title: A community-based participatory research study of HIV and HPV vulnerabilities and prevention in two Pacific Islander communities: ethical challenges and solutions.
abstract: We describe ethical issues that emerged during a one-year CBPR study of HIV and human papillomavirus (HPV) vulnerabilities and prevention in two Pacific Islander (PI) communities, and the collaborative solutions to these challenges reached by academic and community partners. In our project case study analysis, we found that ethical tensions were linked mainly to issues of mutual trust and credibility in PI communities; cultural taboos associated with the nexus of religiosity and traditional PI culture; fears of privacy breaches in small, interconnected PI communities; and competing priorities of scientific rigor versus direct community services. Mutual capacity building and linking CBPR practice to PI social protocols are required for effective solutions and progress toward social justice outcomes.
authors.affiliation: California State University, Fullerton, CA 92834-6870, USA. adistefano@fullerton.edu
authors.forename: Anthony
authors.initials: A
authors.lastname: DiStefano
authors.forename: Ruth
authors.initials: R
authors.lastname: Peters
authors.forename: Sora Park
authors.initials: SP
authors.lastname: Tanjasiri
authors.forename: Lourdes
authors.initials: L
authors.lastname: Quitugua
authors.forename: Jeany
authors.initials: J
authors.lastname: Dimaculangan
authors.forename: Brian
authors.initials: B
authors.lastname: Hui
authors.forename: Angelica
authors.initials: A
authors.lastname: Barrera-Ng
authors.forename: 'Isileli
authors.initials: '
authors.lastname: Vunileva
authors.forename: Vanessa
authors.initials: V
authors.lastname: Tui'one
authors.forename: Lois
authors.initials: L
authors.lastname: Takahashi
mesh_terms: D057191:Capacity Building; D003153:Community Health Services; D055812:Community-Based Participatory Research / Q000941:ethics*; D003299:Cooperative Behavior; D003469:Culture; D032984:Ethics, Research; D015658:HIV Infections / Q000517:prevention & control; D006801:Humans; D044468:Native Hawaiian or Pacific Islander; D027383:Papillomaviridae; D018907:Privacy; D012067:Religion; D012111:Residence Characteristics; D012935:Social Justice; D035502:Trust; D014777:Virus Diseases / Q000517:prevention & control / Q000821:virology