title: [Psychological aspects in adult congenital heart disease patients].
abstract: Patients with congenital heart disease mostly owe their survival to a saving chirurgical intervention which confers them a survivor's identity. The relationships between parents and children are strongly influenced by these early events. The effort made by parents to allow a good quality of life to their child is often successful. However, difficulties to anticipate late complications are frequently observed in adolescents and young adult patients. In adulthood, these patients seem to discover suddenly their disease, its consequences and the necessity of long term follow-up. The coexistence of several changes, i.e adolescence, change of medical team, transfer of parental decision to the young adult own decision make this period a vulnerable way. An adapted multidisciplinary support aimed to a real transition may limit the risks of breaking off and better organize long term follow-up.
authors.affiliation: Psychologie et psychiatrie de liaison et d'urgences, service universitaire de psychiatrie de l'adulte et du sujet âgé, Hôpital européen Georges-Pompidou, 75015 Paris, France. khadija.lahlou-laforet@egp.aphp.fr
authors.forename: Khadija
authors.initials: K
authors.lastname: Lahlou-Laforêt
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D006330:Heart Defects, Congenital / Q000523:psychology*; D006801:Humans