title: Challenges to the involvement of people living with HIV in community-based HIV/AIDS organizations in Ontario, Canada.
abstract: The Greater Involvement of People Living with HIV/AIDS Principle (GIPA) has been a core commitment for many people involved in the community-based HIV/AIDS movement. GIPA refers to the inclusion of people living with HIV/AIDS in service delivery and decision-making processes that affect their lives. Despite its central importance to the movement, it has received little attention in the academic literature. Drawing on focus group discussions among staff members and volunteers of AIDS service organizations, activists, and community members, we explore challenges to the implementation of the GIPA principle in community-based HIV/AIDS organizations in Ontario, Canada. Our findings reveal ways in which implementing GIPA has become more complicated over recent years. Challenges relating to health, stigma and disclosure, evolving HIV/AIDS organizations, and GIPA-related tensions are identified. This paper considers our findings in light of previous research, and suggests some implications for practice.
authors.affiliation: a School of Social Work , McMaster University , Hamilton , Canada.
authors.forename: Roy
authors.initials: R
authors.lastname: Cain
authors.forename: Evan
authors.initials: E
authors.lastname: Collins
authors.forename: Tarik
authors.initials: T
authors.lastname: Bereket
authors.forename: Clemon
authors.initials: C
authors.lastname: George
authors.forename: Randy
authors.initials: R
authors.lastname: Jackson
authors.forename: Alan
authors.initials: A
authors.lastname: Li
authors.forename: Tracey
authors.initials: T
authors.lastname: Prentice
authors.forename: Robb
authors.initials: R
authors.lastname: Travers
mesh_terms: D000293:Adolescent; D000328:Adult; D003153:Community Health Services / Q000458:organization & administration*; D003657:Decision Making; D005260:Female; D017144:Focus Groups; D015658:HIV Infections / Q000453:epidemiology / Q000523:psychology*; D007722:Health Knowledge, Attitudes, Practice; D006291:Health Policy; D006801:Humans; D008297:Male; D008875:Middle Aged; D009864:Ontario / Q000453:epidemiology; D010342:Patient Acceptance of Health Care / Q000523:psychology* / Q000706:statistics & numerical data; D016730:Program Development; D015397:Program Evaluation; D057545:Social Stigma; D014342:Truth Disclosure