title: A virtual community: concerns of patients with pulmonary hypertension.
abstract: Pulmonary Hypertension (PH) is a complex disorder characterized by elevated pressures in the pulmonary artery that cause right heart failure and eventually leads to death. Treatment regimens can be complex and mortality is high. The purpose of this study was to determine how people with PH are using an online Discussion Board. Qualitative descriptive methodology was used to analyze a convenience sample of self-identified patients with PH. Internet posts to an online Discussion Board from January 1, 2010 to December 31, 2010 were analyzed for common themes. Five hundred forty-nine individuals with PH posted to the Discussion Board. Four themes emerged: Uncertainty and Concern, Guidance and Validation, Support, and Refocusing Life. People with PH are using the Internet to answer questions about PH and seeking support. Future research needs to be conducted to further explore the needs and concerns of people with PH to provide tailored interventions.
authors.affiliation: University of Pennsylvania School of Nursing, Philadelphia, PA 19104-4217, USA. matura@nursing.upenn.edu
authors.forename: Lea Ann
authors.initials: LA
authors.lastname: Matura
authors.forename: Annette
authors.initials: A
authors.lastname: McDonough
authors.forename: Lianne M
authors.initials: LM
authors.lastname: Aglietti
authors.forename: Jessica L
authors.initials: JL
authors.lastname: Herzog
authors.forename: Kelly A
authors.initials: KA
authors.lastname: Gallant
mesh_terms: D000328:Adult; D000368:Aged; D001294:Attitude to Health; D005260:Female; D006801:Humans; D006976:Hypertension, Pulmonary / Q000523:psychology / Q000628:therapy*; D057226:Information Seeking Behavior; D008297:Male; D008875:Middle Aged; D015404:Nursing Methodology Research; D009862:Online Systems / Q000706:statistics & numerical data*; D036301:Qualitative Research; D012657:Self-Help Groups / Q000706:statistics & numerical data*; D012944:Social Support; D014584:User-Computer Interface; D055815:Young Adult