title: Improving the delivery of patient education about kidney transplant in a transplant center.
abstract: BACKGROUND
  Kidney transplant is usually the best treatment option for patients with end-stage renal disease; however, transplant rates remain low in the United States. More research is needed about patients' educational needs to ensure that patients are making informed decisions about their treatment options.
  
  
  OBJECTIVE
  To examine patients' perceptions of the delivery and format of a kidney transplant education program in a clinical setting, specifically to (1) identify useful aspects of the transplant education process, (2) discuss aspects of the program delivery that need improvement, and (3) provide recommendations to enhance the education delivery and format surrounding kidney transplant.
  
  
  METHODS
  A descriptive study using focus group meetings with patients at different stages of the transplantation process (in evaluation, listed, and transplant recipients). Data were analyzed by using thematic content analysis.
  
  
  RESULTS
  Use of printed materials and handouts, group education format, and patient advocate component as well as bringing a companion were all effective aspects of the education program. Concerns about the education program stemmed from its complexity, technicality, and length. Participants recommended that patients be sent a formal invitation letter, with a detailed agenda and a video on kidney transplant, and that patients be encouraged to bring a companion to the education program. Responses specific to the stage of the transplant process are presented.
  
  
  CONCLUSIONS
  Concentrated attention to the delivery and content of the transplant education programs may significantly assist with patients' outcomes throughout the transplant process.
authors.affiliation: University of Medicine and Dentistry of New Jersey, Newark, NJ, USA.
authors.forename: Rula
authors.initials: R
authors.lastname: Wilson
authors.forename: Diane R
authors.initials: DR
authors.lastname: Brown
authors.forename: Makini A S
authors.initials: MA
authors.lastname: Boothe
authors.forename: Francis L
authors.initials: FL
authors.lastname: Weng
mesh_terms: D000328:Adult; D005260:Female; D017144:Focus Groups; D006801:Humans; D007676:Kidney Failure, Chronic / Q000601:surgery; D016030:Kidney Transplantation; D008297:Male; D008875:Middle Aged; D010353:Patient Education as Topic; D014481:United States