title: Adolescents' and young adults' experiences of childhood cancer: descriptions of daily life 5 years after diagnosis.
abstract: BACKGROUND
  Survivors of childhood cancer are a growing population in society. These young people have a high risk of developing chronic health problems with a potential strong impact on their lives. How a childhood cancer experience affects survivors in adolescence has been studied to a limited extent; an increased understanding of this young group is needed to improve follow-up care.
  
  
  OBJECTIVE
  The aim of this study was to gain a deeper understanding of how childhood cancer affects the lives of survivors by exploring adolescents' and young adults' views of what it is like living with this experience.
  
  
  METHODS
  Fifty-nine 11- to 22-year-olds were interviewed a median of 5 years after a cancer diagnosis (response rate, 66%). Data were collected through telephone interviews and were analyzed using qualitative content analysis techniques.
  
  
  RESULTS
  Three groups of informants were identified according to their descriptions of the influence of cancer treatment on their daily life: "feeling like anyone else" (informants who described that the cancer experience had almost no influence on current life) (49%), "feeling almost like others" (those who described some influence) (44%), and "feeling different" (those describing a great influence on current life) (7%).
  
  
  CONCLUSIONS
  Most of the adolescents and young adults appear to get along well, although many informants described that life was affected to some extent by having had cancer.
  
  
  CONCLUSIONS
  Follow-up care is needed that can identify those young survivors of childhood cancer having trouble with daily life and offer them support to strengthen their resources in managing difficulties in relation to having had cancer.
authors: Department of Neurobiology, Karolinska Institutet, Stockholm, Sweden. eva.doukkali@ki.se
authors: Eva Berg
authors: EB
authors: Doukkali
authors: Jeanette
authors: J
authors: Winterling
authors: Lars E
authors: LE
authors: Eriksson
authors: Claudia
authors: C
authors: Lampic
authors: Anneli Silvén
authors: AS
authors: Hagström
authors: Lena
authors: L
authors: Wettergren
mesh_terms: D000293:Adolescent; D002648:Child; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000175:diagnosis / Q000451:nursing* / Q000628:therapy; D011788:Quality of Life; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology; D055815:Young Adult