title: [Translation and validation of the Egen Klassifikation scale for the Spanish population: functional assessment for non-ambulatory individuals with Duchenne's muscular dystrophy and spinal muscular atrophy].
abstract: BACKGROUND
  The Egen Klassifikation (EK) scale is a questionnaire that assesses the functional capacity of people with Duchenne muscular dystrophy and spinal muscular atrophy who can't walk and use a wheelchair.
  
  
  OBJECTIVE
  To translate and validate the scale for the Spanish population as a tool for measuring functional capacity in these patients.
  
  
  METHODS
  We performed first a translation-back translation of EK in the Spanish population and subsequently practiced reliability study of Spanish translated version of the scale. It held three measurements in 30 patients aged 4 to 67 years. Two of these measurements were performed by the same observer, and the third by a second observer to assess intra- and inter-observer agreement.
  
  
  RESULTS
  The values refer to the total score of the scale items, EK sum, and reflect a reliability index of 0.995. They also show a higher reliability to 0.86 in each of the items in both intra- and inter-observations observer.
  
  
  CONCLUSIONS
  The Spanish version of the EK is a valid and reliable instrument for the Spanish population as a tool for measuring functional capacity in patients with Duchenne muscular dystrophy and spinal muscular atrophy are not ambulatory and use a wheelchair.
authors.affiliation: Departamento de Fisioterapia, Universitat Internacional de Catalunya, Sant Cugat del Vallès, Barcelona, España. jfagoaga@hsjdbcn.org
authors.forename: Joaquín
authors.initials: J
authors.lastname: Fagoaga
authors.forename: Montserrat
authors.initials: M
authors.lastname: Girabent-Farrés
authors.forename: Caritat
authors.initials: C
authors.lastname: Bagur-Calafat
authors.forename: Anna
authors.initials: A
authors.lastname: Febrer
authors.forename: Birgit F
authors.initials: BF
authors.lastname: Steffensen
mesh_terms: D000203:Activities of Daily Living; D000293:Adolescent; D000328:Adult; D000368:Aged; D002648:Child; D002675:Child, Preschool; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D051346:Mobility Limitation; D009134:Muscular Atrophy, Spinal / Q000503:physiopathology*; D020388:Muscular Dystrophy, Duchenne / Q000503:physiopathology*; D011788:Quality of Life; D015203:Reproducibility of Results; D012720:Severity of Illness Index; D013030:Spain; D011795:Surveys and Questionnaires; D014175:Translating; D049269:Videoconferencing; D055815:Young Adult