title: [Disclosure and informative consultation after diagnosis of dementia: retrospective perception from the point of view of relatives].
abstract: BACKGROUND
  Many studies have shown that relatives of dementia patients often report not being given enough information about dementia and current treatment possibilities by the diagnosing physicians. Especially at the beginning of the disease, there is a high need for counseling.
  
  
  METHODS
  By means of a newly developed questionnaire, 279 relatives of dementia patients were asked in an exploratory manner about the general situation and problems concerning the information provided to the patient during disclosure of the diagnosis. Quantitative data were presented descriptively and group-specific differences were tested for statistical significance.
  
  
  RESULTS
  Information concerning the diagnosis by a specialist directly after disclosure of diagnosis, referral to regional support services, informational brochures, and a personal approach are determining factors concerning satisfying the relatives' need for information.
  
  
  CONCLUSIONS
  Problem areas were determined and specific recommendations for the practice of patient disclosure and briefing of relatives were shown.
authors.affiliation: Zentrum für Klinische Psychologie und Rehabilitation, Universität Bremen, Grazer Str. 2 & 6, 28359, Bremen, Deutschland, hesemann@gmx.net.
authors.forename: H
authors.initials: H
authors.lastname: Hesemann
authors.forename: F
authors.initials: F
authors.lastname: Petermann
authors.forename: K
authors.initials: K
authors.lastname: Reif
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001294:Attitude to Health; D017028:Caregivers / Q000706:statistics & numerical data*; D003704:Dementia / Q000175:diagnosis* / Q000453:epidemiology; D030881:Disclosure / Q000706:statistics & numerical data*; D005190:Family; D005260:Female; D005858:Germany / Q000453:epidemiology; D057220:Health Literacy / Q000706:statistics & numerical data*; D006801:Humans; D007258:Informed Consent / Q000706:statistics & numerical data*; D008297:Male; D008875:Middle Aged; D015995:Prevalence; D012017:Referral and Consultation / Q000706:statistics & numerical data*; D012189:Retrospective Studies