title: The development of practice guidelines for independent living donor advocates.
abstract: The practice recommendations discussed here are based on the findings of the national survey as well as the opinions of the authors. The recommendations that are proposed here are not exhaustive and are aspirational in intent and are likely to evolve with time. Practice guidelines are recommended for legal and regulatory issues (e.g., state or federal laws), consumer or public benefit (e.g., improving service delivery, avoiding harm to the patient, decreasing disparities in underserved or vulnerable populations), and for professional guidance (e.g., new role, professional risk management issues, advances in practice). Without such practice guidelines, donors, and indirectly the candidates, may be at increased risk for possible bias or undue harm.
authors.affiliation: Department of Surgery and Psychiatry, University of Pittsburgh School of Medicine, Pittsburgh, PA 15213, USA. steeljl@upmc.edu
authors.forename: Jennifer L
authors.initials: JL
authors.lastname: Steel
authors.forename: Andrea
authors.initials: A
authors.lastname: Dunlavy
authors.forename: Maranda
authors.initials: M
authors.lastname: Friday
authors.forename: Kendal
authors.initials: K
authors.lastname: Kingsley
authors.forename: Deborah
authors.initials: D
authors.lastname: Brower
authors.forename: Mark
authors.initials: M
authors.lastname: Unruh
authors.forename: Henkie
authors.initials: H
authors.lastname: Tan
authors.forename: Ron
authors.initials: R
authors.lastname: Shapiro
authors.forename: Mel
authors.initials: M
authors.lastname: Peltz
authors.forename: Melissa
authors.initials: M
authors.lastname: Hardoby
authors.forename: Christina
authors.initials: C
authors.lastname: McCloskey
authors.forename: Mark
authors.initials: M
authors.lastname: Sturdevant
authors.forename: Abhinav
authors.initials: A
authors.lastname: Humar
mesh_terms: D019538:Health Care Surveys; D006801:Humans; D007258:Informed Consent / Q000941:ethics; D019520:Living Donors / Q000941:ethics; D010344:Patient Advocacy / Q000191:economics / Q000193:education / Q000941:ethics / Q000592:standards*; D010358:Patient Participation; D017410:Practice Guidelines as Topic; D024382:Professional Role; D014481:United States