Managing Epilepsy Well: Emerging e-Tools for epilepsy self-management.
The Managing Epilepsy Well (MEW) Network was established in 2007 by the Centers for Disease Control and Prevention Epilepsy Program to expand epilepsy self-management research. The network has employed collaborative research strategies to develop, test, and disseminate evidence-based, community-based, and e-Health interventions (e-Tools) for epilepsy self-management for people with epilepsy, caregivers, and health-care providers. Since its inception, MEW Network collaborators have conducted formative studies (n=7) investigating the potential of e-Health to support epilepsy self-management and intervention studies evaluating e-Tools (n=5). The MEW e-Tools (the MEW website, WebEase, UPLIFT, MINDSET, and PEARLS online training) and affiliated e-Tools (Texting 4 Control) are designed to complement self-management practices in each phase of the epilepsy care continuum. These tools exemplify a concerted research agenda, shared methodological principles and models for epilepsy self-management, and a communal knowledge base for implementing e-Health to improve quality of life for people with epilepsy.
School of Public Health, University of Texas Health Science Center Houston, Houston, TX, USA. Electronic address: Ross.Shegog@uth.tmc.edu.
Ross
R
Shegog
Yvan A
YA
Bamps
Archna
A
Patel
Jody
J
Kakacek
Cam
C
Escoffery
Erica K
EK
Johnson
Ukwuoma O
UO
Ilozumba
D003299:Cooperative Behavior; D004827:Epilepsy / Q000523:psychology / Q000628:therapy*; D006801:Humans; D020407:Internet; D011788:Quality of Life; D012648:Self Care; D014481:United States
Epilepsy; Internet; Meaningful access; Quality of life; Self-management; Technology; e-Health; e-Health tools