title: Educating families about end-of-life care in advanced dementia: acceptability  of a Canadian family booklet to nurses from Canada, France, and Japan.
abstract: BACKGROUND
  The families of people with late-stage dementia need to be informed about the course of the dementia and the comfort/palliative care option. A booklet was written for that purpose and can be provided to family members by physicians and nurses.
  
  
  METHODS
  The acceptability of the booklet for nurses was tested in Canada (French and English version), France (French Canadian version) and Japan (translated and adapted version).
  
  
  RESULTS
  Overall, 188 nurses completed a survey questionnaire. The booklet was accepted best in Canada and less so in France and Japan. Despite regional variation, the majority of the nurses perceived the booklet as useful for families. The French and Japanese nurses also reported a greater need for palliative care education in advanced dementia.
  
  
  CONCLUSIONS
  The booklet may help nurses educate families about end-of-life issues in dementia palliative care, but local adaptation of the booklet content and physician engagement are necessary.
authors: Marcel
authors: M
authors: Arcand
authors: Kevin
authors: K
authors: Brazil
authors: Miharu
authors: M
authors: Nakanishi
authors: Taeko
authors: T
authors: Nakashima
authors: Michel
authors: M
authors: Alix
authors: Jean-François
authors: JF
authors: Desson
authors: Rémy
authors: R
authors: Morello
authors: Louise
authors: L
authors: Belzile
authors: Marie
authors: M
authors: Beaulieu
authors: Cees M P M
authors: CM
authors: Hertogh
authors: Franco
authors: F
authors: Toscani
authors: Jenny T
authors: JT
authors: van der Steen
mesh_terms: D001291:Attitude of Health Personnel; D002170:Canada; D003704:Dementia / Q000451:nursing*; D005602:France; D006801:Humans; D007564:Japan; D009726:Nurses / Q000523:psychology*; D010353:Patient Education as Topic; D013727:Terminal Care