title: Harnessing Photovoice for tuberculosis advocacy in Karachi, Pakistan.
abstract: In Pakistan, despite publically available free testing and treatment throughout the country, there were an estimated 58,000 deaths due to tuberculosis in 2010. Understanding the experiences of people affected by TB is essential in addressing barriers to effective treatment. The Indus Hospital used Photovoice to understand the experiences of people affected by TB in Karachi. Two hundred and thirty photographs and stories were collected from 55 people affected by TB. Five major themes and 12 sub-themes emerged from the data: the physical aspects of TB (weakness and the side effects of the medication), the social aspects of TB (loneliness, stigma, and the fear/guilt of infecting family members), the socio-economic aspects of TB (financial difficulties/poverty and poor living conditions), supportive factors during treatment (support from family and friends, support from welfare organizations, prayer, visiting peaceful places), and recovery (happiness about getting better). The photographs, stories, and a Call for Action were shared at a Gallery event with patients, practitioners, and policy-makers. This study provides a look at the complexities surrounding TB and emphasizes the need for holistic interventions for TB that address all aspects of the disease, including its social determinants. It also highlights the potential of Photovoice as an effective means to bring much-needed attention to this disease.
authors.affiliation: Indus Hospital Research Center, Korangi Crossing, Karachi, Pakistan Interactive Research and Development, Suite 508, Ibrahim Trade Towers, Sharah-e-Faisal, Karachi, Pakistan shama@post.harvard.edu.
authors.forename: Shama
authors.initials: S
authors.lastname: Mohammed
authors.affiliation: Indus Hospital Research Center, Korangi Crossing, Karachi, Pakistan Interactive Research and Development, Suite 508, Ibrahim Trade Towers, Sharah-e-Faisal, Karachi, Pakistan.
authors.forename: Sana Zehra
authors.initials: SZ
authors.lastname: Sajun
authors.affiliation: Indus Hospital Research Center, Korangi Crossing, Karachi, Pakistan Interactive Research and Development, Suite 508, Ibrahim Trade Towers, Sharah-e-Faisal, Karachi, Pakistan.
authors.forename: Faisal S
authors.initials: FS
authors.lastname: Khan
mesh_terms: D000293:Adolescent; D000328:Adult; D005260:Female; D006266:Health Education; D006801:Humans; D008132:Loneliness; D008297:Male; D008875:Middle Aged; D010154:Pakistan; D010781:Photography; D057545:Social Stigma; D012944:Social Support; D012959:Socioeconomic Factors; D014376:Tuberculosis / Q000191:economics / Q000503:physiopathology / Q000523:psychology*; D055815:Young Adult
keywords: Photovoice; advocacy; participation; tuberculosis