Disability and family in the People's Republic of China: implementation, benefits, and comparison of two mutual support groups.
BACKGROUND
The authors and 2 Chinese parents established 2 support groups in China. One group was for parents of children with autism, and the other was for young adults with either mental health issues or intellectual disability, and their parents. The purpose of this study was to examine the meaning and effectiveness of these groups from the parents' perspectives.


METHODS
Qualitative interviews and questionnaires were completed by members of the groups, across the first 16 months. Facilitator monthly reports were also analysed.


RESULTS
Members of both groups found the groups provided a feeling of belonging and a place to interact with similar people. Differences existed relating to perspectives on the purpose of the groups and how families benefited, as well as in participation rates. Suggestions were provided by members.


CONCLUSIONS
Implications of the differences in participation and desires of the parents are considered, including the understanding and perceptions of various disabilities in China.
Education Department, Hobart and William Smith Colleges, Geneva, NY 14456, USA. mccabe@hws.edu
Helen
H
McCabe
Karen
K
McCabe
D000328:Adult; D001321:Autistic Disorder; D002681:China; D006233:Persons with Disabilities / Q000523:psychology*; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D008607:Intellectual Disability; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research; D011788:Quality of Life; D012657:Self-Help Groups; D012944:Social Support; D011795:Surveys and Questionnaires; D055815:Young Adult