title: Everyday life for women with celiac disease.
abstract: The aim of this research was to explore how women with celiac disease experience everyday life. It is important that healthcare professionals understand what it is like to live with a chronic illness, and also the factors that affect the lives of women who have celiac disease. The study has a qualitative approach and the data were collected using interviews with 16 women. A conventional content analysis was used for the subjective interpretation of the qualitative interviews. Three main themes emerged in the analysis: illness trajectory and treatment, socializing with others, and feelings of loneliness and worry. The findings indicate that living with celiac disease affects the person's entire life from the past, in the present, and into the future, especially when daily routines must be altered. The women expressed a sense of loneliness and invisibility, especially when socializing with others. The diet could be a friend, enemy, obstacle, or opportunity in terms of enjoying a good life. Supporting women diagnosed with celiac disease appears to be a major task for healthcare professionals. Such professionals need to pay attention to women's symptoms, worries, and their feeling of being invisible.
authors.affiliation: Department of Social and Welfare Studies, Linköping University, Norrköping, Sweden. susanne.roos@liu.se
authors.forename: Susanne
authors.initials: S
authors.lastname: Roos
authors.forename: Ingrid
authors.initials: I
authors.lastname: Hellström
authors.forename: Claes
authors.initials: C
authors.lastname: Hallert
authors.forename: Susan
authors.initials: S
authors.lastname: Wilhelmsson
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000367:Age Factors; D000368:Aged; D001007:Anxiety / Q000453:epidemiology / Q000503:physiopathology; D002446:Celiac Disease / Q000175:diagnosis* / Q000178:diet therapy / Q000523:psychology*; D002908:Chronic Disease; D055050:Diet, Gluten-Free; D005221:Fatigue / Q000175:diagnosis / Q000453:epidemiology; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D007407:Interviews as Topic; D008875:Middle Aged; D036301:Qualitative Research; D011788:Quality of Life; D018570:Risk Assessment; D012494:Sampling Studies; D018434:Sickness Impact Profile; D013315:Stress, Psychological; D013548:Sweden; D055815:Young Adult