title: A structured review of patient-reported outcome measures for patients with skin cancer, 2013.
abstract: BACKGROUND
  The collection of patient-reported outcome measures (PROMs) within the national PROMs programme for elective procedures is now established mandatory practice in the NHS with high response rates and completion.
  
  
  OBJECTIVE
  This review examines the evidence of PROMs for people with skin cancer.
  
  
  METHODS
  Comprehensive searches were conducted using several sources and databases, using a detailed search strategy developed by the University of Oxford's PROM Group. Articles were assessed for eligibility. Data were extracted per PROM for each measurement property and appraised using an appraisal framework.
  
  
  RESULTS
  A total of 3517 articles were identified in the searches, and 28 were included in the final review after assessment by two independent reviewers. Two generic instruments (SF-36 and Sickness Impact Profile) and nine condition-specific PROMs were identified.
  
  
  CONCLUSIONS
  Overall, there is a limited volume of published evidence for the application of generic PROMs for people with skin cancer. Evaluation of the EQ-5D may be particularly important given its widespread use in many other healthcare contexts in the U.K. The Skin Cancer Index could be considered for piloting in the NHS. For patients with nonmelanoma skin cancers, the Skindex measures may also be considered. The SCQOLIT has some evidence of applicability across both skin cancer types but more evaluations are needed. The FACT-M does have more promising characteristics for patients with malignant melanomas although no evidence of testing in the U.K. was found. The forthcoming EORTC-M may prove a useful measure given the expertise and track record of this European collaboration in cancer and quality of life.
authors.affiliation: Patient-reported Outcome Measurement Group, Department of Public Health, University of Oxford, Old Road Campus, Oxford, OX3 7LF, UK. elizabeth.gibbons@dph.ox.ac.uk
authors.forename: E
authors.initials: E
authors.lastname: Gibbons
authors.forename: C
authors.initials: C
authors.lastname: Casañas i Comabella
authors.forename: R
authors.initials: R
authors.lastname: Fitzpatrick
mesh_terms: D006801:Humans; D008545:Melanoma / Q000523:psychology / Q000628:therapy*; D063868:Patient Outcome Assessment; D010361:Patients / Q000523:psychology*; D011788:Quality of Life; D057566:Self Report; D018434:Sickness Impact Profile; D012878:Skin Neoplasms / Q000523:psychology / Q000628:therapy*; D016896:Treatment Outcome