title: "If I had only known"--on choice and uncertainty in the ICU.
abstract: After receiving a ventricular assist device, a patient experiences months of advances and setbacks in the ICU. She's one of a new subcategory of ICU patients: the chronically critically ill. Their stories reveal shortcomings of common perspectives on medical decision making.
authors.affiliation: Department of Anesthesiology and Critical Care, Perelman School of Medicine at the University of Pennsylvania, USA.
authors.forename: Jesse M
authors.initials: JM
authors.lastname: Raiten
authors.forename: Mark D
authors.initials: MD
authors.lastname: Neuman
mesh_terms: D002755:Choice Behavior; D002908:Chronic Disease / Q000628:therapy*; D003422:Critical Care / Q000523:psychology; D003657:Decision Making; D005190:Family; D005260:Female; D013502:General Surgery; D006333:Heart Failure / Q000628:therapy; D006353:Heart-Assist Devices; D006801:Humans; D007362:Intensive Care Units; D010361:Patients / Q000523:psychology; D035501:Uncertainty