
  OBJECTIVE
  The objective of this study was to identify the personal financial effects of MM and its treatment in 5 areas: employment, disability, health/medical and life insurance, retirement, and out-of-pocket expenses.
  
  
  METHODS
  We mailed a questionnaire about financial issues to 1015 patients who had received intensive treatment for MM at the study site. Data analysis included descriptive statistics and comparisons using independent t tests.
  
  
  RESULTS
  Our sample (n = 762; mean age, 61 [SD, 9.26] years) experienced issues with employment (66% employed at diagnosis and treatment; 33% employed at questionnaire time), disability (35% applied), health/medical and life insurance (29% lost coverage and 8% changed coverage), retirement (13% retired during treatment), and out-of-pocket expenses (36% of income in first treatment year and 28% of income during most recent 12 months).
  
  
  CONCLUSIONS
  Issues of employment, disability, health insurance, retirement, and out-of-pocket costs for treatment are major challenges for patients.
  
  
  CONCLUSIONS
  In the midst of assessing physical needs during clinical trials for chemotherapy and stem cell transplants, healthcare providers must keep sight of patients' personal financial needs so that we can intervene promptly with referrals to social work, rehabilitation therapy, and other healthcare professions to help patients decrease the personal financial effects of MM and its treatment.
authors.affiliation: College of Nursing, University of Arkansas for Medical Sciences, Little Rock 72205, USA. goodwinjuliaa@uams.edu
authors.forename: Julia A
authors.initials: JA
authors.lastname: Goodwin
authors.forename: Elizabeth Ann
authors.initials: EA
authors.lastname: Coleman
authors.forename: Ellen
authors.initials: E
authors.lastname: Sullivan
authors.forename: Robin
authors.initials: R
authors.lastname: Easley
authors.forename: Paula K
authors.initials: PK
authors.lastname: McNatt
authors.forename: Nupur
authors.initials: N
authors.lastname: Chowdhury
authors.forename: Carol Beth
authors.initials: CB
authors.lastname: Stewart
mesh_terms: D000328:Adult; D000368:Aged; D017281:Cost of Illness; D003430:Cross-Sectional Studies; D004185:Disability Evaluation; D004651:Employment / Q000191:economics; D005260:Female; D005382:Financing, Personal / Q000191:economics*; D006801:Humans; D007182:Income; D019458:Insurance Coverage / Q000191:economics*; D008297:Male; D008875:Middle Aged; D009101:Multiple Myeloma / Q000175:diagnosis / Q000191:economics* / Q000628:therapy*; D020380:Needs Assessment; D012179:Retirement / Q000191:economics; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires; D014481:United States