Dementia information for culturally and linguistically diverse communities: sources, access and considerations for effective practice.
Providing information about dementia has been shown to produce immense benefits for people living with dementia and their carers. The dementia information needs of culturally and linguistically diverse (CALD) families have not been comprehensively investigated. Addressing this research gap, the current study examines the perspectives of a range of stakeholders - CALD family caregivers (Arabic, Chinese, Italian and Spanish speaking), bilingual and bicultural workers, bilingual general practitioners and geriatricians - about dementia-related information. The study focussed on sources of information, issues of access and considerations for improving information provision. The main findings that are relevant for improving policy and practice are: the need for a more strategic and coordinated approach to dissemination structures and processes, a greater emphasis on supporting and enhancing the interpersonal aspects of information provision, the need for a greater range of information for CALD communities and the need to ensure information resources and processes reflect the circumstances and needs of these communities.
Cumberland Prospect Multicultural Health Project, Cumberland Hospital, Sydney, Australia.
Desiree
D
Boughtwood
Christopher
C
Shanley
Jon
J
Adams
Yvonne
Y
Santalucia
Helena
H
Kyriazopoulos
Dimity
D
Pond
Jeffrey
J
Rowland
D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D001294:Attitude to Health / Q000208:ethnology*; D017028:Caregivers / Q000193:education*; D003144:Communication Barriers; D054626:Consumer Health Information; D054521:Cultural Competency; D003704:Dementia / Q000175:diagnosis / Q000208:ethnology*; D005260:Female; D017144:Focus Groups; D006801:Humans; D008297:Male; D008875:Middle Aged; D009517:New South Wales; D010353:Patient Education as Topic; D036301:Qualitative Research; D055815:Young Adult