Personalized health care and health information technology policy: an exploratory analysis.
Personalized healthcare (PHC) is envisioned to enhance clinical practice decision-making using new genome-driven knowledge that tailors diagnosis, treatment, and prevention to the individual patient. In 2012, we conducted a focused environmental scan and informal interviews with fifteen experts to anticipate how PHC might impact health Information Technology (IT) policy in the United States. Findings indicatedthat PHC has a variable impact on current clinical practice, creates complex questions for providers, patients, and policy-makers, and will require a robust health IT infrastructure with advanced data architecture, clinical decision support, provider workflow tools, and re-use of clinical data for research. A number of health IT challenge areas were identified, along with five policy areas including: interoperable clinical decision support, standards for patient values and preferences, patient engagement, data transparency, and robust privacy and security.
RTI International, Durham, NC, USA.
Jonathan S
JS
Wald
Michael
M
Shapiro
D016494:Computer Security; D003219:Confidentiality; D020000:Decision Support Systems, Clinical / Q000458:organization & administration*; D057286:Electronic Health Records / Q000458:organization & administration*; D019538:Health Care Surveys; D006291:Health Policy; D008490:Medical Informatics / Q000458:organization & administration*; D008498:Medical Record Linkage; D017146:Models, Organizational; D009937:Organizational Objectives; D057285:Precision Medicine / Q000379:methods*