title: Challenges in care of the child with special health care needs in a resource limited environment.
abstract: To identify challenges encountered in the care of children with special health care needs in a resource limited environment a 10 year-old child with a diagnosis of Tuberous Sclerosis was studied. Challenges identified were in: making a definitive diagnosis, provision of adequate care, cost of care, meeting parental expectations and accessing community support for the child and family. Available specialist health care and related services, including community rehabilitation, were provided for the child and family. The study highlights the need for improved community awareness, development in the provision of specialist health care services and institution of governmental policies that identify, support and protect children with special health care needs.
authors.affiliation: Department of Pediatrics, Ahmadu Bello University Teaching Hospital, Zaria, Nigeria.
authors.forename: Edwin Ehi
authors.initials: EE
authors.lastname: Eseigbe
authors.forename: Nuhu Folorunsho
authors.initials: NF
authors.lastname: Taju
authors.forename: Sheikh Taiwo
authors.initials: ST
authors.lastname: Lateef
keywords: Care; challenges; tuberous sclerosis
references.citation: Ann Afr Med. 2010 Apr-Jun;9(2):95-101
references.pmid: 20587932
references.citation: Pediatrics. 1989 Jun;83(6):1055-60
references.pmid: 2726332
references.citation: Seizure. 2002 Sep;11(6):386-91
references.pmid: 12160668
references.citation: J Neurosci Rural Pract. 2012 Jan;3(1):2-3
references.pmid: 22346180
references.citation: Adv Pediatr. 2006;53:165-82
references.pmid: 17089866