title: Toward better Alzheimer's research information sources for the public.
abstract: The National Plan to Address Alzheimer's Disease calls for a new relationship between researchers and members of the public. This relationship is one that provides research information to patients and allows patients to provide ideas to researchers. One way to describe it is a "bidirectional translational relationship." Despite the numerous sources of online and offline information about Alzheimer's disease, there is no information source which currently provides this interaction. This article proposes the creation an Alzheimer's research information source dedicated to monitoring Alzheimer's research literature and providing user friendly, publicly accessible summaries of data written specifically for a lay audience. This information source should contain comprehensive, updated, user friendly, publicly available, reviews of Alzheimer's research and utilize existing online multimedia/social networking tools to provide information in useful formats that help patients, caregivers, and researchers learn rapidly from one another.
authors: Department of Clinical Research and Leadership, George Washington University School of Medicine and Health Sciences, Washington, DC, USA. ppayne1@gwu.edu
authors: Perry W
authors: PW
authors: Payne
mesh_terms: D022126:Access to Information; D000544:Alzheimer Disease; D054626:Consumer Health Information / Q000379:methods*; D006801:Humans; D033181:Information Dissemination / Q000379:methods*; D039781:PubMed; D012106:Research; D014481:United States