title: Stories and the longitudinal patient relationship: what can clinical ethics consultants learn from palliative care?
abstract: A case of conflict in pediatric end-of-life decision making is presented to compare the complementary roles of clinical ethics consultants and palliative care specialists. The progression of the case illustrates the differing structures, goals, and methods of the majority of such teams. The strengths of each of consultation are emphasized. Particularly in centers where palliative care services are not available, it can be important for careproviders and clinical ethics consultants to focus on alliance-building and a longitudinal relationship with patients and families.
authors.affiliation: Division of Critical Care and Palliative Care, Children's Hospital of Philadelphia, USA. morrisonw@email.chop.edu
authors.forename: Wynne
authors.initials: W
authors.lastname: Morrison
authors.forename: Sabrina F
authors.initials: SF
authors.lastname: Derrington
mesh_terms: D002755:Choice Behavior / Q000941:ethics; D003657:Decision Making / Q000941:ethics*; D026822:Ethicists / Q000592:standards; D028741:Ethics Committees, Clinical; D033061:Ethics Consultation; D004992:Ethics, Medical; D005220:Fathers; D005581:Foster Home Care; D006801:Humans; D018447:Medical Futility; D009035:Mothers; D033262:Narration; D010166:Palliative Care / Q000941:ethics* / Q000379:methods; D033282:Parental Consent / Q000941:ethics; D010348:Patient Care Team / Q000941:ethics*