title: Caring for people with dementia disease (DD) and working in a private not-for-profit residential care facility for people with DD.
abstract: Caring for people with dementia and working in dementia care is described as having both rewarding and unpleasant aspects and has been studied to a minor extent. This study aims to explore care providers' narrated experiences of caring for people with dementia disease (DD) and working in a private not-for-profit residential care facility for people with DD. Nine care providers were interviewed about their experiences, the interviews were recorded, transcribed and analysed using thematic analysis. The analysis revealed that participants were struggling to perform person-centred care, which meant trying to see the person behind the disease, dealing with troublesome situations in the daily care, a two-edged interaction with relatives, feelings of shortcomings and troubled conscience, and the need for improvements in dementia care. The analysis also revealed an ambiguous work situation, which meant a challenging value base, the differently judged work environment, feelings of job satisfaction and the need for a functional leadership and management. The results illuminate participants' positive as well as negative experiences and have identified areas requiring improvements. It seems of great importance to strive for a supportive and attendant leadership, a leadership which aims to empower care providers in their difficult work. Using conscience as a driving force together in the work group may benefit care providers' health.
authors.affiliation: Department of Nursing, Umea University, Skelleftea, Sweden.
authors.forename: Eva
authors.initials: E
authors.lastname: Ericson-Lidman
authors.forename: Lise-Lotte Franklin
authors.initials: LL
authors.lastname: Larsson
authors.forename: Astrid
authors.initials: A
authors.lastname: Norberg
mesh_terms: D003704:Dementia / Q000451:nursing*; D006801:Humans; D009735:Nursing Homes / Q000458:organization & administration*; D017149:Private Sector
keywords: care of older people; care providers' experiences; dementia; private not-for-profit profile; troubled conscience