title: The PDQ-Carer: development and validation of a summary index score.
abstract: BACKGROUND
  The PDQ-Carer is a 29 item measure of health related quality of life for use with carers of people with Parkinson's disease. The original development of the instrument identified four domains. This study examined the possibility that the four domains could reasonably be summed to provide a single summary index score.
  
  
  METHODS
  The PDQ-Carer was administered in a postal survey of patients and carers registered with local branches of Parkinson's UK. Data from the four domains of the PDQ-Carer was subjected to higher order factor analysis. Reliability and validity of the summary index were assessed.
  
  
  RESULTS
  A total of 236 carer questionnaires were returned, a response rate of 61%. The mean age of the sample was 68.2 years (SD 9.49; range 25-89 years); 63.5% females, 21.3% males. Higher order principle components factor analysis produced one factor, accounting for 85.5% of the variance. The newly derived single index was found to be both internally reliable (alpha = 0.94) and valid through correlations with the eight domains of the SF-36 (all p < 0.001).
  
  
  CONCLUSIONS
  The analyses undertaken here indicate that data from the PDQ-Carer can be presented in summary form. The index will provide an overall indication of the impact of caring. Furthermore, the single index reduces the number of statistical comparisons, and hence the role of chance, when exploring data from the PDQ-Carer.
authors.affiliation: University of Oxford, Department of Public Health, Old Road Campus, Headington, Oxford OX3 7LF, United Kingdom. david.morley@dph.ox.ac.uk
authors.forename: D
authors.initials: D
authors.lastname: Morley
authors.forename: S
authors.initials: S
authors.lastname: Dummett
authors.forename: L
authors.initials: L
authors.lastname: Kelly
authors.forename: M
authors.initials: M
authors.lastname: Peters
authors.forename: J
authors.initials: J
authors.lastname: Dawson
authors.forename: R
authors.initials: R
authors.lastname: Fitzpatrick
authors.forename: C
authors.initials: C
authors.lastname: Jenkinson
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010300:Parkinson Disease; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires