title: "I can't do this, it's too much": building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers.
abstract: OBJECTIVE
  Social inclusion theory has been used to understand how people at the margins of society engage with service provision. The aim of this paper was to explore the cancer care experiences of Aboriginal people in NSW using a social inclusion lens.
  
  
  METHODS
  Qualitative interviews were conducted with 22 Aboriginal people with cancer, 18 carers of Aboriginal people and 16 health care workers.
  
  
  RESULTS
  Participants' narratives described experiences that could be considered to be situational factors in social inclusion such as difficulties in managing the practical and logistic aspects of accessing cancer care. Three factors were identified as processes of social inclusion that tied these experiences together including socio-economic security, trust (or mistrust arising from historic and current experience of discrimination), and difficulties in knowing the system of cancer treatment.
  
  
  CONCLUSIONS
  These three factors may act as barriers to the social inclusion of Aboriginal people in cancer treatment. This challenges the cancer care system to work to acknowledge these forces and create practical and symbolic responses, in partnership with Aboriginal people, communities and health organisations.
authors.affiliation: National Centre in HIV Social Research, University of New South Wales, Sydney, NSW, 2052, Australia, c.treloar@unsw.edu.au.
authors.forename: Carla
authors.initials: C
authors.lastname: Treloar
authors.forename: Rebecca
authors.initials: R
authors.lastname: Gray
authors.forename: Loren
authors.initials: L
authors.lastname: Brener
authors.forename: Clair
authors.initials: C
authors.lastname: Jackson
authors.forename: Veronica
authors.initials: V
authors.lastname: Saunders
authors.forename: Priscilla
authors.initials: P
authors.lastname: Johnson
authors.forename: Magdalena
authors.initials: M
authors.lastname: Harris
authors.forename: Phyllis
authors.initials: P
authors.lastname: Butow
authors.forename: Christy
authors.initials: C
authors.lastname: Newman
mesh_terms: D000328:Adult; D000368:Aged; D005260:Female; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000175:diagnosis / Q000208:ethnology* / Q000628:therapy; D009517:New South Wales; D010342:Patient Acceptance of Health Care / Q000208:ethnology* / Q000523:psychology; D036301:Qualitative Research; D062487:Social Marginalization