title: Focus group study of siblings of individuals with psychosis: views on designing an online psychoeducational resource.
abstract: Despite the strong evidence base for psychoeducation for families and caregivers, specific interventions targeting siblings of individuals affected by psychosis are lacking. A small but coherent body of research has identified that siblings often play an active role in their brother's or sister's care and recovery from psychosis, and siblings need robust and flexible psychoeducational resources. This study used focus groups involving 14 siblings to explore their views on the optimal content and design of such a resource using online delivery. Siblings suggested a number of content items for information giving, some similar to those identified from the wider literature on conventional psychoeducational intervention, whereas others are unique to siblings' needs. Focus group participants also highly valued an interactive peer discussion and support forum despite some concerns over its security and moderation. Considerations over delivery and logistics issues integral to the resource were highlighted as crucial in facilitating access and usage by siblings. When caring for people with psychosis, nurses should assess if the service users have siblings involved in their care and recovery plans and signpost siblings for resources and support.
authors.affiliation: Florence Nightingale School of Nursing & Midwifery, King's College London, London, England. Jacqueline.sin@kcl.ac.uk
authors.forename: Jacqueline
authors.initials: J
authors.lastname: Sin
mesh_terms: D000328:Adult; D017281:Cost of Illness; D004739:England; D005260:Female; D017144:Focus Groups; D006266:Health Education / Q000379:methods*; D006801:Humans; D020407:Internet; D008297:Male; D008875:Middle Aged; D010379:Peer Group; D011618:Psychotic Disorders / Q000451:nursing* / Q000523:psychology*; D012559:Schizophrenia / Q000451:nursing*; D012565:Schizophrenic Psychology; D012801:Sibling Relations; D012944:Social Support