title: What is the role of reduced IVF fees in persuading women to volunteer to provide eggs for research? Insights from IVF patients volunteering to a UK 'egg sharing for research' scheme.
abstract: This article reports selected findings from a project investigating the question: 'Does volunteering for the 'Newcastle egg sharing for research scheme', in which IVF patients receive reduced fees when providing 50% of their eggs, entail any social and ethical costs?' The focus is on women's views of the role of the reduced fees in persuading them to volunteer. The study fills a gap in knowledge, as there have been no previous investigations of women's experiences of providing eggs for research under such circumstances. This was an interview-based study, designed to gain understanding of the volunteers' perspectives. The main findings are that the interviewees' primary goal is to have a baby; they volunteered to provide eggs for research in order to access cheaper treatment in a context where private IVF fees are high, there is insufficient state funding, and providing eggs for other couples' treatment was deemed unacceptable. Interviewees welcomed the scheme, but were not volunteering entirely under circumstances of their choosing; they would prefer not to provide eggs during their own IVF treatment and under certain circumstances change their minds about so doing. In conclusion, reduced fees, although an important factor, do not act as an undue inducement in persuading volunteers to act against their own interests.
authors.affiliation: Policy, Ethics and Life Sciences (PEALS) Research Centre, Newcastle University , Newcastle upon Tyne , UK.
authors.forename: Erica
authors.initials: E
authors.lastname: Haimes
authors.forename: Ken
authors.initials: K
authors.lastname: Taylor
mesh_terms: D000328:Adult; D035843:Biomedical Research; D005249:Fees and Charges; D005260:Female; D005307:Fertilization in Vitro / Q000191:economics*; D006801:Humans; D018587:Oocyte Donation; D009865:Oocytes; D014838:Volunteers