title: Cancer patient and survivor research from the cancer information service research consortium: a preview of three large randomized trials and initial lessons learned.
abstract: The authors describe 3 large randomized trials from the Cancer Information Service Research Consortium. Three web-based multimedia programs are being tested to help newly diagnosed prostate (Project 1) and breast cancer patients (Project 2) make informed treatment decisions and breast cancer patients prepare for life after treatment (Project 3). Project 3 also tests a telephone callback intervention delivered by a cancer information specialist. All participants receive standard print material specific to each project. Preliminary results from the 2-month follow-up interviews are reported for the initial wave of enrolled participants, most of whom were recruited from the Cancer Information Service (1-800-4-CANCER) telephone information program (Project 1: n =208; Project 2: n =340; Project 3: n =792). Self-reported use of the multimedia program was 51%, 52%, and 67% for Projects 1, 2, and 3, respectively. Self-reported use of the print materials (read all, most, or some) was 90%, 85%, and 83% for Projects 1, 2, and 3, respectively. The callback intervention was completed by 92% of Project 3 participants. Among those using the Cancer Information Service Research Consortium interventions, perceived usefulness and benefit was high, and more than 90% reported that they would recommend them to other cancer patients. The authors present 5 initial lessons learned that may help inform future cancer communications research.
authors: University of Colorado Cancer Center, University of Colorado, Denver, 12474 E. 19th Avenue, Mail Stop F427, Room 141, Aurora, CO 80045, USA. al.marcus@ucdenver.edu
authors: Alfred C
authors: AC
authors: Marcus
authors: Michael A
authors: MA
authors: Diefenbach
authors: Annette L
authors: AL
authors: Stanton
authors: Suzanne M
authors: SM
authors: Miller
authors: Linda
authors: L
authors: Fleisher
authors: Peter C
authors: PC
authors: Raich
authors: Marion E
authors: ME
authors: Morra
authors: Rosemarie Slevin
authors: RS
authors: Perocchia
authors: Zung Vu
authors: ZV
authors: Tran
authors: Mary Anne
authors: MA
authors: Bright
mesh_terms: D000368:Aged; D001943:Breast Neoplasms / Q000628:therapy*; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D007255:Information Services; D020407:Internet; D008297:Male; D008875:Middle Aged; D019212:Multimedia; D010353:Patient Education as Topic / Q000379:methods; D017060:Patient Satisfaction / Q000706:statistics & numerical data; D015397:Program Evaluation; D011471:Prostatic Neoplasms / Q000628:therapy*; D016032:Randomized Controlled Trials as Topic; D017741:Survivors / Q000523:psychology*; D013689:Telephone