PARENT joint action: increasing the added value of patient registries in a cross-border setting.
Patient registries are poorly interoperable and as a result data exchange or aggregation across organizations, regions and countries for secondary purposes (i.e. research and public health) is difficult to perform. PARENT Joint Action aims to provide EU Member States with a set of guidelines, recommendations and tools to support setting-up, management and governance of interoperable patient registries, thus helping EU Member States to drive down cost and interoperability risks of patient registries as well as improving secondary us-age of registry data in a cross-border setting.
National Institute of Public Health, Ljubljana, Slovenia.
Matic
M
Meglič
Persephone
P
Doupi
Ivan
I
Pristaš
Yannis
Y
Skalkidis
Metka
M
Zaletel
Andrej
A
Orel
D057286:Electronic Health Records / Q000458:organization & administration*; D005060:Europe; D005062:European Union / Q000458:organization & administration*; D006078:Government Programs / Q000458:organization & administration*; D017408:Guidelines as Topic; D033181:Information Dissemination / Q000379:methods*; D007391:International Cooperation; D008498:Medical Record Linkage / Q000592:standards*; D012042:Registries / Q000592:standards*