title: Incentives and barriers to research participation and brain donation among African Americans.
abstract: Successful African American recruitment for aging research requires sensitivity to factors that influence participation. In this work, a structured face-to-face educational interview was used to recruit African Americans for a longitudinal aging study and to collect information about attitudes related to research. The interview was designed to build trust and respect for research and to educate participants about the need for minority participants. Of the 91 African Americans aged 65 and older who completed interviews, 65 (71%) agreed to participate in the longitudinal study and approximately half agreed to brain donation. Those who enrolled and consented to brain donation were more likely to consider benefit to themselves or direct family unit as the main motivator for participation (P < .01). The study also found a significant increase in agreement to brain donation across enrollment periods (P = .0005).
authors.affiliation: The University of Kentucky Sanders Brown Center on Aging, Lexington, KY 40536-0230, USA. tsc224@uky.edu
authors.forename: Tyler
authors.initials: T
authors.lastname: Schnieders
authors.forename: Deborah D
authors.initials: DD
authors.lastname: Danner
authors.forename: Caitlin
authors.initials: C
authors.lastname: McGuire
authors.forename: Flores
authors.initials: F
authors.lastname: Reynolds
authors.forename: Erin
authors.initials: E
authors.lastname: Abner
mesh_terms: D001741:Black or African American; D000368:Aged; D000369:Aged, 80 and over; D000375:Aging; D001921:Brain; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D008913:Minority Groups; D009042:Motivation / Q000502:physiology; D011795:Surveys and Questionnaires; D014019:Tissue Donors
keywords: African American; barriers; brain donation; incentives; participation; research