The beliefs and expectations of patients and caregivers about home haemodialysis: an interview study.
OBJECTIVE
To explore the beliefs and expectations of patients and their caregivers about home haemodialysis in Italy where the prevalence of home haemodialysis is low.


METHODS
Semistructured, qualitative interview study with purposive sampling and thematic analysis.


METHODS
Four dialysis centres in Italy without home haemodialysis services (Bari, Marsala, Nissoria and Taranto).


METHODS
22 patients receiving in-centre haemodialysis and 20 of their identified caregivers.


RESULTS
We identified seven major themes that were central to patient and caregiver perceptions of home haemodialysis in regions without established services. Three positive themes were: flexibility and freedom (increased autonomy, minimised wasted time, liberation from strict dialysis schedules and gaining self-worth); comfort in familiar surroundings (family presence and support, avoiding the need for dialysis in hospital) and altruistic motivation to do home haemodialysis as an exemplar for other patients and families. Four negative themes were: disrupting sense of normality; family burden (an onerous responsibility, caregiver uncertainty and panic and visually confronting); housing constraints; healthcare by 'professionals' not 'amateurs' (relinquishing security and satisfaction with in-centre services) and isolation from peer support.


CONCLUSIONS
Patients without direct experience or previous education about home haemodialysis and their caregivers recognise the autonomy of home haemodialysis but are very concerned about the potential burden and personal sacrifice home haemodialysis will impose on caregivers and feel apprehensive about accepting the medical responsibilities of dialysis. To promote acceptance and uptake of home haemodialysis among patients and caregivers who have no experience of home dialysis, effective strategies are needed that provide information about home haemodialysis to patients and their caregivers, assure access to caregiver respite, provide continuous availability of medical and technical advice and facilitate peer patient support.
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales,  Australia.
Allison
A
Tong
Suetonia
S
Palmer
Braden
B
Manns
Jonathan C
JC
Craig
Marinella
M
Ruospo
Letizia
L
Gargano
David W
DW
Johnson
Jörgen
J
Hegbrant
Måns
M
Olsson
Steven
S
Fishbane
Giovanni F M
GF
Strippoli