title: Caring for parents with neurodegenerative disease: a qualitative description.
abstract: OBJECTIVE
  The objective of this study was to explore the positive aspects experienced by adult children in providing care to their parent who has either Parkinson's or Alzheimer's disease.
  
  
  METHODS
  A qualitative descriptive approach was used to analyze audiotaped in-depth semistructured interviews that were conducted with 34 adult children who were primary caregivers as part of a larger randomized clinical trial.
  
  
  METHODS
  Individual interviews were conducted by trained research assistants in the caregiver's home.
  
  
  METHODS
  Thirty-four adult children caregivers who were primary caregivers for their respective 34 parents. Seventy-six percent (n = 26) of the caregivers were caring for a parent with Alzheimer's disease. Twenty-four percent (n = 8) were caring for a parent with Parkinson's disease. Eighty-two percent were adult daughters. Mean age of the caregiver was 52 years, and the mean age of the parent was 81 years. Fifty-three percent of caregivers were white, and 47% were black.
  
  
  METHODS
  A conventional content analysis was performed to summarize themes.
  
  
  RESULTS
  Results indicated that most caregivers had positive experiences. Three relationship-centered themes were identified: spending and enjoying time together, appreciating each other and becoming closer, and giving back care. A small number of caregivers (n = 6) could not identify positive experiences.
  
  
  CONCLUSIONS
  Caregivers who had positive experiences in caregiving expressed fewer feelings of being overwhelmed or distressed by their situations. Further study is needed on caregivers who do not experience positive aspects in caring for a parent, and these caregivers potentially may be a group that warrants further intervention by advanced practice nurses.
authors.affiliation: Center for Aging Research, Indiana University, Indianapolis, IN 46202, USA. habermab@iupui.edu
authors.forename: Barbara
authors.initials: B
authors.lastname: Habermann
authors.forename: Dana
authors.initials: D
authors.lastname: Hines
authors.forename: Linda
authors.initials: L
authors.lastname: Davis
mesh_terms: D032721:Adult Children / Q000523:psychology*; D000369:Aged, 80 and over; D000544:Alzheimer Disease / Q000628:therapy*; D017028:Caregivers / Q000523:psychology* / Q000706:statistics & numerical data; D005260:Female; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D008875:Middle Aged; D015404:Nursing Methodology Research; D010287:Parent-Child Relations; D010300:Parkinson Disease / Q000628:therapy*; D036301:Qualitative Research; D013315:Stress, Psychological; D013637:Tape Recording