title: Research advisory board members' contributions and expectations in the USA.
abstract: This study focuses on the Implementation Community Collaborative Board (I-CCB) to identify members' anticipated contributions to and returns from the I-CCB; examine whether or not members achieved these contributions and returns over time; and explore barriers and facilitators that influenced accomplishments. Longitudinal study with repeated semi-structured in-depth interviews; baseline captured anticipated contributions and returns; 6- and 18-month follow-ups short- and longer-term achievements. We used content analysis to code/reduce text into variables, describe, count and compare categories. Participants anticipated involvement in I-CCB dynamics/governance and in research tasks/procedures. Anticipated returns included social support. Participants exerting influence on I-CCB's research agenda stayed the same over time. Participants conducting research doubled between follow-ups; those writing grant proposals increased by 50%. Participants receiving emotional support remained the same. Challenges: meetings steered by researchers; lack of time; use of jargon. Facilitators: outreaching to community; being affected by HIV; having overlapping identities/roles as researcher, service consumer and/or practitioner. Research partners can maximize facilitators, redress barriers and improve advisory board members' retention. Findings may help optimize the functioning of advisory boards worldwide.
authors.affiliation: Columbia University School of Social Work, New York, NY, USA rmp98@columbia.edu.
authors.forename: R M
authors.initials: RM
authors.lastname: Pinto
authors.affiliation: HIV Center for Clinical and Behavioral Studies, New York State Psychiatric Institute and Columbia University, New York, NY, USA.
authors.forename: Anya Y
authors.initials: AY
authors.lastname: Spector
authors.affiliation: Columbia University School of Social Work, New York, NY, USA.
authors.forename: R
authors.initials: R
authors.lastname: Rahman
authors.affiliation: Latino Commission on AIDS, New York, NY, USA.
authors.forename: J D
authors.initials: JD
authors.lastname: Gastolomendo
mesh_terms: D026683:Advisory Committees / Q000458:organization & administration*; D055812:Community-Based Participatory Research / Q000458:organization & administration*; D003159:Community-Institutional Relations; D003299:Cooperative Behavior; D005260:Female; D015658:HIV Infections / Q000517:prevention & control / Q000628:therapy; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D012107:Research Design; D014481:United States
keywords: CBPR; HIV/AIDS; community advisory board; engagement and retention