title: Navigating risks and professional roles: research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities.
abstract: We examine ethical issues that emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17-26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and disclosure, (4) balancing beneficence with self-determination, and (5) role conflict for researcher-practitioners who participate in CBPR projects. Incorporating critical disability perspectives and a heightened awareness of professional role conflict into CBPR practices has the potential to foster development of more inclusive and accessible sexual health initiatives and research environments.
authors.affiliation: Memorial University of Newfoundland.
authors.forename: Zack
authors.initials: Z
authors.lastname: Marshall
mesh_terms: D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D001727:Bisexuality; D003068:Coercion; D055812:Community-Based Participatory Research / Q000941:ethics; D003219:Confidentiality / Q000941:ethics; D006233:Persons with Disabilities; D030881:Disclosure / Q000941:ethics; D032984:Ethics, Research; D005260:Female; D006282:Health Personnel; D006716:Homosexuality; D006801:Humans; D007258:Informed Consent / Q000941:ethics; D008607:Intellectual Disability; D008297:Male; D009864:Ontario; D026684:Personal Autonomy; D024382:Professional Role; D012108:Research Personnel; D012306:Risk; D012725:Sexual Behavior; D063106:Transgender Persons; D055815:Young Adult