title: Research in progress: put the orphanage out of business.
abstract: Paediatric interstitial lung disease (ILD) is rare and diverse, meaning no single centre will see sufficient children to perform the studies needed to make progress. This EU FP-7 grant will standardise the evaluation of these rare conditions by establishing pan-European multidisciplinary expert panels and establish consensus on treatment protocols and standard operating procedures across Europe. We will work with patient groups to determine optimal treatment end-points and biomarkers. A biobank will be established as a Europe-wide resource for mechanistic studies. Ultimately we aim to do the first randomised controlled trial of a pharmacological treatment in paediatric ILD.
authors: Department of Paediatric Respiratory Medicine, National Heart and Lung Institute, Imperial College, , London, UK.
authors: Andrew
authors: A
authors: Bush
authors: Gisela
authors: G
authors: Anthony
authors: Angelo
authors: A
authors: Barbato
authors: Steve
authors: S
authors: Cunningham
authors: Annick
authors: A
authors: Clement
authors: R
authors: R
authors: Epaud
authors: Carlee
authors: C
authors: Gilbert
authors: Lutz
authors: L
authors: Goldbeck
authors: Kai
authors: K
authors: Kronfeld
authors: Andrew G
authors: AG
authors: Nicholson
authors: Nicolaus
authors: N
authors: Schwerk
authors: Matthias
authors: M
authors: Griese
mesh_terms: D018070:Biological Specimen Banks; D002648:Child; D003695:Delivery of Health Care / Q000191:economics / Q000379:methods*; D005060:Europe; D019317:Evidence-Based Medicine / Q000379:methods*; D006801:Humans; D017563:Lung Diseases, Interstitial / Q000145:classification / Q000628:therapy*; D035583:Rare Diseases / Q000628:therapy*
keywords: ABCA3; Allergic Alveolitis; NEHI; PIG; Paediatric interstitial lung disease; Pulmonary vasculitis; Surfactant protein