title: Rare diseases and now rare data?
authors.affiliation: EURAC research, Center for Biomedicine, Bioethics, ELSI, Bolzano, Italy. deborah.mascalzoni@eurac.edu
authors.forename: Deborah
authors.initials: D
authors.lastname: Mascalzoni
authors.forename: Bartha Maria
authors.initials: BM
authors.lastname: Knoppers
authors.forename: Ségolène
authors.initials: S
authors.lastname: Aymé
authors.forename: Matteo
authors.initials: M
authors.lastname: Macilotti
authors.forename: Hugh
authors.initials: H
authors.lastname: Dawkins
authors.forename: Simon
authors.initials: S
authors.lastname: Woods
authors.forename: Mats G
authors.initials: MG
authors.lastname: Hansson
mesh_terms: D035843:Biomedical Research / Q000331:legislation & jurisprudence; D003219:Confidentiality / Q000331:legislation & jurisprudence*; D005060:Europe; D006801:Humans; D033181:Information Dissemination / Q000331:legislation & jurisprudence*; D035583:Rare Diseases