title: Sexuality of patients with chronic heart failure and their spouses and the need for information regarding sexuality.
abstract: BACKGROUND
  Psychological and physiological effects of chronic heart failure (CHF) can influence sexuality. Both CHF patients and their partners may experience changes and have questions about sexuality. Despite this, healthcare professionals give little information regarding sexuality. This may be due to the paucity of literature describing patients' concerns and questions about sexuality and CHF.
  
  
  OBJECTIVE
  The aims of this study were to describe the sexuality of patients and their partners and to describe their needs for information regarding sexuality.
  
  
  METHODS
  A prospective, descriptive cross-sectional design was used. A convenience sample was obtained in three hospitals (Belgian and the Netherlands). Patients and partners completed two questionnaires: Sexual Adjustment Scale (SAS) and the Needs of Sexual Counseling Scale for Chronic Heart Failure (NSCS-CHF).
  
  
  RESULTS
  There were 52 patients and 32 partners who participated in the study. No or slight disturbance was seen in sexual discussions and intimacy. Marked or serious disturbance was reported in sexual activity. A mixed profile was seen in sexual performance, sexual interest and sexual pleasure. The majority of patients with CHF and their partners want information regarding sexuality. The NSCS-CHF clearly identified the information needs of patients and partners and most needs concerned the areas of symptoms, the relationship and relaxation.
  
  
  CONCLUSIONS
  The questionnaires were easy to complete and changes in sexuality and information needs were identified. The NSCS-CHF needs further validation as a research instrument. Healthcare professionals can use both questionnaires to bring up the topic of sexuality and to identify topics that require further discussion or counselling with patients and partners.
authors.affiliation: 1Albert Schweitzer Hospital, Netherlands.
authors.forename: Anne Geert van
authors.initials: AG
authors.lastname: Driel
authors.forename: Michèle Jeanne Jef
authors.initials: MJ
authors.lastname: de Hosson
authors.forename: Claudia
authors.initials: C
authors.lastname: Gamel
mesh_terms: D000368:Aged; D002908:Chronic Disease; D003376:Counseling / Q000379:methods; D005260:Female; D006333:Heart Failure / Q000451:nursing / Q000503:physiopathology* / Q000523:psychology*; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D010353:Patient Education as Topic / Q000379:methods*; D057240:Patient Preference / Q000523:psychology; D017060:Patient Satisfaction; D011446:Prospective Studies; D019529:Sexuality / Q000523:psychology*; D018454:Spouses / Q000193:education / Q000523:psychology*; D011795:Surveys and Questionnaires
keywords: Chronic heart failure; information needs; partners; sexuality