Managing in the trenches of consumer care: the challenges of understanding and initiating the advance care planning process.
To better understand how community-based long-term care providers define advance care planning and their role in the process, we conducted 8 focus groups with 62 care managers (social workers and registered nurses) providing care for Ohio's Medicaid waiver program. Care managers shared that most consumers had little understanding of advance care planning. The care managers defined it broadly, including legal documentation, social aspects, medical considerations, ongoing communication, and consumer education. Care managers saw their roles as information providers, healthcare team members, and educators/coaches. Better education, resources, and coordination are needed to ensure that consumer preferences are realized.
Department of Family and Community Medicine, Northeast Ohio Medical University, Rootstown, OH 44272, USA. kbaughma@neomed.edu
Kristin R
KR
Baughman
Julie
J
Aultman
Susan
S
Hazelett
Barbara
B
Palmisano
Anne
A
O'Neill
Ruth
R
Ludwick
Margaret
M
Sanders
D032722:Advance Care Planning / Q000458:organization & administration*; D001291:Attitude of Health Personnel; D003657:Decision Making; D017144:Focus Groups; D006282:Health Personnel / Q000523:psychology / Q000592:standards; D006299:Health Services for the Aged; D006801:Humans; D007398:Interpersonal Relations; D008134:Long-Term Care / Q000379:methods / Q000458:organization & administration / Q000523:psychology; D020380:Needs Assessment; D009820:Ohio; D010346:Patient Care Management / Q000379:methods / Q000458:organization & administration; D010353:Patient Education as Topic; D036301:Qualitative Research; D012947:Social Work / Q000592:standards*; D013727:Terminal Care / Q000458:organization & administration / Q000523:psychology