title: [Survey on the announcement of congenital diaphragmatic hernia by sonographers and evaluation of its prognosis].
abstract: OBJECTIVE
  Congenital diaphragmatic hernia (CDH) is a rare disease (1/3000 live births). Carriers display a diaphragmatic defect responsible for an impaired pulmonary development and physiology. The aim of this study was to evaluate the information given to couples whose fetus display a CDH and the current knowledge of French sonographers about this disease.
  
  
  METHODS
  A questionnaire was sent by email to 2000 sonographers, members of the French college of fetal ultrasonography, between May 1st and December 31st of 2010.
  
  
  RESULTS
  20,7 % (414) of the sonographers answered. Twenty-four percent are second line sonographers. Thirty-eight percent did not diagnose any diaphragmatic hernia in the last five years (2005-2010) and 42 % diagnosed 1 or 2 during the same period. Information concerning the prognostic remains elusive and most sonographers rapidly referred patients to prenatal diagnostic centers. Fifty-nine percent of sonographer are not aware of the existence in France of a Centre for Rare Disease for CDH.
  
  
  CONCLUSIONS
  Accurate assessment of prognosis is essential to provide adequate information to couples and to help them make a decision on whether or not to perform an in utero treatment. The heterogenous results of the survey clearly show the disparities between sonographers on the type of information delivered. A better diffusion of prognostic evaluation in CDH, among sonographers is needed.
authors.affiliation: Service de gynécologie obstétrique et médecine de la reproduction, université Paris Sud, hôpital Antoine-Béclère, 157, rue de la Porte-de-Trivaux, 92141 Clamart, France.
authors.forename: A
authors.initials: A
authors.lastname: Vivanti
authors.forename: K
authors.initials: K
authors.lastname: Fargeon-Guez
authors.forename: N
authors.initials: N
authors.lastname: Fries
authors.forename: A-G
authors.initials: AG
authors.lastname: Cordier
authors.forename: A
authors.initials: A
authors.lastname: Benachi
mesh_terms: D000328:Adult; D000368:Aged; D001291:Attitude of Health Personnel; D002983:Clinical Competence / Q000706:statistics & numerical data; D003625:Data Collection; D030881:Disclosure; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006548:Hernia, Diaphragmatic / Q000000981:diagnostic imaging / Q000453:epidemiology / Q000523:psychology; D065630:Hernias, Diaphragmatic, Congenital; D006801:Humans; D008297:Male; D008875:Middle Aged; D010820:Physicians / Q000523:psychology / Q000706:statistics & numerical data; D011247:Pregnancy; D011379:Prognosis; D016216:Ultrasonography, Prenatal / Q000523:psychology