title: Availability of stage at diagnosis, cancer treatment delay and compliance with cancer guidelines as cancer registry indicators for cancer care in Europe: Results of EUROCHIP-3 survey.
abstract: EUROCHIP (European Cancer Health Indicators Project) focuses on understanding inequalities in the cancer burden, care and survival by the indicators "stage at diagnosis," "cancer treatment delay" and "compliance with cancer guidelines" as the most important indicators. Our study aims at providing insight in whether cancer registries collect well-defined variables to determine these indicators in a comparative way. Eighty-six general European population-based cancer registries (PBCR) from 32 countries responded to the questionnaire, which was developed by EUROCHIP in collaboration with ENCR (European Network of Cancer Registries) and EUROCOURSE. Only 15% of all the PBCR in EU had all three indicators available. The indicator "stage at diagnosis" was gathered for at least one cancer site by 81% (using TNM in 39%). Variables for the indicator "cancer treatment delay" were collected by 37%. Availability of type of treatment (30%), surgery date (36%), starting date of radiotherapy (26%) and starting date of chemotherapy (23%) resulted in 15% of the PBCRs to be able to gather the indicator "compliance to guidelines". Lack of data source access and qualified staff were the major reasons for not collecting all the variables. In conclusion, based on self-reporting, a few of the participating PBCRs had data available which could be used for clinical audits, evaluation of cancer care projects, survival and for monitoring national cancer control strategies. Extra efforts should be made to improve this very efficient tool to compare cancer burden and the effects of the national cancer plans over Europe and to learn from each other.
authors.affiliation: Department of Research, Comprehensive Cancer Centre the Netherlands, Utrecht, The Netherlands . s.siesling@iknl.nl
authors.forename: Sabine
authors.initials: S
authors.lastname: Siesling
authors.forename: Annemiek
authors.initials: A
authors.lastname: Kwast
authors.forename: Anna
authors.initials: A
authors.lastname: Gavin
authors.forename: Paolo
authors.initials: P
authors.lastname: Baili
authors.forename: Renee
authors.initials: R
authors.lastname: Otter
mesh_terms: D003695:Delivery of Health Care; D005060:Europe / Q000453:epidemiology; D019983:Guideline Adherence; D019538:Health Care Surveys; D006801:Humans; D009367:Neoplasm Staging; D009369:Neoplasms / Q000453:epidemiology*; D012042:Registries