title: Evaluation of a nurse-led haemophilia counselling service.
abstract: Genetic counselling and testing for females with a family history of haemophilia has long been advocated. However, there is little research in regard to clients' satisfaction with the existing counselling models in haemophilia, and in particular with nurse-led clinics. The purpose of this study was to evaluate whether clients were satisfied with a nurse-led carrier testing clinic and counselling service. A retrospective quantitative study of clients' satisfaction and perceived knowledge was undertaken using an anonymous questionnaire. A sample of 42 women who had attended the clinic in the last 12 months was identified. The response rate for the study was 71% (n = 30).Two thirds of the respondents were 35 years of age or younger, 93% had a family history of haemophilia and 56% were diagnosed as carriers. Perceived understanding and knowledge increased significantly between the first and second appointments (p < 0.001). Overall, the study identified a high level of client satisfaction with the nurse-led carrier testing clinic and counselling service.
authors.affiliation: National Centre for Hereditary Coagulation Disorders, St James Hospital, Dublin.
authors.forename: Eadaoln
authors.initials: E
authors.lastname: O'Shea
authors.forename: Michael
authors.initials: M
authors.lastname: Coughlan
authors.forename: Helen
authors.initials: H
authors.lastname: Corrigan
authors.forename: Gabrielle
authors.initials: G
authors.lastname: McKee
mesh_terms: D000328:Adult; D000554:Ambulatory Care Facilities / Q000458:organization & administration*; D003376:Counseling / Q000458:organization & administration*; D005260:Female; D005817:Genetic Counseling / Q000458:organization & administration*; D006467:Hemophilia A / Q000235:genetics / Q000451:nursing* / Q000628:therapy; D006801:Humans; D007494:Ireland; D008297:Male; D010353:Patient Education as Topic / Q000458:organization & administration*; D015397:Program Evaluation; D012189:Retrospective Studies