title: Multimethodology research with boys with severe haemophilia.
abstract: OBJECTIVE
  To describe the use of an innovative, multimethodological approach to exploring the day-to-day experiences of boys across a wide age range to better understand the effects of modern haemophilia treatment on their lives.
  
  
  BACKGROUND
  Children and young people with severe haemophilia can now be treated with prophylaxis and potentially have a lifestyle close to that of those without haemophilia. However, boys frequently describe living with haemophilia as burdensome.
  
  
  METHODS
  The study, based on a grounded theory approach, was conducted with boys aged four to 16 years old, using research methods that included photo-elicitation, 'draw and write' techniques, focus groups run by participant co-researchers and individual interviews.
  
  
  METHODS
  Grounded theory was used to enable rich data capture, through reshaping of research questions as theory developed.
  
  
  CONCLUSIONS
  The effectiveness of the methods used is discussed, along with consideration of the issues raised.
  
  
  CONCLUSIONS
  These methods are effective for use with children. They can result in robust data and are also fun for child participants.
  
  
  CONCLUSIONS
  Understanding life with chronic disease from a child's perspective can improve clinical care through a better understanding of health behaviour and lifestyle implications.
authors.affiliation: Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK. kate.khair@gosh.nhs.uk
authors.forename: Kate
authors.initials: K
authors.lastname: Khair
authors.forename: Charles
authors.initials: C
authors.lastname: Collier
authors.forename: Liz
authors.initials: L
authors.lastname: Meerabeau
authors.forename: Faith
authors.initials: F
authors.lastname: Gibson
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D017144:Focus Groups; D006467:Hemophilia A / Q000451:nursing* / Q000523:psychology*; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D015404:Nursing Methodology Research / Q000379:methods*; D000297:Psychology, Adolescent; D002666:Psychology, Child; D012720:Severity of Illness Index