title: [Multidisciplinary clinical management for prophylactic mastectomy: views of women from one centre in Quebec City].
abstract: Prophylactic mastectomy is an effective, although controversial strategy to reduce the risk of breast cancer in women carrying a BRCA1/2 mutation. A multidisciplinary pre- and post-operative clinical management is recommended for women who consider or undergo this surgery, because of its radical and irreversible nature as well as its possible impact on quality of life.
  
  
  OBJECTIVE
  This study aims to report on the experience of patients having undergone prophylactic mastectomy within a medical setting offering such a clinical management.
  
  
  METHODS
  A retrospective qualitative study was conducted with patients having had a prophylactic mastectomy between 2002 and 2006 at the centre des maladies du sein Deschênes-Fabia (CMSDF) in Quebec City. Fifteen women were interviewed and the narratives were analyzed using thematic content analysis method.
  
  
  RESULTS
  The participants generally appreciated the multidisciplinary approach that was used at the CMSDF and believed it was necessary. Improvements were suggested regarding information and post-surgical medical follow-up, some of which are now implemented.
  
  
  CONCLUSIONS
  The study results confirm the utility and the acceptability of a multidisciplinary clinical follow-up for women who undergo prophylactic mastectomy.
authors.affiliation: Université Laval, faculté de pharmacie, Québec, QC, Canada. michel.dorval@pha.ulaval.ca
authors.forename: Michel
authors.initials: M
authors.lastname: Dorval
authors.forename: Sylvie
authors.initials: S
authors.lastname: Pelletier
authors.forename: Karine
authors.initials: K
authors.lastname: Bouchard
authors.forename: Christine
authors.initials: C
authors.lastname: Desbiens
authors.forename: Jocelyne
authors.initials: J
authors.lastname: Chiquette
mesh_terms: D000328:Adult; D001943:Breast Neoplasms / Q000235:genetics / Q000517:prevention & control* / Q000523:psychology; D002173:Cancer Care Facilities; D005260:Female; D019398:Genes, BRCA1; D024522:Genes, BRCA2; D006801:Humans; D008408:Mastectomy / Q000523:psychology; D008875:Middle Aged; D009154:Mutation / Q000235:genetics; D010348:Patient Care Team; D010353:Patient Education as Topic / Q000592:standards; D017060:Patient Satisfaction; D011182:Postoperative Care / Q000592:standards; D036301:Qualitative Research; D058996:Quality Improvement / Q000592:standards; D011788:Quality of Life; D011792:Quebec; D012189:Retrospective Studies
keywords: BRCA1; BRCA2; breast cancer; organization of services; prophylactic mastectomy; qualitative study; satisfaction