title: Factors contributing to parental decision-making in disclosing donor conception: a systematic review.
abstract: BACKGROUND In recent years, changes in attitudes towards (non-)disclosure of donor conception to offspring and/or others have been observed. Studies have started to identify possible factors that contribute to these changes that are relevant for clinics, counsellors and policy-makers in their approach to the disclosure process. The aim of this systematic review was to integrate the existing knowledge on factors that influence the disclosure decision-making process of donor conception to offspring and/or others in heterosexual couples, and to discuss future trends and concerns. METHODS A bibliographic search of English, French, German and Dutch language publications of five computerized databases was undertaken from January 1980 to March 2012. A Cochrane Database systematic review approach was applied. RESULTS A total of 43 studies met the inclusion criteria, and these represented 36 study populations. The review shows that the parents' disclosure decision-making process is influenced by a myriad of intrapersonal, interpersonal, social and family life cycle features. These influences were not necessarily independent but rather were interwoven and overlapping. Theoretical frameworks have not yet been used to explain how the different factors influenced disclosure. Methodological limitations of the original publications (lack of information, several factors included in one study, descriptive character of studies) and this review (multiple factors that may interact) which hindered integration of the findings are outlined. CONCLUSIONS Intrapersonal, interpersonal, social and family life cycle factors influence the parents' disclosure decision-making process. The review has demonstrated the need for the development of a theoretical model to enable integration of the identified influencing factors. Further research is needed on the role of stigma, confrontation efficacy, extended family, donor siblings' characteristics, cross-border treatment, culture, gender and socio-educational factors.
authors.affiliation: Centre for Biomedical Ethics and Law, KU Leuven, Leuven, Belgium.
authors.forename: A
authors.initials: A
authors.lastname: Indekeu
authors.forename: K
authors.initials: K
authors.lastname: Dierickx
authors.forename: P
authors.initials: P
authors.lastname: Schotsmans
authors.forename: K R
authors.initials: KR
authors.lastname: Daniels
authors.forename: P
authors.initials: P
authors.lastname: Rober
authors.forename: T
authors.initials: T
authors.lastname: D'Hooghe
mesh_terms: D001290:Attitude; D003657:Decision Making; D030881:Disclosure / Q000941:ethics*; D006801:Humans; D007316:Insemination, Artificial, Heterologous / Q000941:ethics*; D008297:Male; D018587:Oocyte Donation / Q000941:ethics*; D009865:Oocytes; D010290:Parents / Q000523:psychology*; D013094:Spermatozoa; D014019:Tissue Donors / Q000941:ethics*
keywords: disclosure; donor insemination; embryo donation; oocyte donation; systematic review