title: Current status of implementation of self-administration training in various regions of Europe, Canada and the USA in the management of hereditary angioedema.
abstract: Results from a 16-question survey about self-administration of hereditary angioedema (HAE) therapy, administered in Europe, Canada and the USA, were used to guide discussion at an international HAE expert meeting. The aim was to capture information about current practice in self-administered HAE therapy in these countries, including self-administration training, the key benefits of switching to self-administration, the barriers to self-administration and trends in self-administration. Overall, switching to self-administration therapy is looked upon favourably from both patient and clinician perspectives by virtue of the potential improvement in quality of life arising from optimisation of therapy and early intervention. The recent changes to product licences allowing self-administration provide additional options for the management of HAE.
authors.affiliation: Hospital La Paz Institute for Health Research (IdiPaz), Madrid, Spain. mteresa.caballero @ idipaz.es
authors.forename: T
authors.initials: T
authors.lastname: Caballero
authors.forename: A
authors.initials: A
authors.lastname: Sala-Cunill
authors.forename: M
authors.initials: M
authors.lastname: Cancian
authors.forename: T J
authors.initials: TJ
authors.lastname: Craig
authors.forename: S
authors.initials: S
authors.lastname: Neri
authors.forename: P K
authors.initials: PK
authors.lastname: Keith
authors.forename: I
authors.initials: I
authors.lastname: Boccon-Gibod
authors.forename: C
authors.initials: C
authors.lastname: Bethune
authors.forename: K
authors.initials: K
authors.lastname: Bork
mesh_terms: D054179:Angioedemas, Hereditary / Q000188:drug therapy*; D002170:Canada; D050718:Complement C1 Inhibitor Protein / Q000008:administration & dosage*; D005060:Europe; D006801:Humans; D010353:Patient Education as Topic / Q000379:methods*; D012646:Self Administration / Q000379:methods* / Q000592:standards; D011795:Surveys and Questionnaires; D014481:United States
chemical_list: D050718:Complement C1 Inhibitor Protein