title: [Withdrawal of assisted ventilation in the home: making decisions in paediatric palliative care].
abstract: End-of-life care is of growing interest in Paediatrics. The number of children with diseases being treated using high-technology as palliative treatment has also increased. The creation of multidisciplinary care teams with 24/7 hours home care may prevent prolonged hospital stays in these patients. To adapt the treatment in order to avoid new hospital admissions and to obtain a better quality of life is a desirable objective. The taking of decisions and subsequent withdrawal of mechanical ventilation in the home is presented, along with the underlying disease and the acute event that led to the worsening of the patient. The decision-making and clinical management until the death of the patient is then discussed and reviewed.
authors.affiliation: Unidad de Cuidados Intensivos, Hospital Infantil Universitario Niño Jesús, Madrid, España; Unidad de Cuidados Paliativos Pediátricos, Hospital Infantil Universitario Niño Jesús, Madrid, España. Electronic address: citopensis@yahoo.es.
authors.forename: A
authors.initials: A
authors.lastname: García-Salido
authors.affiliation: Unidad de Cuidados Paliativos Pediátricos, Hospital Infantil Universitario Niño Jesús, Madrid, España.
authors.forename: M
authors.initials: M
authors.lastname: Monleón-Luque
authors.affiliation: Unidad de Cuidados Paliativos Pediátricos, Hospital Infantil Universitario Niño Jesús, Madrid, España.
authors.forename: M
authors.initials: M
authors.lastname: Barceló-Escario
authors.affiliation: Unidad de Cuidados Paliativos Pediátricos, Hospital Infantil Universitario Niño Jesús, Madrid, España.
authors.forename: C
authors.initials: C
authors.lastname: Del Rincón-Fernández
authors.affiliation: Unidad de Cuidados Paliativos Pediátricos, Hospital Infantil Universitario Niño Jesús, Madrid, España.
authors.forename: E
authors.initials: E
authors.lastname: Catá-Del Palacio
authors.affiliation: Unidad de Cuidados Paliativos Pediátricos, Hospital Infantil Universitario Niño Jesús, Madrid, España.
authors.forename: Ricardo
authors.initials: R
authors.lastname: Martino-Alba
mesh_terms: D003657:Decision Making; D017809:Fatal Outcome; D005260:Female; D006699:Home Care Services; D006801:Humans; D007223:Infant; D010166:Palliative Care; D012121:Respiration, Artificial; D028761:Withholding Treatment
keywords: Airway extubation; Cuidados intensivos; Cuidados paliativos; Domiciliary care; Extubación; Intensive care; Paediatrics; Palliative care; Pediatría; Tratamiento domiciliario