title: Using online health communities to deliver patient-centered care to people with chronic conditions.
abstract: BACKGROUND
  Our health care system faces major threats as the number of people with multiple chronic conditions rises dramatically.
  
  
  OBJECTIVE
  To study the use of Online Health Communities (OHCs) as a tool to facilitate high-quality and affordable health care for future generations.
  
  
  METHODS
  OHCs are Internet-based platforms that unite either a group of patients, a group of professionals, or a mixture of both. Members interact using modern communication technologies such as blogs, chats, forums, and wikis. We illustrate the use of OHCs for ParkinsonNet, a professional network for Parkinson disease whose participants-both patients and professionals-use various types of OHCs to deliver patient-centered care.
  
  
  RESULTS
  We discuss several potential applications in clinical practice. First, due to rapid advances in medical knowledge, many health professionals lack sufficient expertise to address the complex health care needs of chronic patients. OHCs can be used to share experiences, exchange knowledge, and increase disease-specific expertise. Second, current health care delivery is fragmented, as many patients acquire relationships with multiple professionals and institutions. OHCs can bridge geographical distances and enable interdisciplinary collaboration across institutions and traditional echelons. Third, chronic patients lack adequate tools to self-manage their disease. OHCs can be used to actively engage and empower patients in their health care process and to tailor care to their individual needs. Personal health communities of individual patients offer unique opportunities to store all medical information in one central place, while allowing transparent communication across all members of each patient's health care team.
  
  
  CONCLUSIONS
  OHCs are a powerful tool to address some of the challenges chronic care faces today. OHCs help to facilitate communication among professionals and patients and support coordination of care across traditional echelons, which does not happen spontaneously in busy practice.
authors.affiliation: Radboud University Nijmegen Medical Centre, Nijmegen Centre for Evidence Based Practice, Department of Neurology (935), Nijmegen, Netherlands.
authors.forename: Martijn
authors.initials: M
authors.lastname: van der Eijk
authors.forename: Marjan J
authors.initials: MJ
authors.lastname: Faber
authors.forename: Johanna W M
authors.initials: JW
authors.lastname: Aarts
authors.forename: Jan A M
authors.initials: JA
authors.lastname: Kremer
authors.forename: Marten
authors.initials: M
authors.lastname: Munneke
authors.forename: Bastiaan R
authors.initials: BR
authors.lastname: Bloem
mesh_terms: D002908:Chronic Disease; D006801:Humans; D020407:Internet; D010300:Parkinson Disease / Q000523:psychology / Q000628:therapy*; D018802:Patient-Centered Care; D011787:Quality of Health Care; D012648:Self Care
keywords: Internet; Parkinson disease; chronic disease; community networks; long-term care; patient-centered care