title: Use of the International Classification of Functioning, Disability and Health (ICF) to describe patient-reported disability in primary brain tumour in an Australian community cohort.
abstract: OBJECTIVE
  To describe patient-reported disability in primary brain tumours using the International Classification of Functioning, Disability and Health (ICF); and comparison with categories within the core sets for stroke and traumatic brain injury.
  
  
  METHODS
  A prospective community cross-sectional survey (n = 106) following definitive treatment for primary brain tumours. Problems reported by participants were linked with ICF categories using 'linkage' rules. Participants rated 'activities and participation' and 'environmental factor' components of ICF checklist (using qualifiers); and responses compared with categories within core sets for stroke and traumatic brain injury.
  
  
  RESULTS
  Participant mean age 51 years, median time since diagnosis 2 years; over a third had high grade tumours. Participants considered 44 categories in 'activities and participation' and 16 categories (barriers) in 'environmental factors' as relevant (≥ 10% response) using checklist. Reported problems included: Mobility, Domestic life, General tasks/ demands; and Human made changes to environment. Although the linked categories for brain tumour survivors were similar to those in the core sets for stroke and traumatic brain injury, there was more commonality with the traumatic brain injury core set.
  
  
  CONCLUSIONS
  The existing comprehensive stroke and traumatic brain injury core sets incorporate issues relevant to brain tumour survivors in post-acute settings. Findings from this report will assist in defining a future core set for brain tumour; the possibility however, of using a single core set relevant to most long-term neurological conditions needs to be explored.
authors.affiliation: Department of Rehabilitation Medicine, Royal, Melbourne Hospital, Poplar Road, Parkville, Melbourne VIC 3052, Australia. fary.khan@mh.org.au
authors.forename: Fary
authors.initials: F
authors.lastname: Khan
authors.forename: Bhasker
authors.initials: B
authors.lastname: Amatya
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D001315:Australia; D001932:Brain Neoplasms / Q000150:complications* / Q000534:rehabilitation / Q000628:therapy; D003430:Cross-Sectional Studies; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D064702:International Classification of Functioning, Disability and Health; D008297:Male; D008875:Middle Aged; D017063:Outcome Assessment, Health Care; D011446:Prospective Studies; D057566:Self Report; D055815:Young Adult