title: One facility's experience in reframing nonfeeding into a comprehensive palliative care model.
abstract: In Western culture, feeding is viewed as symbolic of life, and nonfeeding at the end of life is often considered unacceptable. This sentiment is magnified for infants. Reframing nonfeeding into comprehensive care can be achieved by anticipatory guidance, which can make the experience of infant death meaningful for parents. Since 2004, the George Mark Children's House, an inpatient pediatric palliative care center, has offered this model of care and supported families with challenging clinical experiences. A case study is provided.
authors.affiliation: George Mark Children's House, 2121 George Mark Lane, San Leandro, CA 94578, USA.
authors.forename: Claire
authors.initials: C
authors.lastname: Vesely
authors.forename: Barbara
authors.initials: B
authors.lastname: Beach
mesh_terms: D001293:Attitude to Death; D001601:Bereavement; D003191:Comprehensive Health Care / Q000458:organization & administration*; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D017146:Models, Organizational; D010166:Palliative Care / Q000458:organization & administration*; D010372:Pediatrics / Q000458:organization & administration; D018743:Perinatal Care / Q000458:organization & administration*; D011247:Pregnancy; D011368:Professional-Family Relations; D012944:Social Support