title: "I wouldn't look at it as stress": conceptualizations of caregiver stress among low-income families of children with asthma.
abstract: Low-income caregivers of children with asthma experience multiple stressors, likely worsening family health. As part of Community Action Against Asthma's community-based participatory research partnership, researchers conducted 40 qualitative semi-structured interviews and quantitative surveys with low-income caregivers of children with asthma in Detroit, Michigan. Participants described daily childhood asthma experiences and completed scales including the Peds Quality of Life Family Impact Module and Zarit Burden Caregiver Scale. Quantitative scale findings suggested participants are moderately stressed or affected by their child's illness. While there was some accordance between qualitative and quantitative findings, qualitative findings additionally captured many relevant life stressors, seemingly overlooked or conflated in scale responses. Many participants described asthma as part of childrearing, rather than as a stressor or burden. Findings encourage improvement of clinical, psychometric assessments used to measure and address stressors that shape health for many families with children with asthma.
authors: Department of Health Behavior Health Education at the University of Michigan School of Public Health (UM-SPH), Ann Arbor, MI 48109, USA.
authors: Natalie R
authors: NR
authors: Sampson
authors: Edith A
authors: EA
authors: Parker
authors: Rebecca R
authors: RR
authors: Cheezum
authors: Toby C
authors: TC
authors: Lewis
authors: Ashley
authors: A
authors: O'Toole
authors: Adriana
authors: A
authors: Zuniga
authors: Jean
authors: J
authors: Patton
authors: Thomas G
authors: TG
authors: Robbins
authors: Carla C
authors: CC
authors: Keirns
mesh_terms: D000328:Adult; D001249:Asthma / Q000523:psychology / Q000628:therapy*; D017028:Caregivers / Q000523:psychology*; D002648:Child; D017281:Cost of Illness; D005190:Family / Q000523:psychology; D005260:Female; D006801:Humans; D007182:Income; D007407:Interviews as Topic; D008297:Male; D017533:Marital Status; D008824:Michigan; D008875:Middle Aged; D011203:Poverty / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology; D013315:Stress, Psychological / Q000209:etiology* / Q000523:psychology
references: Environ Health Perspect. 2002 Apr;110 Suppl 2:173-81
references: 11929726
references: Health Qual Life Outcomes. 2008 Feb 28;6:19
references: 18307771
references: J Prim Prev. 2010 Apr;31(1-2):41-58
references: 20306137
references: NCHS Data Brief. 2012 May;(94):1-8
references: 22617340
references: Natl Health Stat Report. 2011 Jan 12;(32):1-14
references: 21355352
references: Public Health Nurs. 2009 Jul-Aug;26(4):297-306
references: 19573208
references: J Asthma. 2004 Sep;41(6):645-53
references: 15584314
references: Perit Dial Int. 2007 Jun;27 Suppl 2:S138-42
references: 17556292
references: Soc Sci Med. 1998 Jun;46(12):1569-85
references: 9672396
references: Pediatrics. 2009 Mar;123 Suppl 3:S174-84
references: 19221161
references: J Clin Epidemiol. 2002 Sep;55(9):870-81
references: 12393074
references: Health Qual Life Outcomes. 2008 Aug 07;6:59
references: 18687134
references: Health Qual Life Outcomes. 2004 Sep 27;2:55
references: 15450120
references: J Pediatr Psychol. 2004 Oct;29(7):475-91
references: 15347697
references: Arch Gen Psychiatry. 1986 Apr;43(4):309-14
references: 2937384
references: Neurosci Biobehav Rev. 2010 Sep;35(1):2-16
references: 19822172
references: Health Educ Behav. 2008 Jun;35(3):376-95
references: 17761540
references: Depress Anxiety. 2009;26(8):718-23
references: 19496077
references: J Child Neurol. 2008 Mar;23(3):301-6
references: 18182646
references: J Health Soc Behav. 2008 Mar;49(1):92-103
references: 18418987
references: Qual Health Res. 2003 Oct;13(8):1170-9
references: 14556426
references: J Adv Nurs. 2005 May;50(4):381-90
references: 15842445
references: J Health Soc Behav. 2005 Sep;46(3):274-88
references: 16259149
references: J Pediatr Psychol. 2008 May;33(4):408-21
references: 17906331
references: Gerontologist. 2001 Oct;41(5):652-7
references: 11574710
references: J Health Soc Behav. 2010;51 Suppl:S41-53
references: 20943582
references: J Gerontol B Psychol Sci Soc Sci. 2005 Mar;60(2):S82-92
references: 15746029