title: The needs of hospitalized patients with autism spectrum disorders: a parent survey.
abstract: OBJECTIVE
  This survey assessed the in-hospital needs of patients diagnosed with autism spectrum disorders (ASDs).
  
  
  METHODS
  Parents were recruited to complete a 21-item survey about the needs of their child with an ASD while in the hospital. ASD diagnosis was reported by parents at the time of the survey. The results of the survey were analyzed and evaluated in 3 distinct categories of need.
  
  
  RESULTS
  We documented a range of responses associated with ASD-specific needs during hospitalization. Common concerns included child safety and the importance of acknowledging individual communication methods.
  
  
  CONCLUSIONS
  In a population of children with ASDs, parents report a diverse range of needs while in the hospital. These data support the concept that a pragmatic assessment of individual communication and sensory differences is likely to be essential in the development of an appropriate inpatient care plan.
authors.affiliation: Harvard Medical School, Boston, MA 02114, USA. Kimberly_kopecky@hms.harvard.edu
authors.forename: Kimberly
authors.initials: K
authors.lastname: Kopecky
authors.forename: Sarabeth
authors.initials: S
authors.lastname: Broder-Fingert
authors.forename: Dorothea
authors.initials: D
authors.lastname: Iannuzzi
authors.forename: Susan
authors.initials: S
authors.lastname: Connors
mesh_terms: D000293:Adolescent; D000298:Adolescent, Hospitalized / Q000523:psychology*; D000328:Adult; D000367:Age Factors; D002648:Child; D002659:Child Development Disorders, Pervasive / Q000523:psychology*; D002673:Child, Hospitalized / Q000523:psychology*; D002675:Child, Preschool; D003142:Communication; D005260:Female; D019538:Health Care Surveys; D006769:Hospitals, General; D006801:Humans; D008297:Male; D008404:Massachusetts; D008875:Middle Aged; D020380:Needs Assessment; D010290:Parents; D061214:Patient Safety; D011369:Professional-Patient Relations; D058996:Quality Improvement; D055815:Young Adult
keywords: autism; hospitalization; inpatient; parent; survey