If you can't eat what you like, like what you can: how children with coeliac disease and their families construct dietary restrictions as a matter of choice.
Although it is recognised that a gluten-free diet has many social implications for coeliac disease patients, not much is known about how such patients actually manage these implications in their everyday interactions. This article examines how dietary restrictions are treated by patients and their families. Data from recorded mealtime conversations of seven Dutch families with children suffering from coeliac disease were analysed using discursive psychology. We found two main discursive strategies by which patients and their families manage the diet during mealtime interactions. A reference to pleasure is used to manage the tension between the child's agency and parental responsibility in the face of health requirements and, by softening the denial of food, the diet is normalised and treated as a shared family practice. The analysis shows that the gluten-free diet is demedicalised and treated as a matter of choice rather than prescription. We conclude with the practical implications of these findings.
Department of General Practice, Erasmus MC, Rotterdam, The Netherlands. marioveen@gmail.com
Mario
M
Veen
Hedwig
H
te Molder
Bart
B
Gremmen
Cees
C
van Woerkum
D000328:Adult; D002446:Celiac Disease / Q000178:diet therapy*; D002648:Child; D055050:Diet, Gluten-Free; D005192:Family Health; D005518:Food Preferences; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D062407:Meals / Q000523:psychology; D009426:Netherlands; D010287:Parent-Child Relations; D010349:Patient Compliance / Q000523:psychology*; D011593:Psychology, Social / Q000379:methods*