title: Shifting patterns of everyday activity in early dementia: experiences of men and their families.
abstract: In this article we draw from a larger study to examine experiences of two men and their families as they negotiate changing patterns of everyday activity in the months after receiving a diagnosis of dementia. We conducted in-depth interpretive phenomenological analysis of interview and observational data that were gathered from the men and various members of their families (n = 7) over a period several months. Findings are presented as three themes: The best kind of man (highlighting participants' historical positioning); It's a little different now (recognizing challenges posed by the dementia); and You have to do something (showing how the men and their families responded to and accommodated these challenges). We discuss these findings in terms of how everyday activity is not only important for supporting personhood in dementia, but it also contributes to sustaining family identity, and does so in a way that is deeply influenced by gender and masculinity.
authors.affiliation: University of British Columbia School of Nursing, Vancouver, BC, Canada. alison.phinney@nursing.ubc.ca
authors.forename: Alison
authors.initials: A
authors.lastname: Phinney
authors.forename: Sherry
authors.initials: S
authors.lastname: Dahlke
authors.forename: Barbara
authors.initials: B
authors.lastname: Purves
mesh_terms: D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000368:Aged; D000369:Aged, 80 and over; D002170:Canada; D003704:Dementia / Q000523:psychology*; D005195:Family Relations; D005260:Female; D005783:Gender Identity; D006801:Humans; D008297:Male; D057228:Masculinity; D033262:Narration; D028723:Personhood; D036301:Qualitative Research; D012933:Social Identification; D018454:Spouses / Q000523:psychology
keywords: dementia; family identity; gender; personhood