title: [Discussion paper participation research].
abstract: This contribution introduces the "Diskussionspapier Teilhabeforschung" (discussion paper participation research) of the German Association for Rehabilitation (DVfR) and German Society for Rehabilitation Science (DGRW). The aim of this paper is to more clearly define current scientific research activity on the subject of participation and the significance of interdisciplinary participation research. The authors emphasise the desirability of a stronger scientific basis for instruments designed to improve the participation of disabled individuals. The paper is meant to be understood as an initial basis for the discussion about participation research development, and the authors are open to suggestions and elaboration.Participation research is understood in this discussion paper as an interdisciplinary research field with 7 goals and characteristics: 1. focussing on participation and self-determination; 2. contextual approach (taking environmental and personal factors into consideration that affect participation); 3. the participation of disabled persons in participation research; 4. interdisciplinary cooperation; 5. involving organisations and institutions whose approaches to participation research overlap; 6. referring to social and healthcare policies; 7. national and international orientations.The authors discuss the rationale behind increasing the support for participation research and theoretical models thereof. Fundamental concepts with high relevance to participation research include the biopsychosocial model of the International Classification of Functionality, Disability and Health (ICF), the inclusion concept, empowerment concept, and capabilities concept. The authors conclude their paper with recommendations for strengthening the research funding for participation research, and specify concrete steps toward greater participation research.
authors.affiliation: Abteilung Qualitätsmanagement und Sozialmedizin, Universitätsklinikum Freiburg, Engelbergerstrasse 21 79106, Freiburo. erik.farin@uniklinik-freiburg.de
authors.forename: Erik
authors.initials: E
authors.lastname: Farin
mesh_terms: D035843:Biomedical Research / Q000379:methods / Q000458:organization & administration*; D002986:Clinical Trials as Topic / Q000379:methods; D003657:Decision Making; D005858:Germany; D058025:Interdisciplinary Studies / Q000639:trends*; D010358:Patient Participation / Q000379:methods*; D012046:Rehabilitation / Q000379:methods / Q000458:organization & administration*; D012107:Research Design