title: Haemophilia care in Europe - a survey of 35 countries.
abstract: A questionnaire was circulated in 2012 to national haemophilia patient organizations in Europe affiliated to the European Haemophilia Consortium (EHC) and the World Federation of Hemophilia (WFH) to seek information about the organization of haemophilia care and treatment available at a national level. The 35 responses received highlighted major differences in the availability of treatment and care. There was a wide range in factor VIII consumption with usage ranging from 0.20 IU per capita in Armenia to 8.56 IU per capita in Sweden (median: IU per capita). The decrease in health budgets in many countries was not matched by decreases in use of FVIII per capita. In the 19 countries that responded to the previous survey, there was a significant improvement in access to prophylaxis and home treatment.
authors.affiliation: Irish Haemophilia Society, Dublin, Ireland. brian@haemophilia.ie
authors.forename: B
authors.initials: B
authors.lastname: O'Mahony
authors.forename: D
authors.initials: D
authors.lastname: Noone
authors.forename: P L F
authors.initials: PL
authors.lastname: Giangrande
authors.forename: L
authors.initials: L
authors.lastname: Prihodova
mesh_terms: D003657:Decision Making; D005060:Europe / Q000453:epidemiology; D059066:Gross Domestic Product; D019538:Health Care Surveys; D006297:Health Services Accessibility / Q000706:statistics & numerical data; D006467:Hemophilia A / Q000453:epidemiology* / Q000276:immunology / Q000517:prevention & control / Q000628:therapy*; D006699:Home Care Services / Q000706:statistics & numerical data; D006801:Humans; D007108:Immune Tolerance / Q000276:immunology; D005791:Patient Care / Q000706:statistics & numerical data*; D012042:Registries / Q000706:statistics & numerical data; D013038:Specialization / Q000706:statistics & numerical data; D011795:Surveys and Questionnaires; D014842:von Willebrand Diseases / Q000628:therapy