title: [Individual neonatal end-of-life care and family-centred bereavement support].
abstract: Neonatal end-of-life care and family-centred bereavement support in perinatal medicine are a multiprofessional challenge directed to the dying newborn and the parents as well as to the care-givers. Clinical experience shows that many aspects of individual neonatal end-of-life care and family-centred bereavement support are not well known to the health-care providers. This is especially true for a standardised quality management and the components of bereavement support offered to parents. An interdisciplinary concept for an individual neonatal end-of-life care and famlily-centred bereavement support has been developed at the Center of Perinatal Medicine at the Charité, Berlin. The concept aims for two main aspects: (1) meeting the individual medical, psychological, emotional and spiritual needs of the dying newborn, the parents and family, and (2) facilitating standardised and process-orientated preparation, evaluation and reflexion of every case of end-of-life care. In this article some recommendations for implementing a basic care concept for families and their dying newborns are presented.
authors.affiliation: Klinik für Neonatologie, Charité Universitätsmedizin Berlin. lars.garten@charite.de
authors.forename: L
authors.initials: L
authors.lastname: Garten
authors.forename: K
authors.initials: K
authors.lastname: von der Hude
authors.forename: B
authors.initials: B
authors.lastname: Rösner
authors.forename: C
authors.initials: C
authors.lastname: Klapp
authors.forename: C
authors.initials: C
authors.lastname: Bührer
mesh_terms: D001601:Bereavement; D017028:Caregivers / Q000523:psychology*; D005260:Female; D005858:Germany; D006801:Humans; D007223:Infant; D008297:Male; D020380:Needs Assessment / Q000458:organization & administration; D010348:Patient Care Team / Q000458:organization & administration*; D012944:Social Support; D013727:Terminal Care / Q000458:organization & administration* / Q000523:psychology*; D019452:Terminally Ill / Q000523:psychology*