The 2011 outcome from the Swedish Health Care Registry on Heart Disease (SWEDEHEART).
OBJECTIVE
The Swedish Web-system for Enhancement and Development of Evidence-based care in Heart disease Evaluated According to Recommended Therapies (SWEDEHEART) collects data to support the improvement of care for heart disease.


METHODS
SWEDEHEART collects on-line data from consecutive patients treated at any coronary care unit n = (74), followed for secondary prevention, undergoing any coronary angiography, percutaneous coronary intervention, percutaneous valve or cardiac surgery. The registry is governed by an independent steering committee, the software is developed by Uppsala Clinical Research Center and it is funded by The Swedish national health care provider independent of industry support. Approximately 80,000 patients per year enter the database which consists of more than 3 million patients.


RESULTS
Base-line, procedural, complications and discharge data consists of several hundred variables. The data quality is secured by monitoring. Outcomes are validated by linkage to other registries such as the National Cause of Death Register, the National Patient Registry, and the National Registry of Drug prescriptions. Thanks to the unique social security number provided to all citizens follow-up is complete. The 2011 outcomes with special emphasis on patients more than 80 years of age are presented.


CONCLUSIONS
SWEDEHEART is a unique complete national registry for heart disease.
Department of Coronary Heart Disease, Skåne University Hospital, Institution of Clinical Sciences, Lund University, Lund, Sweden. jan.harnek@skane.se
Jan
J
Harnek
Johan
J
Nilsson
Orjan
O
Friberg
Stefan
S
James
Bo
B
Lagerqvist
Kristina
K
Hambraeus
Asa
A
Cider
Lars
L
Svennberg
Mona From
MF
Attebring
Claes
C
Held
Per
P
Johansson
Tomas
T
Jernberg
D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D006348:Cardiac Surgical Procedures; D016507:Cardiology Service, Hospital / Q000592:standards; D002648:Child; D002675:Child, Preschool; D017023:Coronary Angiography; D003325:Coronary Care Units / Q000592:standards; D005260:Female; D006331:Heart Diseases / Q000175:diagnosis / Q000401:mortality / Q000628:therapy*; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D008498:Medical Record Linkage; D008875:Middle Aged; D010043:Outcome and Process Assessment, Health Care / Q000592:standards; D062645:Percutaneous Coronary Intervention; D058996:Quality Improvement / Q000592:standards; D011787:Quality of Health Care / Q000592:standards; D012042:Registries; D055502:Secondary Prevention; D013548:Sweden / Q000453:epidemiology; D013997:Time Factors; D016896:Treatment Outcome; D055815:Young Adult