title: Birt-Hogg-Dubé: beyond the clinical manifestations.
abstract: Clinicians and scientists understand the medical implications of BHD; however, what may not be apparent to clinicians and scientists are the psycho-social aspects of living with BHD. Although medical reality differs among people who have Birt-Hogg-Dubé, they often share multiple non-medical ramifications ranging from economic and physical insecurity to interruptions in familial communication patterns and relationships. Physicians cognizant of the psycho-social aspects of having BHD are in a position to offer enhanced and meaningful non-medical interventions and care to their patient with BHD.
authors.affiliation: National Institutes of Health, National Cancer Institute, Urologic Oncology Branch, Bethesda, MD, USA. middeltl@mail.nih.gov
authors.forename: Lindsay A
authors.initials: LA
authors.lastname: Middelton
mesh_terms: D058249:Birt-Hogg-Dube Syndrome / Q000150:complications / Q000523:psychology*; D006801:Humans; D010361:Patients / Q000523:psychology*; D010820:Physicians; D011788:Quality of Life / Q000523:psychology*