title: [Experiences of patients with neurofibromatosis type 1 and their families or caregivers].
authors.affiliation: Krankenpflegerin Gerundheitsbezirk Bozen Südtirol - Italien.
authors.forename: Evelyn
authors.initials: E
authors.lastname: Morandell
authors.forename: Michela
authors.initials: M
authors.lastname: Salandin
authors.forename: Franco
authors.initials: F
authors.lastname: Mantovan
mesh_terms: D000293:Adolescent; D001828:Body Image; D017028:Caregivers / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D059350:Chronic Pain / Q000175:diagnosis / Q000451:nursing / Q000523:psychology; D017281:Cost of Illness; D003866:Depressive Disorder / Q000175:diagnosis / Q000451:nursing / Q000523:psychology; D033062:Friends / Q000523:psychology; D006801:Humans; D009456:Neurofibromatosis 1 / Q000150:complications / Q000175:diagnosis / Q000451:nursing* / Q000523:psychology*; D009733:Nursing Diagnosis; D011613:Psychotherapy; D011788:Quality of Life / Q000523:psychology; D012649:Self Concept; D012917:Social Adjustment; D012933:Social Identification; D012944:Social Support