title: Strategies used by teens growing up in families with Huntington disease.
abstract: The purpose of this study was to identify helpfulness of strategies used by teens growing up in families with Huntington disease (HD). Forty-four participants responded to a mailed HD Family Survey-Teens Strategies. Strategies were those with strong positive correlation between use and perceived helpfulness, and those with negative or inverse relationships. Obtaining information, thinking about or doing something else, and actions on behalf of the parent with HD were rated as highest use and perceived helpfulness. Emotional suppression had high use but low helpfulness. Participants reported using numerous helpful strategies. Social support was often unavailable to help manage teen concerns.
authors.affiliation: Behavioral and Social Science Research IRB-02, The University of Iowa, Iowa City, IA, USA.
authors.forename: Janet K
authors.initials: JK
authors.lastname: Williams
authors.forename: Martha
authors.initials: M
authors.lastname: Driessnack
authors.forename: J Jackson
authors.initials: JJ
authors.lastname: Barnette
authors.forename: Kathleen J H
authors.initials: KJ
authors.lastname: Sparbel
authors.forename: Anne
authors.initials: A
authors.lastname: Leserman
authors.forename: Sean
authors.initials: S
authors.lastname: Thompson
authors.forename: Jane S
authors.initials: JS
authors.lastname: Paulsen
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000294:Adolescent Behavior; D000328:Adult; D004644:Emotions; D005192:Family Health; D005260:Female; D006379:Helping Behavior; D006801:Humans; D006816:Huntington Disease; D008297:Male; D010287:Parent-Child Relations; D055815:Young Adult
keywords: Adolescence; Coping; Family; Huntington disease; Young adult