title: Spanish family quality of life scales: under and over 18 years old.
abstract: BACKGROUND
  Researchers, professionals, and families have shown increasing concern with the family quality of life (FQoL) of people with intellectual disability (ID) and their families. The goals of this research were (a) to explore how Spanish families understand FQoL by developing 2 different measurement tools for families with a member with ID under and over 18 years old, and (b) to provide 2 diagnostic instruments that will be useful for designing action plans.
  
  
  METHODS
  The study comprised 4 stages: (a) focus groups, (b) expert assessment, (c) pilot study, and (d) normalisation and standardisation. The data were collected in 5 regions in Spain, and 1,205 families with a member with ID took part in the normalisation and standardisation of the scales.
  
  
  RESULTS
  Both FQoL scales were consistent and have valid psychometric characteristics.
  
  
  CONCLUSIONS
  The scales have a diagnostic purpose for use in designing action plans aimed at producing significant changes in families' lives.
authors.affiliation: Ramon Llull University, c/ Cister, 34, 08022 Barcelona, Spain. climentgg@blanquerna.url.edu
authors.forename: Climent
authors.initials: C
authors.lastname: Giné
authors.forename: Rosa
authors.initials: R
authors.lastname: Vilaseca
authors.forename: Marta
authors.initials: M
authors.lastname: Gràcia
authors.forename: Joaquín
authors.initials: J
authors.lastname: Mora
authors.forename: José Ramón
authors.initials: JR
authors.lastname: Orcasitas
authors.forename: Cecilia
authors.initials: C
authors.lastname: Simón
authors.forename: Ana María
authors.initials: AM
authors.lastname: Torrecillas
authors.forename: Francesc S
authors.initials: FS
authors.lastname: Beltran
authors.forename: Mariona
authors.initials: M
authors.lastname: Dalmau
authors.forename: Maria Teresa
authors.initials: MT
authors.lastname: Pro
authors.forename: Anna
authors.initials: A
authors.lastname: Balcells-Balcells
authors.forename: Joana Maria
authors.initials: JM
authors.lastname: Mas
authors.forename: Ana Luisa
authors.initials: AL
authors.lastname: Adam-Alcocer
authors.forename: David
authors.initials: D
authors.lastname: Simó-Pinatella
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D002648:Child; D006233:Persons with Disabilities / Q000523:psychology / Q000706:statistics & numerical data; D005190:Family / Q000523:psychology*; D005260:Female; D017144:Focus Groups; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D010865:Pilot Projects; D011594:Psychometrics / Q000295:instrumentation*; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology*; D012944:Social Support; D012959:Socioeconomic Factors; D013030:Spain; D011795:Surveys and Questionnaires; D055815:Young Adult