title: Impact of dementia progression on food-related processes: a qualitative study of caregivers' perspectives.
abstract: As dementia progresses, one area that can help maintain connection and memories with others is within the food domain. There is little research in this area particularly from the informal caregivers' perspectives. Therefore, a qualitative study was conducted to explore the impact of dementia progression on food-related processes from the perspectives of informal caregivers. The aim of the study was to document the methodology used and to disseminate the findings to researchers, care providers, and policy makers. A total of 10 men and 10 women caregivers of those with dementia underwent a semistructured interview. Transcripts were analyzed using thematic analysis. The caregivers' narratives indicated a set pattern of decline, with food shopping being the first ability to decline, followed by food preparation and the ability to eat. Caregivers adapted to their food roles, for example, by becoming responsible for financial issues. These adaptations were described as stressful yet satisfying as food care was seen as an important social time. Educating caregivers' about the likely adaptations to food processes may increase food satisfaction in both the parties.
authors.affiliation: Division of Population Health Sciences and Education, St George's University of London, London, UK. ipapachr@sgul.ac.uk
authors.forename: Ilia
authors.initials: I
authors.lastname: Papachristou
authors.forename: Nikolette
authors.initials: N
authors.lastname: Giatras
authors.forename: Michael
authors.initials: M
authors.lastname: Ussher
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers / Q000523:psychology*; D003704:Dementia / Q000178:diet therapy* / Q000523:psychology*; D018450:Disease Progression; D004435:Eating / Q000523:psychology*; D005247:Feeding Behavior / Q000523:psychology*; D005260:Female; D033062:Friends / Q000523:psychology*; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D009536:Niacinamide / Q000031:analogs & derivatives; D010879:Piperazines; D036301:Qualitative Research; D012931:Social Environment
chemical_list: C523280:AD 101; D010879:Piperazines; D009536:Niacinamide
keywords: caregiving; dementia; environment; food behavior; food management; informal care; mealtimes