title: Top 10 research priorities relating to life after stroke--consensus from stroke survivors, caregivers, and health professionals.
abstract: BACKGROUND
  Research resources should address the issues that are most important to people affected by a particular healthcare problem. Systematic identification of stroke survivor, caregiver, and health professional priorities would ensure that scarce research resources are directed to areas that matter most to people affected by stroke.
  
  
  OBJECTIVE
  We aimed to identify the top 10 research priorities relating to life after stroke, as agreed by stroke survivors, caregivers, and health professionals.
  
  
  METHODS
  Key stages involved establishing a priority setting partnership; gathering treatment uncertainties from stroke survivors, caregivers, and health professionals relating to life after stroke (using surveys administered by e-mail, post, and at face-to-face meetings); checking submitted treatment uncertainties to ensure that they were clear, unanswered questions about the effects of a treatment/intervention; interim prioritization to identify the highest priority questions (objectively identified from ranking of personal priorities by original survey respondents); and a final consensus meeting to reach agreement on the top 10 research priorities.
  
  
  RESULTS
  We gathered 548 research questions that were refined into 226 unique unanswered treatment uncertainties. Ninety-seven respondents completed the interim prioritization process, objectively identifying 24 shared priority treatment uncertainties. A representative group of 28 stroke survivors, caregivers, and health professionals attended a final meeting, reaching consensus on the top 10 research priorities relating to life after stroke. Six of the agreed top 10 research priorities related to specific stroke-related impairments, including cognition, aphasia, vision, upper limb, mobility, and fatigue. Three related to more social aspects of 'living with stroke' including coming to terms with long-term consequences, confidence, and helping stroke survivors and their families 'cope' with speech problems. One related to the secondary consequences of stroke and subsequent stroke prevention.
  
  
  CONCLUSIONS
  The top 10 research priorities relating to life after stroke have been identified using a rigorous and person-centered approach. These should be used to inform the prioritization and funding of future research relating to life after stroke.
authors.affiliation: Nursing Midwifery and Allied Health Professions (NMAHP) Research Unit, Glasgow Caledonian University, Glasgow, UK.
authors.forename: Alex
authors.initials: A
authors.lastname: Pollock
authors.forename: Bridget
authors.initials: B
authors.lastname: St George
authors.forename: Mark
authors.initials: M
authors.lastname: Fenton
authors.forename: Lester
authors.initials: L
authors.lastname: Firkins
mesh_terms: D035843:Biomedical Research; D017028:Caregivers / Q000523:psychology*; D032921:Consensus; D005260:Female; D006282:Health Personnel / Q000523:psychology*; D006801:Humans; D020407:Internet; D008297:Male; D011177:Postal Service / Q000706:statistics & numerical data; D012106:Research; D020521:Stroke / Q000150:complications / Q000401:mortality / Q000523:psychology*