title: Stories of rediscovering agency: home-based occupational therapy for people with severe psychiatric disability.
abstract: As part of a larger study, we offered Everyday Life Rehabilitation (ELR) as a model for integrated occupational therapy in sheltered or supported housing facilities, to enable meaningful daily occupations for people with psychiatric disabilities. Our aim with this study was to understand how participants made sense of their occupational transformations in the context of their everyday life and life history. We carried out qualitative interviews and field observations with 16 participants with psychosis-related disorders. We used narrative analysis and disclosed stories of "rediscovering agency," referring to occupational and identity transformations. A parallel outcome study has shown positive results for participants, and by using narrative inquiry we contribute with a deeper understanding of the meaning making of their transformations and mechanisms of the intervention; i.e., hope, extended value of reaching goals, reentering the majority world, transparency of process, and attunement to the individual. The findings support the use of the ELR intervention.
authors.affiliation: Department of Community Medicine and Rehabilitation, Occupational Therapy, Umeå University, Umeå, Sweden.
authors.forename: Maria
authors.initials: M
authors.lastname: Lindström
authors.forename: Stefan
authors.initials: S
authors.lastname: Sjöström
authors.forename: Margareta
authors.initials: M
authors.lastname: Lindberg
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D005260:Female; D016352:Group Homes / Q000458:organization & administration* / Q000592:standards; D006699:Home Care Services; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D019370:Observation; D009788:Occupational Therapy / Q000379:methods* / Q000523:psychology; D017060:Patient Satisfaction; D011369:Professional-Patient Relations; D011618:Psychotic Disorders / Q000523:psychology / Q000534:rehabilitation*; D036301:Qualitative Research; D012559:Schizophrenia / Q000534:rehabilitation*; D012565:Schizophrenic Psychology; D013548:Sweden