title: Genetic data and electronic health records: a discussion of ethical, logistical and technological considerations.
abstract: OBJECTIVE
  The completion of sequencing the human genome in 2003 has spurred the production and collection of genetic data at ever increasing rates. Genetic data obtained for clinical purposes, as is true for all results of clinical tests, are expected to be included in patients' medical records. With this explosion of information, questions of what, when, where and how to incorporate genetic data into electronic health records (EHRs) have reached a critical point. In order to answer these questions fully, this paper addresses the ethical, logistical and technological issues involved in incorporating these data into EHRs.
  
  
  METHODS
  This paper reviews journal articles, government documents and websites relevant to the ethics, genetics and informatics domains as they pertain to EHRs.
  
  
  CONCLUSIONS
  The authors explore concerns and tasks facing health information technology (HIT) developers at the intersection of ethics, genetics, and technology as applied to EHR development.
  
  
  CONCLUSIONS
  By ensuring the efficient and effective incorporation of genetic data into EHRs, HIT developers will play a key role in facilitating the delivery of personalized medicine.
authors.affiliation: Department of Biostatistics and Medical Informatics, University of Wisconsin, Madison, Wisconsin, USA.
authors.forename: Kimberly
authors.initials: K
authors.lastname: Shoenbill
authors.forename: Norman
authors.initials: N
authors.lastname: Fost
authors.forename: Umberto
authors.initials: U
authors.lastname: Tachinardi
authors.forename: Eneida A
authors.initials: EA
authors.lastname: Mendonca
mesh_terms: D057286:Electronic Health Records / Q000941:ethics / Q000458:organization & administration; D005820:Genetic Testing / Q000941:ethics*; D023281:Genomics / Q000193:education / Q000941:ethics / Q000458:organization & administration; D006801:Humans; D008490:Medical Informatics / Q000941:ethics
keywords: Electronic Health Records; Ethics, Medical; Genomics; Individualized Medicine; Medical Informatics