title: The experiences of suffering of palliative care informal caregivers in Malaysia: a thematic analysis.
abstract: A qualitative study was conducted with semi-structured interviews to explore the experiences of suffering in 15 palliative care informal caregivers in University Malaya Medical Centre. The data were thematically analyzed. Seven basic themes were generated (1) empathic suffering, (2) anticipatory grief, (3) obsessive-compulsive suffering, (4) helpless-powerless suffering, (5) obligatory suffering, (6) impedimental suffering, and (7) repercussion suffering. A model of compassion suffering was conceptualized from the analysis. This model may serve as a guide in the assessment and management of suffering in palliative care informal caregivers.
authors: Department of Medicine, Faculty of Medicine, University Malaya Medical Center, Kuala Lumpur, Malaysia. pramudita_1@hotmail.com
authors: Tan Seng
authors: TS
authors: Beng
authors: Ng Chong
authors: NC
authors: Guan
authors: Lim Kheng
authors: LK
authors: Seang
authors: Subramaniam
authors: S
authors: Pathmawathi
authors: Moy Foong
authors: MF
authors: Ming
authors: Lim Ee
authors: LE
authors: Jane
authors: Loh Ee
authors: LE
authors: Chin
authors: Lam Chee
authors: LC
authors: Loong
mesh_terms: D000328:Adult; D017028:Caregivers / Q000523:psychology*; D004645:Empathy; D005260:Female; D006117:Grief; D006801:Humans; D007407:Interviews as Topic; D008296:Malaysia; D008297:Male; D008875:Middle Aged; D009770:Obsessive Behavior / Q000523:psychology; D010166:Palliative Care / Q000523:psychology*; D013315:Stress, Psychological / Q000209:etiology / Q000523:psychology*
keywords: Malaysia; analysis; distress; informal caregivers; palliative care; psychosocial issues; suffering; thematic