title: The Last Mile: Using Fax Machines to Exchange Data between Clinicians and Public Health.
abstract: There is overlap in a wide range of activities to support both public health and clinical care. Examples include immunization registries (IR), newborn screening (NBS), disease reporting, lead screening programs, and more. Health information exchanges create an opportunity to share data between the clinical and public health environments, providing decision support to clinicians and surveillance and tracking information to public health. We developed mechanisms to support two-way communication between clinicians in the Indiana Health information Exchange (IHIE) and the Indiana State Department of Health (ISDH). This paper describes challenges we faced and design decisions made to overcome them. We developed systems to help clinicians communicate with the ISDH IR and with the NBS program. Challenges included (1) a minority of clinicians who use electronic health records (EHR), (2) lack of universal patient identifiers, (3) identifying physicians responsible for newborns, and (4) designing around complex security policies and firewalls. To communicate electronically with clinicians without EHRs, we utilize their fax machines. Our rule-based decision support system generates tailored forms that are automatically faxed to clinicians. The forms include coded input fields that capture data for automatic transfer into the IHIE when they are faxed back. Because the same individuals have different identifiers, and newborns' names change, it is challenging to match patients across systems. We use a stochastic matching algorithm to link records. We scan electronic clinical messages (HL7 format) coming into IHIE to find clinicians responsible for newborns. We have designed an architecture to link IHIE, ISDH, and our systems.
authors.affiliation: Children's Health Services Research, Indiana University ; Regenstrief Institute, Inc. Indianapolis, IN.
authors.forename: Stephen M
authors.initials: SM
authors.lastname: Downs
authors.forename: Vibha
authors.initials: V
authors.lastname: Anand
authors.forename: Meena
authors.initials: M
authors.lastname: Sheley
authors.forename: Shaun J
authors.initials: SJ
authors.lastname: Grannis
keywords: immunization; informatics; newborn; public health; registry health information exchange; screening