title: Practical approach to self-administration of intravenous C1-INH concentrate: a nursing perspective.
abstract: At an international hereditary angioedema (HAE) expert meeting, results from a survey were used to guide discussion on how best to advise patients on self-administering intravenous C1 esterase inhibitor therapy. Treatment differences across Europe were highlighted, together with the practicalities of self-administration and useful resources for patients in the future. The international HAE experts noted an increase in the uptake of self-administration, with patients being trained by nursing staff. All patients who are willing and able to self-administer should be offered this treatment option and patients should be encouraged to treat attacks early. Several initiatives were suggested regarding support for patients who self-administer therapy, including a 24-hour helpline and home care agencies.
authors.affiliation: Derriford Hospital, Plymouth, UK. Christine.symons1@nhs.net
authors.forename: C
authors.initials: C
authors.lastname: Symons
authors.forename: O
authors.initials: O
authors.lastname: Rossi
authors.forename: M
authors.initials: M
authors.lastname: Magerl
authors.forename: K
authors.initials: K
authors.lastname: Andritschke
mesh_terms: D054179:Angioedemas, Hereditary / Q000188:drug therapy* / Q000451:nursing*; D003174:Complement C1 Inactivator Proteins / Q000008:administration & dosage*; D005060:Europe; D006801:Humans; D010353:Patient Education as Topic / Q000379:methods / Q000592:standards; D012646:Self Administration / Q000379:methods / Q000451:nursing; D011795:Surveys and Questionnaires
chemical_list: D003174:Complement C1 Inactivator Proteins