title: Implementing a breast cancer registry and treatment plan/summary program in clinical practice: a pilot program.
abstract: BACKGROUND
  There is a need to better measure and improve the quality of oncology care and improve communication with patients and other providers. The American Society of Clinical Oncology Breast Cancer Registry (BCR) pilot evaluated the feasibility and acceptability of prospective data collection for quality assessment in daily clinical practice. Data were used to create and share treatment plans/summaries (TPSs) at the point of care.
  
  
  METHODS
  Using a web-based tool, 20 diverse practices entered clinical data on each new early-stage breast cancer patient into the BCR for 14 months (September 2009 through November 2010). The tool created individual TPSs that were shared with patients. Practices received practice-specific and aggregate BCR quality measures data, participated in a survey, and received a participation stipend.
  
  
  RESULTS
  Twenty practices entered 2014 patients into the BCR, collecting demographic, clinical, and treatment information. Fifty-two percent of practice participants replied to an end-of-pilot survey: 73% were satisfied with the BCR and web-based tool, 31% expressed concern regarding time and effort, and 52% reported additional practice costs during the pilot. Among those who created or shared the TPSs, 90% thought the documents improved oncologist-patient communication, and 95% favored using BCR data for practice quality improvement.
  
  
  CONCLUSIONS
  Prospective data collection for quality assessment is feasible and allows sharing of TPSs with patients at the point of care. Future efforts should focus on decreasing implementation burden to practices, broadening participation, examining costs, and, most importantly, assessing its effects on patient outcomes.
authors.affiliation: Dana-Farber Cancer Institute, Boston, Massachusetts, USA. ahpartridge@partners.org
authors.forename: Ann H
authors.initials: AH
authors.lastname: Partridge
authors.forename: Virginia W
authors.initials: VW
authors.lastname: Norris
authors.forename: Victoria S
authors.initials: VS
authors.lastname: Blinder
authors.forename: Bruce A
authors.initials: BA
authors.lastname: Cutter
authors.forename: Michael T
authors.initials: MT
authors.lastname: Halpern
authors.forename: Jennifer
authors.initials: J
authors.lastname: Malin
authors.forename: Michael N
authors.initials: MN
authors.lastname: Neuss
authors.forename: Antonio C
authors.initials: AC
authors.lastname: Wolff
mesh_terms: D001943:Breast Neoplasms / Q000628:therapy*; D003142:Communication; D003625:Data Collection; D005260:Female; D006801:Humans; D010347:Patient Care Planning; D010865:Pilot Projects; D016730:Program Development; D011785:Quality Assurance, Health Care; D012042:Registries