title: The parents', hospitalized child's, and health care providers' perceptions and experiences of family centered care within a pediatric critical care setting: a metasynthesis of qualitative research.
abstract: The delivery of family centered care (FCC) occurs within varied pediatric care settings with a belief that this model of care meets the psychosocial, emotional, and physical needs of the hospitalized child and family. The aim of this review was to explore the attitudes, experiences, and implementation of FCC from many studies and to facilitate a wider and more thorough understanding of this practice from a diverse sample of parents, hospitalized children, and their health care providers within a pediatric critical care setting. A metasynthesis is an integration of qualitative research findings based on a systematic review of the literature. Thirty original research articles focusing on family-centered care experiences from the hospitalized child's, parents', and health care providers' perception published between 1998 and 2011 met the criteria for the review. Nine syntheses from 17 themes emerged from the synthesis of the literature: Prehospital, Entry into the Hospital, Journeying Through Unknown Waters, Information, Relationships, The hospital Environment, The Possibility of Death, Religion and Spirituality, and The Journey Home. The individual cultures of the critical care units helped create and reinforce the context of parental needs where satisfaction with communication, information, and relationships were interconnecting factors that helped maintain the positive or negative experiences for the parent, hospitalized child, and/or health care providers.
authors.affiliation: 1University of Otago, Christchurch, New Zealand.
authors.forename: Mandie Jane
authors.initials: MJ
authors.lastname: Foster
authors.forename: Lisa
authors.initials: L
authors.lastname: Whitehead
authors.forename: Patricia
authors.initials: P
authors.lastname: Maybee
authors.forename: Victoria
authors.initials: V
authors.lastname: Cullens
mesh_terms: D002648:Child; D002673:Child, Hospitalized / Q000523:psychology*; D003422:Critical Care; D022143:Family Nursing; D005260:Female; D006801:Humans; D015278:Intensive Care Units, Pediatric; D008297:Male; D008505:Medical Staff, Hospital / Q000523:psychology*; D009741:Nursing Staff, Hospital / Q000523:psychology*; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research
keywords: family; family-centered care; health care providers; hospitalized child; integrative review; intensive care unit; pediatric critical care; qualitative studies