Accuracy of self-reported cervical and breast cancer screening by women with intellectual disability.
This study examines the accuracy of self-report of cervical and breast cancer screening by women with intellectual disability (n  =  155). Data from face-to-face interviews and medical records were analyzed. Total agreement, sensitivity, specificity, positive predictive value and negative predictive value were calculated. Total agreement between self-report and medical record on receipt of both procedures was 75% for Pap test and 87% for mammography. Self-reported Pap tests and mammography showed >90% sensitivity, but specificity was low for both procedures (41% for Pap test, 30% for mammogram), indicating overreporting of receipt of Pap tests and mammography similar to women without disabilities. Clinicians and researchers are cautioned to corroborate self-reported data with other sources for patients and research participants with intellectual disability.
Brandeis University.
Esther
E
Son
Susan L
SL
Parish
Jamie G
JG
Swaine
Karen
K
Luken
D000328:Adult; D001943:Breast Neoplasms / Q000523:psychology; D055088:Early Detection of Cancer / Q000523:psychology*; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology*; D007406:Interview, Psychological; D008327:Mammography / Q000523:psychology; D008875:Middle Aged; D011237:Predictive Value of Tests; D016032:Randomized Controlled Trials as Topic; D015203:Reproducibility of Results; D012189:Retrospective Studies; D057566:Self Report / Q000592:standards*; D012680:Sensitivity and Specificity; D012720:Severity of Illness Index; D002583:Uterine Cervical Neoplasms / Q000523:psychology; D014626:Vaginal Smears / Q000523:psychology