title: Associations between Japanese people's concern about family caregiver burden and preference for end-of-life care location.
abstract: Through a cross-sectional nationwide survey, this study identified the associations between Japanese people's choice of end-of-life care location and their sense of being a burden or a source of concern to their family members. A total of 1,042 people responded to the survey (a response rate of 55 percent). Of these, 44 percent said they would prefer to receive end-of-life care at home, 15 percent in hospital, 19 percent in a palliative care unit, 10 percent in a public nursing home, and 2 percent in a private nursing home. Multinomial logistic regression analysis revealed that those who thought it most important to relieve caregiver burden on family members tended to prefer a palliative care unit or a public nursing home to their own homes; those who were most concerned about the effect their death would have on their family members tended to prefer a hospital or a palliative care unit to their own homes. These findings may assist in the development of a more effective end-of-life care system in Japan and in other countries.
authors.affiliation: Department of Community Health Nursing, Graduate School of Nursing, Japanese Red Cross University, 4-1-3 Hiroo, Shibuya-ku, Tokyo 150-0012, Japan. sfukui@redcross.ac.jp
authors.forename: Sakiko
authors.initials: S
authors.lastname: Fukui
authors.forename: Junko
authors.initials: J
authors.lastname: Fujita
authors.forename: Kazuhiro
authors.initials: K
authors.lastname: Yoshiuchi
mesh_terms: D000328:Adult; D000368:Aged; D044466:Asian People / Q000523:psychology; D017028:Caregivers; D017281:Cost of Illness; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D007564:Japan; D016015:Logistic Models; D008297:Male; D008875:Middle Aged; D015999:Multivariate Analysis; D010166:Palliative Care; D057240:Patient Preference / Q000208:ethnology; D013727:Terminal Care