title: Clinical experience and psychometric properties of the Children's Dermatology Life Quality Index (CDLQI), 1995-2012.
abstract: The Children's Dermatology Life Quality Index (CDLQI) is a widely used questionnaire to measure the quality of life of children aged from 4 to 16 years. The purpose of this review is to summarize all published data regarding the clinical experience of the CDLQI and its psychometric properties as a single reference source for potential users. A literature search was carried out to identify all articles describing the use of the CDLQI from 1995 to November 2012. One hundred and six articles were identified, with four excluded. The CDLQI has been used in 28 countries in 102 clinical studies and is available in 44 languages, including six cultural adaptations; a cartoon version is available in 10 languages. It has been used in 14 skin conditions and used in the assessment of 11 topical drugs, nine systemic drugs, 13 therapeutic interventions and two epidemiological and other studies. There is evidence of high internal consistency, test-retest reliability, responsiveness to change, and significant correlation with other subjective and objective measures. Rasch analysis has not been carried out and more information is needed concerning minimal clinically important difference; these are areas requiring further study.
authors.affiliation: Centre for Socioeconomic Research, Cardiff School of Pharmacy and Pharmaceutical Sciences, Cardiff University, Cardiff, U.K.
authors.forename: M S
authors.initials: MS
authors.lastname: Salek
authors.forename: S
authors.initials: S
authors.lastname: Jung
authors.forename: L A
authors.initials: LA
authors.lastname: Brincat-Ruffini
authors.forename: L
authors.initials: L
authors.lastname: MacFarlane
authors.forename: M S
authors.initials: MS
authors.lastname: Lewis-Jones
authors.forename: M K A
authors.initials: MK
authors.lastname: Basra
authors.forename: A Y
authors.initials: AY
authors.lastname: Finlay
mesh_terms: D000284:Administration, Oral; D002648:Child; D003469:Culture; D003879:Dermatologic Agents / Q000008:administration & dosage; D014943:Global Health; D006305:Health Status Indicators; D006801:Humans; D011594:Psychometrics; D011788:Quality of Life; D015203:Reproducibility of Results; D012720:Severity of Illness Index; D012871:Skin Diseases / Q000523:psychology* / Q000628:therapy; D011795:Surveys and Questionnaires; D014177:Translations
chemical_list: D003879:Dermatologic Agents