Circles of care: development and initial evaluation of a peer support model for African Americans with advanced cancer.
Peer support interventions extend care and health information to underserved populations yet rarely address serious illness. Investigators from a well-defined academic-community partnership developed and evaluated a peer support intervention for African Americans facing advanced cancer. Evaluation methods used the Reach, Efficacy, Adoption, Implementation, Maintenance (RE-AIM) framework. Investigators initially recruited and trained 24 lay health advisors who shared information or support with 210 individuals. However, lay advisors reported barriers of medical privacy and lack of confidence working alone with people with cancer. Training was modified to match the support team model for peer support; training reached 193 volunteers, 104 of whom formed support teams for 47 persons with serious illness. Support teams were adopted by 23 community organizations, including 11 African American churches. Volunteers in teams felt prepared to implement many aspects of supportive care such as practical support (32%) or help with cancer or palliative care resources (43%). People with serious illness requested help with practical, emotional, spiritual, and quality of life needs; however, they rarely wanted advocacy (3%) or cancer or palliative care resources (5%) from support teams. Volunteers had difficulty limiting outreach to people with advanced cancer due to medical privacy concerns and awareness that others could benefit. Support teams are a promising model of peer support for African Americans facing advanced cancer and serious illness, with reach, adoption, and implementation superior to the lay advisor model. This formative initial evaluation provides evidence for feasibility and acceptance. Further research should examine the efficacy and potential for maintenance of this intervention.
1University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Laura C
LC
Hanson
Tonya D
TD
Armstrong
Melissa A
MA
Green
Michelle
M
Hayes
Stacie
S
Peacock
Sharon
S
Elliot-Bynum
Moses V
MV
Goldmon
Giselle
G
Corbie-Smith
Jo Anne
JA
Earp
D000328:Adult; D001741:Black or African American / Q000523:psychology*; D000368:Aged; D003150:Community Health Workers / Q000458:organization & administration; D055812:Community-Based Participatory Research; D005260:Female; D017051:Hospice Care / Q000458:organization & administration; D006801:Humans; D008297:Male; D008875:Middle Aged; D060787:Neoplasm Grading; D009369:Neoplasms / Q000523:psychology*; D010166:Palliative Care / Q000458:organization & administration; D010379:Peer Group; D015397:Program Evaluation; D012944:Social Support; D014838:Volunteers / Q000458:organization & administration*