title: Access to wound dressings for patients living with epidermolysis bullosa - an Australian perspective.
abstract: Epidermolysis Bullosa (EB) is a rare genetic skin disorder characterised by fragility and blistering of skin and mucous membranes. Skin can blister and shear away from minimal friction, trauma and every day activities. The disease causes a wide range of complications but wound care is the major challenge to severe EB, and good wound care is an essential part of wound management. The goal of wound care was to choose a product that protects the fragile skin, limits friction, decreases pain and promotes healing. However, access to wound dressings for those people living with EB is challenging. This article discusses the availability of EB dressings in a number of countries around the world and also describes an innovative National Epidermolysis Bullosa Dressings Scheme (NEBDS) in Australia, which aims to improve the quality of life of people with EB, by reducing the financial burden associated with the provision of dressings accordingly.
authors.affiliation: Professional Nursing Practice, Dip Higher Ed in Nursing (Adult/Child), Clinical Nurse Consultant, National Epidermolysis Bullosa Dressings Scheme, Brightsky Australia, Newington, NSW, Australia.
authors.forename: Louise J
authors.initials: LJ
authors.lastname: Stevens
mesh_terms: D001315:Australia; D001458:Bandages / Q000191:economics*; D004820:Epidermolysis Bullosa / Q000191:economics* / Q000628:therapy*; D035082:Federal Government; D006078:Government Programs / Q000191:economics*; D006297:Health Services Accessibility / Q000191:economics*; D006801:Humans; D014945:Wound Healing