Constructing the Medical Humanities gaze.
In the last few decades genomics has completely reshaped the way in which patients and physicians experience and make sense of illness. In this paper we build upon a real case - namely that of breast cancer genetic testing - in order to point to the shortcomings of the paradigm currently driving healthcare delivery. In particular, we put forward a viable analytical model for the construction of a proper decisional process broadening the scope of medical gaze onto human experience of illness. This model revolves around four main conceptual axes: (i) communicating information; (ii) informing decisions; (iii) respecting narratives; (iv) empowering decision-making. These four kernels, we argue, map precisely onto the main pitfalls of the model presently dealing with genetic testing provision. Medical Humanities, we conclude, ought to play a pivotal role in constructing the environment for competent decision-making, autonomous self-determination and respectful narritivization of one's own life.
SEMM-European School of Molecular Medicine & IEO-European Institute of Oncology, Via Adamello 16, 20139 Milan, Italy. marco.annoni@ieo.eu
Marco
M
Annoni
Giuseppe
G
Schiavone
Luca
L
Chiapperino
Giovanni
G
Boniolo
D001943:Breast Neoplasms / Q000235:genetics / Q000523:psychology; D003142:Communication; D003657:Decision Making; D003695:Delivery of Health Care / Q000941:ethics / Q000379:methods* / Q000592:standards*; D005260:Female; D020022:Genetic Predisposition to Disease; D006809:Humanities / Q000941:ethics / Q000523:psychology*; D006801:Humans; D008495:Medical Oncology; D008960:Models, Psychological; D026684:Personal Autonomy