title: Evaluation of an ongoing psychoeducational inflammatory bowel disease support group in an adult outpatient setting.
abstract: Previous studies assessing efficacy of support groups for patients with inflammatory bowel disease showed mixed results in terms of attendance and overall effectiveness. In this study, researchers evaluated the use of an ongoing open psychoeducational support group for adult patients with inflammatory bowel disease in an outpatient tertiary setting. The sample consisted of 18 adults who have attended more than 2 meetings of the support group. Topics addressed in the support group include complementary medicine, diet and nutrition, the psychological impact of inflammatory bowel disease, medication and side effects, and insurance/disability. Participants were asked to complete the Client Satisfaction Questionnaire, Multidimensional Support Scale, 11 general demographic questions, and a brief open-ended qualitative questionnaire developed by the researchers. Results demonstrated that participants reported very high satisfaction with the support group and rated the adequacy of peer support from others with inflammatory bowel disease higher than support from family/friends and professionals. A majority of group members reported joining the group for mutual support and education; this expectation was met through the psychoeducational structure of the group. This study demonstrates the potential for success of an ongoing psychoeducational inflammatory bowel disease support group for adult patients and their caregivers.
authors.affiliation: University of California, Santa Cruz, CA, USA. mcmastek@uci.edu
authors.forename: Kristin
authors.initials: K
authors.lastname: McMaster
authors.forename: Laika
authors.initials: L
authors.lastname: Aguinaldo
authors.forename: Nimisha K
authors.initials: NK
authors.lastname: Parekh
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000368:Aged; D005260:Female; D006801:Humans; D015212:Inflammatory Bowel Diseases / Q000175:diagnosis / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D010045:Outpatients; D010353:Patient Education as Topic / Q000458:organization & administration*; D017060:Patient Satisfaction / Q000706:statistics & numerical data; D016730:Program Development; D015397:Program Evaluation; D011584:Psychology; D011788:Quality of Life; D012657:Self-Help Groups / Q000458:organization & administration*; D011795:Surveys and Questionnaires; D055815:Young Adult