title: Research results: preserving newborn blood samples.
abstract: Retention and use, without explicit parental permission, of residual dried blood samples from newborn screening has generated public controversy over concerns about violations of                     family privacy rights and loss of parental autonomy. The public debate about this issue has included little discussion about the destruction of a potentially valuable public                     resource that can be used for research that may yield improvements in public health. The research community must advocate for policies and infrastructure that promote retention of                     residual dried blood samples and their use in biomedical research.
authors.affiliation: Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD 21205, USA. mlewis45@jhu.edu
authors.forename: Michelle Huckaby
authors.initials: MH
authors.lastname: Lewis
authors.forename: Michael E
authors.initials: ME
authors.lastname: Scheurer
authors.forename: Robert C
authors.initials: RC
authors.lastname: Green
authors.forename: Amy L
authors.initials: AL
authors.lastname: McGuire
mesh_terms: D035843:Biomedical Research / Q000331:legislation & jurisprudence; D001793:Blood Preservation; D001800:Blood Specimen Collection; D006801:Humans; D007231:Infant, Newborn; D007878:Legislation as Topic; D015997:Neonatal Screening / Q000331:legislation & jurisprudence; D011634:Public Health / Q000331:legislation & jurisprudence