title: Hardships of end-of-life care with court-appointed guardians.
abstract: In the United States, the court-appointed guardians do not have the ability to make decisions regarding end-of-life (EOL) care for their clients. Additionally, the process of initiating EOL care measures can be slow and cumbersome, despite an existing process of getting approval for such care. This process has the potential to prolong suffering and delay imperative decisions. This article reviews the hardships that patients, court-appointed guardians, and health care staff endure while moving through the oppressive process of obtaining EOL care orders through the court. This article also proposes ways of tuning up the laws, regulations, and communications to make it easier and faster to obtain orders regarding EOL care to preserve the dignity of our patients and loved ones. "A guardianship is a legal relationship created when a person or institution named in a will or assigned by the court to take care of minor children or incompetent adults."
authors.affiliation: 1Department of Nursing, Washburn University, Topeka, KS, USA.
authors.forename: Kylie B
authors.initials: KB
authors.lastname: Hastings
mesh_terms: D003657:Decision Making; D006801:Humans; D007872:Legal Guardians / Q000331:legislation & jurisprudence*; D010166:Palliative Care / Q000331:legislation & jurisprudence; D013727:Terminal Care / Q000331:legislation & jurisprudence*; D014481:United States; D028761:Withholding Treatment / Q000331:legislation & jurisprudence
keywords: comfort care; end of life; guardianship; hospice; palliative care; surrogacy