Using medical words with family caregivers.
BACKGROUND
Although there is poor communication about pain management between informal caregivers and hospice providers, little research has examined these interactions.


OBJECTIVE
This study explored communication between informal caregivers and hospice team members by investigating the use of medical words in care planning discussions.


METHODS
Transcripts of clinical communication between caregivers and hospice team members were reviewed for use of medical words, word placement (statement or question), whether or not the word was explained, and the caregiver's response to the word.


METHODS
As part of an ongoing randomized clinical trial in the midwestern United States, informal hospice caregivers participated in recorded hospice care planning discussions.


METHODS
A selection of videorecorded interactions from an ongoing study was analyzed.


RESULTS
Hospice team members used six times as many medical words compared to caregivers. The majority of medical words used by caregivers and team members were drug names. Medical words were predominantly used as statements rather than questions that sought clarification. Three-fourths of medical words used by team members were not explained to caregivers. Caregivers provided little response to medical word use, indicating a lack of understanding.


CONCLUSIONS
The propensity to use medical words during clinical communication with family caregivers is cautioned. In order to recognize the caregiver as a contributing team member, clinicians should limit the use of medical words, provide lay explanation alongside medical terminology, and use questions to check for understanding. More research is needed to determine assessment tools to capture the caregiver's level of understanding of medication and pain management protocol.
1 Markey Cancer Center, Department of Communication, University of Kentucky , Lexington, Kentucky.
Elaine
E
Wittenberg-Lyles
Joy
J
Goldsmith
Debra Parker
DP
Oliver
George
G
Demiris
Robin L
RL
Kruse
Stephanie
S
Van Stee
D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers; D003142:Communication; D005260:Female; D017051:Hospice Care; D006801:Humans; D008297:Male; D008875:Middle Aged; D059408:Pain Management; D010348:Patient Care Team; D009626:Terminology as Topic; D049269:Videoconferencing