title: Breast cancer patients' recall of receiving patient assistance services.
abstract: BACKGROUND
  The objective of this study was to assess factors that affect breast cancer patients' recall of patient assistance services.
  
  
  METHODS
  We surveyed newly-diagnosed breast cancer patients and compared recall of receiving patient assistance services at 2 weeks and 6 months in a patient-assistance randomized controlled trial aimed to connect women to such programs. The intervention group received information about assistance programs targeted to their practical, psychosocial, and/or informational needs; the control group received a Department of Health pamphlet about breast cancer and its treatment, including a list of patient assistance services.
  
  
  RESULTS
  Of 333 women, 210 (63%) reported informational, 183 (55%) psychosocial and 177 (53%) practical needs. At 2 weeks, 96% (202/210) of women with informational needs reported receiving informational material but at 6 months, recall dropped to 69% (140/210). All women whose informational needs were met recalled receiving information, compared to 31% whose needs were unmet (p < 0.0001). Of 109 intervention patients with psychosocial or practical needs, 77% (79) contacted a program specified in their action plan at 2 weeks. However, at 6 months, only 39% (31/79) recalled contacting a program. Women without recall were less likely to report having their needs met (6% vs. 58%; p < 0.001).
  
  
  CONCLUSIONS
  Recall of patient assistance services is strongly related to having needs met. Use of patient surveys to evaluate utilization or impact of such programs should be used with caution due to poor patient recall. CLINICAL TRIALS # NCT00233077: http://www.clinicaltrials.gov/ct2/show/NCT00233077?term=Nina+Bickell&rank=2.
authors: Division of General Internal Medicine, Mount Sinai School of Medicine, One Gustave L. Levy Place, Box 1087, New York, NY 10029 USA.
authors: Jenny J
authors: JJ
authors: Lin
authors: Kezhen
authors: K
authors: Fei
authors: Rebeca
authors: R
authors: Franco
authors: Nina A
authors: NA
authors: Bickell
keywords: Breast cancer; Patient assistance; Recall; Survey research
references: J R Soc Med. 2003 May;96(5):219-22
references: 12724430
references: Eur J Cancer Care (Engl). 2009 Jan;18(1):50-6
references: 19473222
references: J Clin Oncol. 2008 Jan 10;26(2):297-302
references: 18182671
references: Med Care Res Rev. 2000;57 Suppl 1:146-61
references: 11092161
references: Cancer Epidemiol Biomarkers Prev. 2008 Nov;17(11):2987-94
references: 18990740
references: Cancer Epidemiol Biomarkers Prev. 1996 Sep;5(9):721-6
references: 8877064
references: Cancer Causes Control. 2009 Feb;20(1):1-13
references: 18802779
references: J Cancer Surviv. 2012 Mar;6(1):20-32
references: 21735277
references: Cancer Epidemiol Biomarkers Prev. 2003 Nov;12(11 Pt 1):1182-7
references: 14652278
references: Cancer. 2011 Aug;117(15 Suppl):3603-17
references: 21780095
references: Am J Public Health. 1996 Jul;86(7):1016-21
references: 8669504
references: Psychosoc Med. 2011;8:Doc05
references: 21922032
references: J Clin Oncol. 2000 Aug;18(16):3052-60
references: 10944140
references: J Registry Manag. 2009 Spring;36(1):12-5
references: 19670693
references: AIDS Patient Care STDS. 2009 Oct;23(10):837-43
references: 19803677
references: BMC Health Serv Res. 2011 May 27;11:133
references: 21619647
references: Patient Educ Couns. 1998 Feb;33(2):129-41
references: 9732653
references: J R Soc Med. 2009 Jun;102(6):235-43
references: 19531618
references: J Clin Epidemiol. 2005 Mar;58(3):286-90
references: 15718118
references: Breast Cancer Res Treat. 2010 Feb;119(3):745-51
references: 19551500
references: Am J Prev Med. 2009 Nov;37(5):441-4
references: 19840700
references: J Clin Oncol. 2008 Nov 20;26(33):5450-7
references: 18936478
references: J Clin Epidemiol. 2005 Dec;58(12):1316-9
references: 16291477
references: Cancer. 2008 Dec 15;113(12):3391-9
references: 18951521
references: QRC Advis. 1996 Nov;13(1):1-7
references: 10162025
references: Am J Epidemiol. 1999 Sep 15;150(6):617-21
references: 10490001
references: Patient Educ Couns. 2010 Oct;81(1):37-42
references: 20044231
references: J Clin Oncol. 2012 May 20;30(15):1791-5
references: 22493417
references: Health Aff (Millwood). 2011 Jul;30(7):1325-34
references: 21734207
references: BMC Health Serv Res. 2004 Nov 12;4(1):32
references: 15541176
references: N Engl J Med. 2004 Jan 22;350(4):406-10
references: 14736934
references: J Clin Oncol. 2005 Jul 20;23(21):4679-86
references: 15851764
references: J Clin Oncol. 2002 Feb 15;20(4):1008-16
references: 11844824
references: Med Care Res Rev. 1995 Mar;52(1):109-33
references: 10143573
references: J Gen Intern Med. 1998 Apr;13(4):280-2
references: 9565395
references: Am J Epidemiol. 2001 Sep 15;154(6):582-7
references: 11549564
references: BMC Nurs. 2009 Jan 19;8:1
references: 19152675
references: Am J Epidemiol. 2004 Feb 1;159(3):308-17
references: 14742292
references: Gerontologist. 2004 Apr;44(2):176-85
references: 15075414
references: Osteoporos Int. 2005 Sep;16(9):1156-60
references: 15744452
references: Menopause. 2007 Mar-Apr;14(2):230-4
references: 17108846
references: Am J Epidemiol. 2001 Feb 1;153(3):299-306
references: 11157418
references: J Natl Cancer Inst. 1993 Apr 7;85(7):566-70
references: 8455203
references: Am J Epidemiol. 2003 Feb 1;157(3):267-72
references: 12543627
references: Epidemiology. 1997 Sep;8(5):482-7
references: 9270947
references: J Clin Epidemiol. 2005 Apr;58(4):364-9
references: 15862722
references: J Clin Oncol. 2012 Apr 1;30(10):1080-6
references: 22370315