title: Developing a family-based HIV prevention intervention in rural Kenya: challenges in conducting community-based participatory research.
abstract: Community-Based Participatory research (CBPR) introduces new ethical challenges for HIV prevention studies in low-resource international settings. We describe a CBPR study in rural Kenya to develop and pilot a family-based HIV prevention and mental health promotion intervention. Academic partners (APs) worked with a community advisory committee (CAC) during formative research, intervention development, and a pilot trial. Ethical challenges emerged related to: negotiating power imbalances between APs and the CAC; CAC members' shifting roles as part of the CAC and wider community; and anticipated challenges in decision making about sustainability. Factors contributing to ethical dilemmas included low access to education, scarcity of financial resources, and the shortage of HIV-related services despite high prevalence.
authors: Department of Psychology and Neuroscience, Duke University, Durham, NC 27708, USA. eve.puffer@duke.edu
authors: Eve S
authors: ES
authors: Puffer
authors: Jessica
authors: J
authors: Pian
authors: Kathleen J
authors: KJ
authors: Sikkema
authors: Rose A
authors: RA
authors: Ogwang-Odhiambo
authors: Sherryl A
authors: SA
authors: Broverman
mesh_terms: D026683:Advisory Committees; D019058:Community Networks; D055812:Community-Based Participatory Research / Q000941:ethics*; D003159:Community-Institutional Relations; D003299:Cooperative Behavior; D003657:Decision Making; D005190:Family; D015658:HIV Infections / Q000517:prevention & control*; D006293:Health Promotion / Q000941:ethics*; D006295:Health Resources; D006801:Humans; D007630:Kenya; D008603:Mental Health; D011209:Power, Psychological; D011314:Preventive Health Services / Q000941:ethics*; D012111:Residence Characteristics; D012380:Role; D012424:Rural Population
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