title: Identifying priorities for patient-centered outcomes research for serious mental illness.
abstract: OBJECTIVE
  The purpose of this project was to engage a diverse group of stakeholders (N=38) to help establish priorities to guide patient-centered outcomes research (PCOR) in serious mental illness.
  
  
  METHODS
  Three meetings, two Web-based and one on site, were held to generate and prioritize an initial list of topics. Topics were then sorted and organized into common themes.
  
  
  RESULTS
  About 140 topics were identified and sorted into 21 main themes, ranked by priority. Three of the top four themes focused on how research was conducted, particularly the need to develop consensus measurement and outcomes definitions; improving infrastructure for research, longitudinal studies, and new data sets and investigators; and developing PCOR methodology. Stakeholders also identified a need to focus on service delivery, treatment settings, and structure of the delivery of care.
  
  
  CONCLUSIONS
  Engagement by a broad group of stakeholders in a transparent process resulted in the identification of priority areas for PCOR. Stakeholders clearly indicated a need to fundamentally change how research on serious mental illness is conducted and a critical need for the development of methodology and infrastructure. Most current PCOR has been focused on relatively short-term outcomes, but real world, long-term studies providing guidance for treatment over the lifetime of a serious mental illness are needed.
authors.affiliation: Department of Medicine, University of North Carolina atChapel Hill, 5039 Old Clinic Building, CB 7110, Chapel Hill, NC 27599, USA. daniel_jonas@med.unc.edu
authors.forename: Daniel E
authors.initials: DE
authors.lastname: Jonas
authors.forename: Alyssa J
authors.initials: AJ
authors.lastname: Mansfield
authors.forename: Pam
authors.initials: P
authors.lastname: Curtis
authors.forename: John H
authors.initials: JH
authors.lastname: Gilmore
authors.forename: Lea C
authors.initials: LC
authors.lastname: Watson
authors.forename: Shannon
authors.initials: S
authors.lastname: Brode
authors.forename: Sonia
authors.initials: S
authors.lastname: Tyutyulkova
authors.forename: Karen
authors.initials: K
authors.lastname: Crotty
authors.forename: Meera
authors.initials: M
authors.lastname: Viswanathan
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Tant
authors.forename: Cathy
authors.initials: C
authors.lastname: Gordon
authors.forename: Samantha
authors.initials: S
authors.lastname: Slaughter-Mason
authors.forename: Brian
authors.initials: B
authors.lastname: Shetiman
mesh_terms: D032921:Consensus; D055317:Evidence-Based Practice; D006126:Group Processes; D006801:Humans; D001523:Mental Disorders; D017063:Outcome Assessment, Health Care; D018802:Patient-Centered Care; D012106:Research; D012720:Severity of Illness Index; D014481:United States; D049269:Videoconferencing