title: Developing, testing, and sustaining rehabilitation interventions via participatory action research.
abstract: Few published intervention studies in the rehabilitation literature have included consumers in the research process other than as study participants. This lack of consumer involvement in intervention research may contribute to the challenges encountered developing, translating, disseminating, and sustaining evidence-based rehabilitation interventions in clinical practice. The overall objective of this article is to promote the integration of participatory action research (PAR) into rehabilitation intervention research as a mechanism for addressing these gaps. First, we outline essential components of a PAR model across 5 key phases of intervention research, specifically: agenda setting, methods, implementation, diffusion/dissemination, and sustainability. Second, we describe the use of PAR in rehabilitation intervention research within each of these phases by reviewing relevant literature and by providing an illustrative research example from a randomized controlled trial that integrated PAR throughout the research process. Finally, we conclude with a discussion of 5 specific recommendations for promoting the integration of PAR into rehabilitation intervention research.
authors.affiliation: Department of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, WA 98119, USA. ehde@uw.edu
authors.forename: Dawn M
authors.initials: DM
authors.lastname: Ehde
authors.forename: Stephen T
authors.initials: ST
authors.lastname: Wegener
authors.forename: Rhonda M
authors.initials: RM
authors.lastname: Williams
authors.forename: Patti L
authors.initials: PL
authors.lastname: Ephraim
authors.forename: Jennifer E
authors.initials: JE
authors.lastname: Stevenson
authors.forename: Patricia J
authors.initials: PJ
authors.lastname: Isenberg
authors.forename: Ellen J
authors.initials: EJ
authors.lastname: MacKenzie
mesh_terms: D003256:Community Participation / Q000379:methods*; D006801:Humans; D033181:Information Dissemination; D026761:Physical Therapy Specialty / Q000458:organization & administration*; D016730:Program Development; D015397:Program Evaluation; D012046:Rehabilitation / Q000379:methods; D012107:Research Design; D057170:Translational Research, Biomedical / Q000458:organization & administration*