title: Collection, verification, sharing and dissemination of data: the CONTRAST experience.
abstract: The scientific community is charged with growing demands regarding the management of project data and outputs and the dissemination of key results to various stakeholders. We discuss experiences and lessons from CONTRAST, a multidisciplinary alliance that had been funded by the European Commission over a 4-year period, in order to optimize schistosomiasis control and transmission surveillance in sub-Saharan Africa. From the start, project partners from Europe and Africa set out an ambitious goal: to sample data following standard protocols at all field sites and then sharing the data in a way that would enable all project partners to have access through a password-protected Internet-based data portal. This required anonymous agreement on several common standardized sample forms, ranging from the mundane but important issue of using the same units of measurement to more complex challenges, for instance agreeing on the same protocols for double-treatment of praziquantel in different settings. With the experiences gained by the CONTRAST project, this paper discusses issues of data management and sharing in research projects in the light of the current donor demand, and offers advice and specific suggestions for similar interdisciplinary research projects.
authors.affiliation: DBL, Department of Veterinary Disease Biology, University of Copenhagen, Thorvaldsensvej 57, DK-1871 Frederiksberg C, Denmark. Electronic address: cls@sund.ku.dk.
authors.forename: Christopher F L
authors.initials: CF
authors.lastname: Saarnak
authors.forename: Jürg
authors.initials: J
authors.lastname: Utzinger
authors.forename: Thomas K
authors.initials: TK
authors.lastname: Kristensen
mesh_terms: D000349:Africa / Q000453:epidemiology; D000871:Anthelmintics / Q000627:therapeutic use; D003140:Communicable Disease Control / Q000379:methods*; D003625:Data Collection / Q000379:methods*; D062665:Epidemiological Monitoring; D005062:European Union; D006801:Humans; D033181:Information Dissemination / Q000379:methods*; D020407:Internet; D012552:Schistosomiasis / Q000188:drug therapy / Q000453:epidemiology* / Q000517:prevention & control*
chemical_list: D000871:Anthelmintics
keywords: CONTRAST; Data curation; Data sampling; Data sharing; Database management; Schistosomiasis