title: Meaning in life in patients with progressive supranuclear palsy.
abstract: This exploratory study investigated meaning in life (MiL) in patients with progressive supranuclear palsy (PSP). In the "Schedule for Meaning in Life Evaluation" (SMiLE), respondents list individual MiL areas before rating their current satisfaction and importance with them (index of weighting [IoW], index of satisfaction [IoS], and index of weighted satisfaction [IoWS], range 0-100). A total of 38 patients with PSP completed the SMiLE (IoS: 68.6 ± 25.6, IoW: 79.6 ± 12.6, and IoWS: 69.2 ± 26.1). A representative sample of healthy participants (n = 977) scored significantly higher in the IoS (82.8 ± 14.7, P < .001), the IoW (85.6 ± 12.3, P = .006), and the IoWS (83.3 ± 14.8, P < .001). Compared to healthy individuals, patients with PSP were less likely to list health (P = .001) and more likely to list partner (P = .04), leisure (P = .01), home/garden (P = .01), and pleasure (P = .02). Patients with PSP seem to focus on supportive relationships and leisure, while the decreasing health status is becoming less important to them.
authors.affiliation: Department of Palliative Medicine, Ludwig Maximilians University of Munich, Marchioninistr 15, Munich, Germany martin@fegg.de.
authors.forename: Martin Johannes
authors.initials: MJ
authors.lastname: Fegg
authors.affiliation: Department of Palliative Medicine, Ludwig Maximilians University of Munich, Marchioninistr 15, Munich, Germany.
authors.forename: Monika
authors.initials: M
authors.lastname: Kögler
authors.affiliation: Department of Neurology, Ludwig Maximilians University of Munich, Marchioninistr 15, Munich, Germany.
authors.forename: Carina
authors.initials: C
authors.lastname: Abright
authors.affiliation: Department of Palliative Medicine, Ludwig Maximilians University of Munich, Marchioninistr 15, Munich, Germany.
authors.forename: Mira
authors.initials: M
authors.lastname: Hensler
authors.affiliation: Department of Palliative Medicine, Ludwig Maximilians University of Munich, Marchioninistr 15, Munich, Germany.
authors.forename: Stefan
authors.initials: S
authors.lastname: Lorenzl
mesh_terms: D000368:Aged; D005190:Family; D005260:Female; D033062:Friends; D006304:Health Status; D006801:Humans; D007899:Leisure Activities; D008297:Male; D008875:Middle Aged; D010166:Palliative Care / Q000523:psychology*; D010549:Personal Satisfaction; D011594:Psychometrics; D011788:Quality of Life; D012720:Severity of Illness Index; D029181:Spirituality; D013494:Supranuclear Palsy, Progressive / Q000523:psychology*; D026712:Value of Life; D014937:Work
keywords: coping; meaning in life; progressive supranuclear palsy; response shift