title: Tangled in the breast cancer web: an evaluation of the usage of web-based information resources by breast cancer patients.
abstract: This study describes Internet use by breast cancer patients highlighting search patterns and examining the impact of web-based information on the clinical encounter. From September 2011 to January 2012, breast cancer patients at a cancer center completed a survey. Answers were closed and open-ended. Eighty-one patients were approached and 56 completed the survey. Forty-five (80 %) respondents used the Internet and 32 (71 %) searched for breast cancer information. All used Google as their principal search engine. To evaluate quality, 47 % referred to author credentials and 41 % examined references. Most sought information with respect to treatment or prognosis. Eighty percent felt that the information increased their knowledge and influenced treatment decision making for 53 %. This study highlights search patterns and factors used by breast cancer patients in seeking web-based information. Physicians must appreciate that patients use the Internet and address discrepancies between information sought and that which is available.
authors.affiliation: British Columbia Cancer Agency-Fraser Valley Centre, Surrey, BC, Canada.
authors.forename: Sonia Kim Anh
authors.initials: SK
authors.lastname: Nguyen
authors.forename: Paris-Ann
authors.initials: PA
authors.lastname: Ingledew
mesh_terms: D000368:Aged; D001943:Breast Neoplasms / Q000517:prevention & control* / Q000523:psychology; D003657:Decision Making; D005260:Female; D006801:Humans; D020407:Internet / Q000592:standards / Q000706:statistics & numerical data*; D008490:Medical Informatics; D008875:Middle Aged; D009367:Neoplasm Staging; D010353:Patient Education as Topic; D011795:Surveys and Questionnaires