title: Do patient-reported outcome measures capture functioning aspects and environmental factors important to individuals with injuries or disorders of the hand?
abstract: METHODS
  Qualitative study.
  
  
  BACKGROUND
  Clinical outcome evaluation needs to consider the patient perspective for an in-depth understanding of functioning and disability.
  
  
  OBJECTIVE
  To explore whether patient-reported outcome measures (PROMs) used in the field of hand injuries or hand disorders, capture functioning aspects and environmental factors important to the patients.
  
  
  METHODS
  We performed a qualitative study and a systematic literature review. The focus group sessions were recorded, transcribed verbatim, and the identified concepts were linked to the ICF. We searched in MEDLINE for reviews, related to injuries or disorders of the hand, reporting on PROMs. We linked the items of the identified PROMs to the ICF and compared the qualitative data with the content of the PROMs.
  
  
  RESULTS
  Statements from 45 individuals who participated in eight focus groups were linked to 97 categories of the ICF. From 15 reviews included, eight PROMs were selected. The selected PROMs capture 34 of the categories retrieved from the qualitative data.
  
  
  CONCLUSIONS
  PROMs used in the context of hand injuries or hand disorders capture only in parts the functioning aspects important to the patients.
authors.affiliation: Department of Medical Informatics, Biometry and Epidemiology (IBE), Chair for Public Health and Health Services Research, Research Unit for Biopsychosocial Health, Ludwig-Maximilians-Universität (LMU), Munich, Germany; ICF Research Branch (in cooperation with the WHO Collaborating Centre for the Family of International Classifications in Germany (at DIMDI)), Switzerland.
authors.forename: Michaela
authors.initials: M
authors.lastname: Coenen
authors.forename: Sandra
authors.initials: S
authors.lastname: Kus
authors.forename: Klaus-Dieter
authors.initials: KD
authors.lastname: Rudolf
authors.forename: Gertrud
authors.initials: G
authors.lastname: Müller
authors.forename: Stephanie
authors.initials: S
authors.lastname: Berno
authors.forename: Caroline
authors.initials: C
authors.lastname: Dereskewitz
authors.forename: Joy
authors.initials: J
authors.lastname: MacDermid
mesh_terms: D002349:Carpal Tunnel Syndrome / Q000628:therapy; D004387:Dupuytren Contracture / Q000628:therapy; D017144:Focus Groups; D006230:Hand Injuries / Q000503:physiopathology / Q000628:therapy*; D006801:Humans; D017063:Outcome Assessment, Health Care; D011594:Psychometrics; D036301:Qualitative Research; D020127:Recovery of Function; D012677:Sensation
keywords: Focus group; Hand conditions; Hand injuries; International Classification of Functioning, Disability and Health (ICF); Patient perspective; Patient-reported outcome measures