title: Improving informed consent with minority participants: results from researcher and community surveys.
abstract: Strengthening the informed consent process is one avenue for improving recruitment of minorities into research. This study examines that process from two different perspectives, that of researchers and that of African American and Latino community members. Through the use of two separate surveys, we compared strategies used by researchers with the preferences and attitudes of community members during the informed consent process. Our data suggest that researchers can improve the informed consent process by incorporating methods preferred by the community members along with methods shown in the literature for increasing comprehension. With this approach, the informed consent process may increase both participants' comprehension of the material and overall satisfaction, fostering greater trust in research and openness to future research opportunities.
authors: University of Maryland, College Park, MD20742, USA. scquinn@umd.edu
authors: Sandra Crouse
authors: SC
authors: Quinn
authors: Mary A
authors: MA
authors: Garza
authors: James
authors: J
authors: Butler
authors: Craig S
authors: CS
authors: Fryer
authors: Erica T
authors: ET
authors: Casper
authors: Stephen B
authors: SB
authors: Thomas
authors: David
authors: D
authors: Barnard
authors: Kevin H
authors: KH
authors: Kim
mesh_terms: D001741:Black or African American; D001290:Attitude; D035843:Biomedical Research; D032882:Comprehension; D003258:Consumer Behavior; D003625:Data Collection; D006630:Hispanic or Latino; D006801:Humans; D007258:Informed Consent; D008913:Minority Groups; D018579:Patient Selection