title: Development and initial validation of the Perceptions of Parental Illness Questionnaire.
abstract: The Perceptions of Parental Illness Questionnaire was developed based on interviews with 15 adolescents with a parent with multiple sclerosis and refined using cognitive interviews. In total, 104 adolescents with a parent with multiple sclerosis then completed the Perceptions of Parental Illness Questionnaire and adjustment measures at two time points 6 months apart. Principal component analysis resulted in 11 Perceptions of Parental Illness Questionnaire sub-scales. Mixed-effect models showed that adolescents' perceptions of parental multiple sclerosis at baseline rather than disease severity were associated with their psychosocial well-being 6 months later. The results indicate that Perceptions of Parental Illness Questionnaire may be a reliable and valid measure of adolescents' representations of parents' multiple sclerosis. Further studies are needed to replicate these findings with other illness groups.
authors.affiliation: Southampton University, UK King's College London, UK angeliki.bogosian@kcl.ac.uk.
authors.forename: Angeliki
authors.initials: A
authors.lastname: Bogosian
authors.affiliation: Southampton University, UK.
authors.forename: Rona
authors.initials: R
authors.lastname: Moss-Morris
authors.affiliation: Southampton University, UK.
authors.forename: Felicity L
authors.initials: FL
authors.lastname: Bishop
authors.affiliation: Southampton University, UK.
authors.forename: Julie
authors.initials: J
authors.lastname: Hadwin
mesh_terms: D000293:Adolescent; D016241:Child of Impaired Parents / Q000523:psychology*; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D009103:Multiple Sclerosis; D010290:Parents; D011795:Surveys and Questionnaires / Q000592:standards*
keywords: adolescence; chronic illness; health psychology; illness perceptions