title: Use and sanctification of complementary and alternative medicine by parents of children with cystic fibrosis.
abstract: Complementary and alternative medicine (CAM) use, including spiritual modalities, is common in pediatric chronic diseases. However, few users discuss CAM treatments with their child's physician. Semi-structured interviews of 25 parents of children who have cystic fibrosis (CF) were completed. Primary themes were identified by thematic analyses. Most parents (19/25) used at least one CAM modality with their child. Only two reported discussing CAM use with their child's pulmonologist. Most reported prayer as helpful (81%) and multi-faceted, including individual and group prayer; using aromatherapy or scented candles as an adjunct for relaxation; and the child's sleeping with a blessed prayer. Parents ascribed sacred significance to natural oral supplements. CAM use is relevant to the majority of participating parents of children under age 13 with CF. Chaplains can play a significant role by reframing prayer's integration into chronic disease care, co-creating rituals with pediatric patients, and mediating conversations between parents and providers.
authors.affiliation: Division of Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio 45229, USA. grossoehme@cchmc.org
authors.forename: Daniel H
authors.initials: DH
authors.lastname: Grossoehme
authors.forename: Sian
authors.initials: S
authors.lastname: Cotton
authors.forename: Gary
authors.initials: G
authors.lastname: McPhail
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D000529:Complementary Therapies / Q000706:statistics & numerical data*; D003550:Cystic Fibrosis / Q000628:therapy*; D029221:Faith Healing; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010290:Parents / Q000523:psychology*; D010327:Pastoral Care; D011368:Professional-Family Relations; D036301:Qualitative Research; D055815:Young Adult
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