title: Gynecologic cancer screening and communication with health care providers in women with Lynch syndrome.
abstract: We evaluated knowledge of gynecologic cancer screening recommendations, screening behaviors, and communication with providers among women with Lynch syndrome (LS). Women aged ≥25 years who were at risk for LS-associated cancers completed a semi-structured interview and a questionnaire. Of 74 participants (mean age 40 years), 61% knew the appropriate age to begin screening, 75-80% correctly identified the recommended screening frequency, and 84% reported no previous screening endometrial biopsy. Women initiated discussions with their providers about their LS cancer risks, but many used nonspecific terms or relied on family history. Most were not offered high-risk screening options. While many women were aware of risk-appropriate LS screening guidelines, adherence was suboptimal. Improving communication between women and their providers regarding LS-related gynecologic cancer risk and screening options may help improve adherence.
authors.affiliation: Department of Behavioral Science.
authors.forename: A M
authors.initials: AM
authors.lastname: Burton-Chase
authors.forename: S R
authors.initials: SR
authors.lastname: Hovick
authors.forename: C C
authors.initials: CC
authors.lastname: Sun
authors.forename: S
authors.initials: S
authors.lastname: Boyd-Rogers
authors.forename: P M
authors.initials: PM
authors.lastname: Lynch
authors.forename: K H
authors.initials: KH
authors.lastname: Lu
authors.forename: S K
authors.initials: SK
authors.lastname: Peterson
mesh_terms: D000328:Adult; D003123:Colorectal Neoplasms, Hereditary Nonpolyposis / Q000150:complications* / Q000235:genetics*; D003142:Communication; D003710:Demography; D055088:Early Detection of Cancer; D005260:Female; D005833:Genital Neoplasms, Female / Q000150:complications / Q000175:diagnosis* / Q000235:genetics*; D006282:Health Personnel; D006801:Humans; D008875:Middle Aged
keywords: Lynch syndrome; endometrial cancer; mixed methods; ovarian cancer; patient-physician communication
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