title: Assessing the generalisability of the pediatric cardiac quality of life inventory in the United Kingdom.
abstract: OBJECTIVE
  To demonstrate the generalisability of the Pediatric Cardiac Quality of Life Inventory in the United Kingdom.
  
  
  METHODS
  Children and adolescents with heart disease were recruited from three tertiary paediatric cardiac centres in the United Kingdom and completed the Pediatric Cardiac Quality of Life Inventory. Item response option variability, total and subscale scores, patterns of correlation, and internal consistency were compared between the three sites.
  
  
  RESULTS
  A total of 1537 participants--768 children/adolescents and 769 parents--were evaluated from the three sites. Patterns of item response option variability were similar and acceptable for all samples--child, adolescent, parent of child, and parent of adolescent. Internal consistency was high (0.82-0.96) for all samples from each site, and item-subscale, subscale-subscale, subscale-total, and item-total correlations were moderate to excellent for each centre. Comparisons of patterns of subscale and total score correlations between the three sites revealed no significant differences.
  
  
  CONCLUSIONS
  Scores on the Pediatric Cardiac Quality of Life Inventory are generalisable in the United Kingdom, supporting the use of this measure for multi-centre studies of health-related quality of life of children and adolescents with heart disease.
authors: 1 Cardiorespiratory Department, Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom.
authors: Jo
authors: J
authors: Wray
authors: 1 Cardiorespiratory Department, Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom.
authors: Kate
authors: K
authors: Brown
authors: 2 Royal Brompton and Harefield NHS Foundation Trust, London, United Kingdom.
authors: Rodney
authors: R
authors: Franklin
authors: 3 Cincinnati Children's Hospital Medical Center, Cincinnati, United States of America.
authors: Amy
authors: A
authors: Cassedy
authors: 3 Cincinnati Children's Hospital Medical Center, Cincinnati, United States of America.
authors: Bradley S
authors: BS
authors: Marino
mesh_terms: D000293:Adolescent; D002648:Child; D003430:Cross-Sectional Studies; D005260:Female; D006304:Health Status; D006330:Heart Defects, Congenital / Q000175:diagnosis* / Q000523:psychology; D006331:Heart Diseases / Q000175:diagnosis / Q000523:psychology; D006801:Humans; D008297:Male; D010290:Parents; D011446:Prospective Studies; D011788:Quality of Life / Q000523:psychology; D011795:Surveys and Questionnaires; D006113:United Kingdom