title: Challenges of C1-inhibitor concentrate self-administration.
abstract: Self-administration of therapy can help hereditary angioedema (HAE) patients regain control of their disease or reduce its impact and improve the quality of their lives. However, data from a self-administration survey, and subsequent discussion at an international HAE expert meeting, identified several barriers to self-administration therapy. These barriers include difficulty in administration technique, availability of nursing resources and the mental capacity of the patient. Encouragingly, international HAE experts identified that once a patient has acquired self-administration skills, they generally retain them in the long-term. As patient uptake increases, it was recommended that follow-up management plans should be established to address any issues from the patient's perspective.
authors.affiliation: HAEi, Aarhus, Denmark. h.boysen @ haei.org
authors.forename: H B
authors.initials: HB
authors.lastname: Boysen
authors.forename: L
authors.initials: L
authors.lastname: Bouillet
authors.forename: E
authors.initials: E
authors.lastname: Aygören-Pürsün
mesh_terms: D054179:Angioedemas, Hereditary / Q000188:drug therapy* / Q000523:psychology*; D050718:Complement C1 Inhibitor Protein / Q000008:administration & dosage*; D006801:Humans; D011788:Quality of Life; D012646:Self Administration / Q000379:methods / Q000523:psychology
chemical_list: D050718:Complement C1 Inhibitor Protein