title: Patient-reported outcome measures: are they patient-generated, patient-centred or patient-valued?
abstract: BACKGROUND
  In the past two decades, there has been a growing interest in the development of a more patient-centred approach to assessing treatment outcomes. This interest has resulted in the increasing use of patient-reported outcome measures (PROMs) in both clinical trials and usual clinical practice.
  
  
  OBJECTIVE
  To briefly discuss the paucity of efficacy and effectiveness studies in the field of mental health (exemplified by schizophrenia, depression and opioid dependence) that significantly incorporate the patient's perspective. The limited concordance between the perspectives of patients and clinicians in outcome assessment is also addressed. Finally, we propose a new PROM classification system based on the degree to which these instruments incorporate the patient's perspective.
  
  
  CONCLUSIONS
  PROMs may differ little from traditional instruments unless they truly incorporate the patient's perspective and not just the perspectives of clinicians and researchers. Efforts to develop new PROMs that provide a more patient-centred outcome assessment should use qualitative and participatory methods to capture and incorporate patient perspectives and values.
authors: Unitat de Conductes Addictives, Servei de Psiquiatria, Hospital de la Santa Creu i Sant Pau , Institut d'Investigació Biomèdica Sant Pau (IIB Sant Pau) , Barcelona , Spain.
authors: Joan
authors: J
authors: Trujols
authors: Maria J
authors: MJ
authors: Portella
authors: Ioseba
authors: I
authors: Iraurgi
authors: M Josefa
authors: MJ
authors: Campins
authors: Núria
authors: N
authors: Siñol
authors: José Pérez
authors: JP
authors: de Los Cobos
mesh_terms: D003866:Depressive Disorder / Q000628:therapy; D006801:Humans; D001523:Mental Disorders / Q000628:therapy*; D063868:Patient Outcome Assessment; D012559:Schizophrenia / Q000628:therapy; D019966:Substance-Related Disorders / Q000628:therapy; D016896:Treatment Outcome