title: African American children's perceptions of HIV-focused community-based participatory research.
abstract: We examined factors influencing informed assent, initial involvement, and ongoing involvement in HIV-focused CBPR research for African American children. Study participants (n = 170) were recruited from the Collaborative HIV and Adolescent Mental Health Project and completed an interview format designed to assess attitudes about research activities. Data were analyzed using a mixed-methods approach. Three themes emerged via quantitative and qualitative data analysis: (1) motivation for the child to participate in the research; (2) trust in researchers; and (3) understanding of the informed assent process. Findings from this study can help researchers develop procedures facilitating ethics boards to assess the appropriateness of child assent in HIV-focused community-based participatory research.
authors.affiliation: University of Southern California, Los Angeles, CA 91202, USA.
authors.forename: Dorian E
authors.initials: DE
authors.lastname: Traube
authors.forename: Julie A
authors.initials: JA
authors.lastname: Cederbaum
authors.forename: Dara
authors.initials: D
authors.lastname: Kerkorian
authors.forename: Chetan
authors.initials: C
authors.lastname: Bhupali
authors.forename: Mary M
authors.initials: MM
authors.lastname: McKay
mesh_terms: D001741:Black or African American; D001290:Attitude; D002648:Child; D055812:Community-Based Participatory Research / Q000941:ethics*; D032882:Comprehension; D003299:Cooperative Behavior; D032984:Ethics, Research; D005260:Female; D015658:HIV Infections; D006801:Humans; D007258:Informed Consent / Q000941:ethics*; D007407:Interviews as Topic; D008297:Male; D008603:Mental Health; D009042:Motivation; D010465:Perception; D012111:Residence Characteristics; D035502:Trust