title: From qualitative work to intervention development in pediatric oncology palliative care research.
abstract: Qualitative methods can be particularly useful approaches to use with individuals who are experiencing a rare disease and thus who comprise a small sample (such as children with cancer) and are at points in care that few experience (such as end of life). This data-based methods article describes how findings from a qualitative study were used to guide and shape a pediatric oncology palliative care intervention. Qualitative data can lay a strong foundation for subsequent pilot intervention work by facilitating the development of an underlying study conceptualization, providing recruitment feasibility estimates, helping establish clinically meaningful inclusion criteria, establishing staff acceptability of a research intervention, and providing support for face validity of newly developed interventions. These benefits of preliminary qualitative research are described in the context of this study on legacy-making, which involves reports of children (7-12 years of age) living with advanced cancer and of their parent caregivers.
authors: Vanderbilt University School of Nursing, Nashville, TN 37240, USA. terrah.l.foster@vanderbilt.edu
authors: Terrah Foster
authors: TF
authors: Akard
authors: Mary Jo
authors: MJ
authors: Gilmer
authors: Debra L
authors: DL
authors: Friedman
authors: Barbara
authors: B
authors: Given
authors: Verna L
authors: VL
authors: Hendricks-Ferguson
authors: Pamela S
authors: PS
authors: Hinds
mesh_terms: D017028:Caregivers; D002648:Child; D006801:Humans; D009369:Neoplasms / Q000451:nursing / Q000628:therapy*; D010166:Palliative Care; D036301:Qualitative Research
keywords: intervention development; pediatric oncology; pediatric palliative care; qualitative
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