title: Parental influence on clinical management during neonatal intensive care: a survey of US neonatologists.
abstract: OBJECTIVE
  Family-centered care (FCC), which includes involving parents in conversations about medical management, is increasingly employed in the neonatal intensive care unit (NICU). Our aim was to determine which care decisions are discussed by neonatologists with families most frequently and the percentage of clinicians influenced by such conversations.
  
  
  METHODS
  Anonymous web-based survey provided to 2137 neonatologists assessing information sharing and parental involvement.
  
  
  RESULTS
  Thousand and two neonatologists responded in which 893 fully completed the surveys. 88% practice FCC. Topics most frequently discussed with parents were blood transfusion, steroids for lung disease and patent ductus arteriosus (PDA) surgery, each being reported and discussed by more than 90% of respondents. Many therapies, including aminoglycoisdes, total parenteral nutrition, and phototherapy, were discussed with parents by far fewer clinicians. Additionally, parents had most influence on clinicians in two categories, blood transfusion and steroids, with more than 70% reporting that their practice was influenced by parental opinion if communicated. For some topics, such as PDA surgery and central line placement, conversations impacted few clinicians.
  
  
  CONCLUSIONS
  FCC appears to have an impact on NICU clinical decision-making processes, some more than others. Further investigation in this area may provide information on how to best communicate with families and run effective, efficient FCC rounds.
authors: Department of Pediatrics, Division of Neonatology, New York University School of Medicine, NYU Langone Medical Center, Bellevue Hospital, New York, NY 10016, USA. sean.bailey@nyumc.org
authors: Sean M
authors: SM
authors: Bailey
authors: Karen D
authors: KD
authors: Hendricks-Muñoz
authors: Pradeep
authors: P
authors: Mally
mesh_terms: D003657:Decision Making; D005260:Female; D006801:Humans; D033181:Information Dissemination; D007363:Intensive Care Units, Neonatal / Q000706:statistics & numerical data; D015931:Intensive Care, Neonatal / Q000706:statistics & numerical data; D008297:Male; D009359:Neonatology / Q000706:statistics & numerical data; D010290:Parents; D018802:Patient-Centered Care / Q000706:statistics & numerical data; D010819:Physician's Role; D011795:Surveys and Questionnaires; D014481:United States