Older people in long-term care settings as research informants: ethical challenges.
Conducting nursing research in long-term care facilities and with samples of older people requires careful attention to research ethics and the ethical conduct of the study. This review analysed the research ethics of the empirical studies that focus on older people in long-term care settings as research participants. Articles (n = 66) focussing on older people in long-term care settings as research informants were retrieved from an electronic search of MEDLINE (1990 to February 2012) using the MESH terms 'Nursing' AND 'Long-term care' (578 citations) and 'Institutionalization' and 'Nursing' (89 citations). Ethical approval procedure was reported in more than half of the studies (58%) and informed consent in two-thirds of the studies (70%). Ethical issues in data collection were described in most of the articles, but only a few reported ethics in problem statement, reporting or presenting implications. There is a need to focus on reporting research ethics and procedures in empirical research on vulnerable people.
Department of Nursing Science, University of Turku, Lemminkäisenkatu 1, Turku, Finland. riisuh@utu.fi
Riitta
R
Suhonen
Minna
M
Stolt
Helena
H
Leino-Kilpi
D000368:Aged; D002170:Canada; D003625:Data Collection / Q000941:ethics / Q000379:methods / Q000592:standards; D006299:Health Services for the Aged; D006801:Humans; D007258:Informed Consent; D008134:Long-Term Care; D015404:Nursing Methodology Research / Q000941:ethics*; D012107:Research Design; D035842:Research Subjects; D014481:United States
Informed consent; long-term care; research ethics; vulnerable patients