title: Self-directed support: impact of hiring practices on adults with intellectual and developmental disabilities and families.
abstract: The study examined the differential experiences and outcomes for people with intellectual and developmental disabilities and their families receiving self-directed services based on the type of personal support worker hired (parents, siblings, other relatives, friends, and agency staff). The sample consisted of 372 participants in a self-directed waiver program who used personal assistance services. Results indicated that the caregiver's satisfaction with the personal support worker, self-efficacy in managing personal support workers, and mental health varied significantly based on type of personal support worker hired. Also, the physical health and daily choice making of the adults with disabilities differed significantly by type of personal support worker hired.
authors.affiliation: Department of Disability and Human Development, University of Illinois, Chicago, IL, USA. theller@uic.edu
authors.forename: Tamar
authors.initials: T
authors.lastname: Heller
authors.forename: Catherine K
authors.initials: CK
authors.lastname: Arnold
authors.forename: Lieke
authors.initials: L
authors.lastname: van Heumen
authors.forename: Elizabeth L
authors.initials: EL
authors.lastname: McBride
authors.forename: Alan
authors.initials: A
authors.lastname: Factor
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers; D017281:Cost of Illness; D002658:Developmental Disabilities / Q000453:epidemiology / Q000523:psychology*; D016832:Employment, Supported / Q000523:psychology*; D005190:Family; D005260:Female; D033062:Friends; D006801:Humans; D007182:Income; D008607:Intellectual Disability / Q000453:epidemiology / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D010290:Parents; D010560:Personnel Selection; D035781:Siblings; D012944:Social Support; D012959:Socioeconomic Factors; D016896:Treatment Outcome