title: Individual breast cancer risk assessment in underserved populations: integrating empirical bioethics and health disparities research.
abstract: Research suggests that individual breast cancer risk assessment may improve adherence to recommended screening and prevention guidelines, thereby decreasing morbidity and mortality. Further research on the use of risk assessment models in underserved minority populations is critical to informing national public health efforts to eliminate breast cancer disparities. However, implementing individual breast cancer risk assessment in underserved patient populations raises particular ethical issues that require further examination. After reviewing these issues, we will discuss how empirical bioethics research can be integrated with health disparities research to inform the translation of research findings. Our in-progress National Cancer Institute (NCI) funded study, How Do Underserved Minority Women Think About Breast Cancer?, conducted in the context of a larger study on individual breast cancer risk assessment, is presented as a model.
authors.affiliation: Neiswanger Institute for Bioethics at Loyola University Chicago, Stritch School of Medicine, Chicago, IL, USA. emanderson@lumc.edu
authors.forename: Emily E
authors.initials: EE
authors.lastname: Anderson
authors.forename: Kent
authors.initials: K
authors.lastname: Hoskins
mesh_terms: D000328:Adult; D000368:Aged; D001294:Attitude to Health / Q000208:ethnology*; D001675:Bioethics; D001943:Breast Neoplasms / Q000208:ethnology*; D055088:Early Detection of Cancer; D036262:Empirical Research; D005260:Female; D006302:Health Services Research / Q000458:organization & administration*; D054625:Healthcare Disparities / Q000208:ethnology; D006801:Humans; D008875:Middle Aged; D008913:Minority Groups / Q000523:psychology*; D018570:Risk Assessment / Q000941:ethics; D014481:United States; D035862:Vulnerable Populations / Q000208:ethnology* / Q000523:psychology