title: Narrative analysis of the ethics in providing advance care planning.
abstract: Our objective was to better understand the values and ethical dilemmas surrounding advance care planning through stories told by registered nurses and licensed social workers, who were employed as care managers within Area Agencies on Aging. We conducted eight focus groups in which care managers were invited to tell their stories and answer open-ended questions focusing on their interactions with consumers receiving home-based long-term care. Using narrative analysis to understand how our participants thought through particular experiences and what they valued, we identified seven themes representative of their work with consumers and families: humility, respect, responsibilities, boundaries, empowerment, courage, and veracity.
authors.affiliation: Northeast Ohio Medical University, USA.
authors.forename: Kristin R
authors.initials: KR
authors.lastname: Baughman
authors.forename: Julie M
authors.initials: JM
authors.lastname: Aultman
authors.forename: Ruth
authors.initials: R
authors.lastname: Ludwick
authors.forename: Anne
authors.initials: A
authors.lastname: O'Neill
mesh_terms: D032722:Advance Care Planning / Q000941:ethics*; D003657:Decision Making / Q000941:ethics*; D017144:Focus Groups; D006801:Humans; D008134:Long-Term Care; D009726:Nurses / Q000523:psychology*; D010346:Patient Care Management / Q000941:ethics*
keywords: Advance care planning; care managers; end-of-life decisions; ethical dilemmas; narrative analysis; registered nurses; social workers