title: The Domesday dataset: linked open data in disability studies.
abstract: Augmentative and alternative communication (AAC) devices provide the ability for many people with disabilities to make themselves understood. For the large proportion of users with an intellectual disability, these devices may be their only means of communication. Estimates of the number of AAC devices in use are vague and lack transparency. This prevents researchers from answering key questions like 'How many people per 1000 are using electronic AAC?' and 'On average, how much money would fund a person's AAC use for 12 months?'. This work presents the 'Domesday dataset', which allows researchers to answer research, policy, and prevalence questions on the landscape of AAC use within the United Kingdom. This dataset was constructed by making several hundred Freedom of Information requests. These requests asked public bodies who purchase AAC devices in the United Kingdom to supply details of every AAC purchase since 2006 including make, model, and year of purchase.
authors.affiliation: Royal Holloway, University of London, Egham Hill, Egham, Surrey, UK. joseph@cs.rhul.ac.uk
authors.forename: Joseph
authors.initials: J
authors.lastname: Reddington
mesh_terms: D022126:Access to Information; D015982:Bias; D003143:Communication Devices for People with Disabilities / Q000191:economics / Q000706:statistics & numerical data / Q000600:supply & distribution*; D003365:Costs and Cost Analysis; D003625:Data Collection / Q000706:statistics & numerical data*; D006801:Humans; D008607:Intellectual Disability / Q000191:economics / Q000534:rehabilitation*; D013222:State Medicine / Q000191:economics / Q000706:statistics & numerical data; D006113:United Kingdom; D014600:Utilization Review / Q000706:statistics & numerical data
keywords: AAC; freedom of information; intellectual disability; transparency in data