title: Pilot-testing the French version of a provisional European organisation for research and treatment of cancer (EORTC) measure of spiritual well-being for people receiving palliative care for cancer.
abstract: Spiritual well-being is increasingly recognised as an important aspect of patients' quality of life when living with a potentially life-limiting illness such as cancer. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group is developing a measure for assessing spiritual well-being cross-culturally for people receiving palliative care for cancer. The pilot-testing phase of the study explored potential problems related to the content and administration of a provisional version of this measure. The French version was pilot-tested with 12 patients in a palliative and supportive day care unit in Paris. Participants were asked to complete the measure and the EORTC QLQ-C15-PAL before being interviewed about their responses. The administration of the measure enabled participants to express the difficulties and existential concerns they experienced. The items were not considered intrusive, despite the sensitive topic of the measure. This article considers difficulties with items pertaining to 'religion' and 'spirituality' in the context of French culture. Overall, this measure appears to enhance holistic care, by providing caregivers with a means of broaching spirituality issues, a topic otherwise difficult to discuss in the context of palliative care.
authors.affiliation: Department of Psychology, University of Miami, Coral Gables, FL, USA.
authors.forename: A
authors.initials: A
authors.lastname: Lucette
authors.forename: A
authors.initials: A
authors.lastname: Brédart
authors.forename: B
authors.initials: B
authors.lastname: Vivat
authors.forename: T
authors.initials: T
authors.lastname: Young
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology* / Q000628:therapy; D010166:Palliative Care / Q000523:psychology*; D010549:Personal Satisfaction; D010865:Pilot Projects; D011594:Psychometrics; D011788:Quality of Life; D012067:Religion; D029181:Spirituality; D011795:Surveys and Questionnaires; D014177:Translations
keywords: assessment; cancer; measure; palliative care; quality of life; spiritual well-being