title: An observational study of adults with Down syndrome eating independently.
abstract: This study examined the oral feeding in a group of adults with Down syndrome. None of the 23 participants in the study had reported oral feeding difficulties, and all independently ate a full oral diet (food and liquids). Observations were made during the consumption of one meal and one drink. The eating and drinking behaviours observed included eating rate and ability to keep food in the mouth, and these were considered in conjunction with oral and pharyngeal phase skills and difficulties. Coughing, an overt sign of possible aspiration with its attendant risk of upper respiratory tract infection, was seen in 56.5 % of participants. In addition, several of the observed oral feeding behaviours of this group of individuals may be socially unacceptable and therefore likely to compromise quality of life. A number of behaviours with implications for both health and quality of life may be amenable to simple behaviour modification or to changes to the environment. Further study into the causes of these oral feeding difficulties, their implications for social integration, and their potential remediation is required.
authors.affiliation: Language and Communication, Division of Psychology and Language Sciences, University College London, Chandler House, 2 Wakefield Street, London, WC1N 1PF, UK, christina.smith@ucl.ac.uk.
authors.forename: Christina H
authors.initials: CH
authors.lastname: Smith
authors.forename: Yafen
authors.initials: Y
authors.lastname: Teo
authors.forename: Sarah
authors.initials: S
authors.lastname: Simpson
mesh_terms: D000328:Adult; D003679:Deglutition / Q000502:physiology*; D003680:Deglutition Disorders / Q000209:etiology* / Q000503:physiopathology / Q000523:psychology; D004314:Down Syndrome / Q000150:complications* / Q000503:physiopathology / Q000523:psychology; D004435:Eating / Q000502:physiology*; D005247:Feeding Behavior / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011788:Quality of Life; D014741:Video Recording; D055815:Young Adult