title: The pediatric sibling donor experience in hematopoietic stem cell transplant: an integrative review of the literature.
abstract: This integrative review explored and described published research findings focused on the experiences of pediatric sibling hematopoietic stem cell donors. After a comprehensive search, nine studies met the inclusion criteria of the study. There was no evidence of coordinated programs of research to effectively advance and build knowledge about the experiences of pediatric sibling donors. The limited descriptive evidence revealed that differences in the experiences of sibling donors vary by age and developmental stages; however, the use of small or repeated samples and qualitative methods limited the generalizability of study findings. Collaborative research using prospective, longitudinal designs will build and advance the evidence base for the design of developmentally appropriate interventions for pediatric sibling donors and their families.
authors.affiliation: North Carolina Children's Hospital, Pediatric Rheumatology, The University of North Carolina at Chapel Hill, School of Medicine, Chapel Hill, NC, USA.
authors.forename: Kathryn
authors.initials: K
authors.lastname: Bauk
authors.forename: Jennifer P
authors.initials: JP
authors.lastname: D'Auria
authors.forename: Amber
authors.initials: A
authors.lastname: Andrews
authors.forename: Cammie M
authors.initials: CM
authors.lastname: Presler
mesh_terms: D003657:Decision Making; D004644:Emotions; D006167:Guilt; D018380:Hematopoietic Stem Cell Transplantation / Q000523:psychology; D006801:Humans; D035781:Siblings / Q000523:psychology; D014019:Tissue Donors