title: Health care autonomy in children with chronic conditions: implications for self-care and family management.
abstract: Health care autonomy typically occurs during late adolescence but health care providers and families often expect children with chronic health conditions to master self-care earlier. Few studies have examined the development of health care autonomy as it pertains to self-care and family management. This review links the 3 concepts and discusses the implications for families and health care providers. Case studies are provided as exemplars to highlight areas where intervention and research is needed.
authors: Center for Health Equity Research, University of Pennsylvania School of Nursing, Room 243 (2Lower) Claire M. Fagin Hall, 418 Curie Boulevard, Philadelphia, PA 19104-4217, USA. Electronic address: blynne@nursing.upenn.edu.
authors: Barbara L
authors: BL
authors: Beacham
authors: Janet A
authors: JA
authors: Deatrick
mesh_terms: D000293:Adolescent; D001249:Asthma / Q000451:nursing / Q000523:psychology / Q000628:therapy; D002648:Child; D002657:Child Development; D002908:Chronic Disease / Q000451:nursing / Q000523:psychology / Q000628:therapy*; D003550:Cystic Fibrosis / Q000451:nursing / Q000523:psychology / Q000628:therapy; D003922:Diabetes Mellitus, Type 1 / Q000451:nursing / Q000523:psychology / Q000628:therapy; D022143:Family Nursing; D005260:Female; D006801:Humans; D008297:Male; D016294:Models, Nursing; D016487:Parenting; D026684:Personal Autonomy; D012648:Self Care / Q000523:psychology; D012944:Social Support; D060305:Transition to Adult Care; D014481:United States
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