title: Young people's participation in the development of a self-care intervention--a multi-site formative research study.
abstract: The poor outcomes of young people with chronic health conditions indicate that current services and self-care programmes are not meeting the needs of young people. How young people self-manage their condition impacts on long-term health outcomes, but there is little published evidence that details the development of self-care programmes and their most effective components. This article reports on an innovative formative research study, the purpose of which was to develop a self-care intervention prototype. Participants were 87 young people, aged 12-17, and seven young adult facilitators, aged 18-25, with type 1 diabetes or asthma. Each contributed to talking groups exploring themes that young people wanted to be addressed within a self-care programme. Instead of being focused on 'illness', young people's main concerns were directed toward 'life as an adolescent', while at the same time building sustainable daily routines of self-care. Overall, this article illustrates the process of initiating and implementing a developmental approach focused on young people, while also demonstrating the tailored self-care intervention that the process developed. This approach can be used to involve young people in the design and development of other conditions that rely on self-care interventions.
authors.affiliation: 'Getting Sorted', Carnegie Faculty, Leeds Metropolitan University, Leeds LS6 3QQ, UK. N.Kime@leedsmet.ac.uk
authors.forename: Nicola
authors.initials: N
authors.lastname: Kime
authors.forename: Jim
authors.initials: J
authors.lastname: McKenna
authors.forename: Liz
authors.initials: L
authors.lastname: Webster
mesh_terms: D000293:Adolescent; D000328:Adult; D000367:Age Factors; D001249:Asthma / Q000523:psychology / Q000628:therapy; D002648:Child; D003922:Diabetes Mellitus, Type 1 / Q000523:psychology / Q000628:therapy; D005260:Female; D017144:Focus Groups; D006801:Humans; D008297:Male; D010353:Patient Education as Topic / Q000379:methods*; D016730:Program Development; D012648:Self Care / Q000379:methods*; D055815:Young Adult