title: Potential motivations for and perceived risks in research participation: ethics in health research.
abstract: In a South African urban-township-based ethnographic study with adult 19 women and 7 men, we explored people's motivations for and experiences of research participation and perceptions of being asked about sensitive experiences, including gender-based violence. We also explored the implications of participation. Several informants were motivated by self-interest to participate in research, whereas others were more altruistic; yet with many there was a complex overlap. We found that altruism, as a motivation to participate in research, is a muddled and multifaceted issue that needs careful unpacking and nuanced discussion to understand. Breach of confidentiality was perceived as a main risk, and gender differences were apparent in reporting feared consequences, with women primarily fearing possible violent reprisals from partners. We conclude that the decision to participate in research seems to be a balanced and conditional process wherein individuals assess the potential benefits and risks to themselves and the potential contribution to others.
authors: Medical Research Council, Pretoria, South Africa. ysikweyiya@mrc.ac.za
authors: Yandisa
authors: Y
authors: Sikweyiya
authors: Rachel
authors: R
authors: Jewkes
mesh_terms: D000367:Age Factors; D003219:Confidentiality; D005260:Female; D006306:Health Surveys / Q000941:ethics*; D006801:Humans; D008297:Male; D009042:Motivation; D035842:Research Subjects / Q000523:psychology*; D012307:Risk Factors; D012737:Sex Factors; D013019:South Africa; D013179:Spouse Abuse / Q000523:psychology*
keywords: Africa, South; altruism; research participation; risk, perceptions; sensitive topics