title: Communication and information needs of women diagnosed with ovarian cancer regarding treatment-focused genetic testing.
abstract: OBJECTIVE
  To identify women's information and communication preferences about treatment-focused genetic testing (TFGT) in the ovarian cancer context.
  
  
  METHODS
  A qualitative interview study.
  
  
  METHODS
  Two familial cancer services and a gynecologic oncology clinic at a major teaching hospital in Australia.
  
  
  METHODS
  22 women diagnosed with ovarian cancer who had either advanced disease and had previously undergone TFGT (n = 12) or had been diagnosed in the previous 6-20 weeks with ovarian cancer and had not undergone TFGT (n = 10).
  
  
  METHODS
  Participants were interviewed individually about actual and hypothetical views of TFGT. The interviews were transcribed and organized into themes using qualitative analysis software.
  
  
  RESULTS
  Most women wanted to be informed about TFGT prior to their surgery for ovarian cancer. The majority preferred to receive the information verbally; slightly more women preferred their medical oncologist to deliver the information compared to a genetic specialist or oncology nurse. Women preferred the focus of pretest information to be on them and their treatment.
  
  
  CONCLUSIONS
  Women diagnosed with ovarian cancer want information about genetic testing early with focus placed on the potential benefits of genetic testing on treatment.
  
  
  CONCLUSIONS
  The findings of this study provide much-needed guidance to oncology nurses and other oncology healthcare professionals about when, what, and how information about TFGT should be delivered to patients diagnosed with ovarian cancer. Supportive patient education materials now need to be developed to assist these women in making informed decisions about genetic testing.
  
  
  CONCLUSIONS
  Knowing that women do want TFGT, how they want it presented and by whom, and the content and level of detail that women want means that TFGT can now be presented as an option to women newly diagnosed with ovarian cancer, which may influence firstline treatment. The findings also provide the knowledge required to prepare education tools to assist oncology nurses involved in frontline care.
authors.affiliation: Hunter Family Cancer Service, Newcastle.
authors.forename: Margaret
authors.initials: M
authors.lastname: Gleeson
authors.forename: Bettina
authors.initials: B
authors.lastname: Meiser
authors.forename: Kristine
authors.initials: K
authors.lastname: Barlow-Stewart
authors.forename: Alison H
authors.initials: AH
authors.lastname: Trainer
authors.forename: Kathy
authors.initials: K
authors.lastname: Tucker
authors.forename: Kaaren J
authors.initials: KJ
authors.lastname: Watts
authors.forename: Michael
authors.initials: M
authors.lastname: Friedlander
authors.forename: Nadine
authors.initials: N
authors.lastname: Kasparian
mesh_terms: D000328:Adult; D000368:Aged; D003142:Communication; D005260:Female; D005820:Genetic Testing; D006801:Humans; D008875:Middle Aged; D020380:Needs Assessment; D009859:Oncology Nursing / Q000379:methods*; D010051:Ovarian Neoplasms / Q000235:genetics / Q000451:nursing / Q000523:psychology; D010353:Patient Education as Topic; D057240:Patient Preference; D036301:Qualitative Research