title: Written and spoken narratives about health and cancer decision making: a novel application of photovoice.
abstract: Photovoice is a community-based participatory research method that researchers have used to identify and address individual and community health needs. We developed an abbreviated photovoice project to serve as a supplement to a National Cancer Institute-funded pilot study focusing on prostate cancer (PrCA) that was set in a faith-based African American community in South Carolina. We used photovoice for three reasons: (a) to enhance communication between study participants and researchers, (b) to empower African American men and women to examine their health decisions through photographs, and (c) to better understand how participants from this community make health-related decisions. The 15 individuals participating in the photovoice project were asked to photograph aspects of their community that informed their health-related decisions. Participants provided written and oral narratives to describe the images in a small sample of photographs. Four primary themes emerged in participants' photographs and narratives: (a) food choices, (b) physical activity practices, (c) community environment and access to care, and (d) influences of spirituality and nature on health. Although written and audio-recorded narratives were similar in content, the audio-recorded responses were more descriptive and emotional. Results suggest that incorporating audio-recorded narratives in community photovoice presentations may have a greater impact than written narratives on health promotion, decision making, and policy makers because of an increased level of detail and personalization. In conclusion, photovoice strengthened the parent study and empowered participants by making them more aware of factors influencing their health decisions.
authors.affiliation: 1University of South Carolina, Columbia, SC, USA.
authors.forename: Tracey L
authors.initials: TL
authors.lastname: Thomas
authors.forename: Otis L
authors.initials: OL
authors.lastname: Owens
authors.forename: Daniela B
authors.initials: DB
authors.lastname: Friedman
authors.forename: Myriam E
authors.initials: ME
authors.lastname: Torres
authors.forename: James R
authors.initials: JR
authors.lastname: Hébert
mesh_terms: D000328:Adult; D001741:Black or African American / Q000523:psychology*; D055812:Community-Based Participatory Research; D003657:Decision Making; D004032:Diet; D015444:Exercise; D015438:Health Behavior / Q000208:ethnology*; D006293:Health Promotion; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D008875:Middle Aged; D054547:National Cancer Institute (U.S.); D010781:Photography; D010865:Pilot Projects; D011471:Prostatic Neoplasms / Q000208:ethnology* / Q000523:psychology*; D012111:Residence Characteristics; D013022:South Carolina / Q000453:epidemiology; D029181:Spirituality; D014481:United States