title: Co-creating possibilities for patients in palliative care to reach vital goals--a multiple case study of home-care nursing encounters.
abstract: The patient's home is a common setting for palliative care. This means that we need to understand current palliative care philosophy and how its goals can be realized in home-care nursing encounters (HCNEs) between the nurse, patient and patient's relatives. The existing research on this topic describes both a negative and a positive perspective. There has, however, been a reliance on interview and descriptive methods in this context. The aim of this study was to explore planned HCNEs in palliative care. The design was a multiple case study based on observations. The analysis includes a descriptive and an explanation building phase. The results show that planned palliative HCNEs can be described as a process of co-creating possibilities for the patient to reach vital goals through shared knowledge in a warm and caring atmosphere, based on good caring relations. However, in some HCNEs, co-creation did not occur: Wishes and needs were discouraged or made impossible and vital goals were not reached for the patients or their relatives. Further research is needed to understand why. The co-creative process presented in this article can be seen as a concretization of the palliative care ideal of working with a person-centered approach.
authors: FOU nu, Research and Development Centre, Jakobsbergs sjukhus, Järfälla, SwedenDepartment of Medical and Health Sciences, Faculty of Health Sciences, Linköping University, Linköping, SwedenDepartment of Palliative Care Research, Ersta Sköndal University College, Stockholm, SwedenSchool of Health and Caring Sciences, Linnaeus University, Kalmar, SwedenDepartment of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, SwedenDepartment of Health Care Sciences, Ersta Sköndal University College, Stockholm, SwedenDepartment of Nursing, Gjøvik University College, Gjøvik, NorwayStockholms Sjukhem Foundation, Research and Development Department, Stockhom, Sweden.
authors: Elisabeth
authors: E
authors: Bergdahl
authors: Eva
authors: E
authors: Benzein
authors: Britt-Marie
authors: BM
authors: Ternestedt
authors: Eva
authors: E
authors: Elmberger
authors: Birgitta
authors: B
authors: Andershed
mesh_terms: D000328:Adult; D001291:Attitude of Health Personnel; D005260:Female; D006040:Goals; D006699:Home Care Services; D006801:Humans; D008297:Male; D008875:Middle Aged; D009723:Nurse-Patient Relations; D009742:Nursing Theory; D010166:Palliative Care; D011361:Professional Competence; D011368:Professional-Family Relations
keywords: case study research; home care; nurse-patient interaction; nurse-patient relationships; palliative care