title: [Survey of adults living with epilepsy in Hungary: health-related quality of life and costs].
abstract: OBJECTIVE
  Disease burden of epilepsy in Hungary is underexplored. The aim of our study was to assess the quality of life and costs of adults with epilepsy.
  
  
  METHODS
  Cross-sectional questionnaire survey was performed in two hospital based outpatient neurology centres involving consecutive patients with epilepsy. Demography, clinical characteristics, health status (EQ-5D) and health care utilisation in the past 12 months were surveyed. Cost calculation was performed from the societal perspective.
  
  
  RESULTS
  Altogether 100 patients (women 58%) were involved, their mean age was 37.6 (SD = 12.5) years. Disease duration was 15.0 (SD = 12.1) years on average and 22 (22%) patients were disability pensioners. The EQ-5D score was mean 0.83 (SD = 0.24) which is significantly lower than the age-matched population norm (p = 0.017). Pain/discomfort and anxiety/depression are the most problematic health dimensions. The annual cost per patient was mean 2421 (SD = 3249) Euros (679 397 SD = 911 783 HUF; conversion: 1 Euro = 280.6 HUF), distribution between direct medical, direct non-medical and indirect costs was 33%, 18% or 49%. Patients with seizure in the past 12 months have higher cost on avergare than the asymptomatic subsample (3119 vs. 988 Euros/patient/year; 935 481 vs. 277 209 HUF/patient/year).
  
  
  CONCLUSIONS
  Adults with epilepsy have significantly worse health status by the EQ-5D than the gender and age matched Hungarian general population. Disease related costs are significant especially in cases with seizure, productivity loss related costs are dominant. Our study provides basic data for clinical and sustainable health care financing decisions.
authors: Budapest Corvinus Egyetem, Közgazdaságtudományi Kar, Egészség-gazdaságtani es Egészségügyi Technológiaelemzési Kutatóközpont, Budapest. marta.pentek@uni-corvinus.hu
authors: Márta
authors: M
authors: Péntek
authors: Dániel
authors: D
authors: Bereczki
authors: László
authors: L
authors: Gulácsi
authors: Boglárka
authors: B
authors: Mikudina
authors: Zsuzsanna
authors: Z
authors: Arányi
authors: Vera
authors: V
authors: Juhos
authors: Petra
authors: P
authors: Baji
authors: Valentin
authors: V
authors: Brodszky
mesh_terms: D000328:Adult; D000368:Aged; D001007:Anxiety / Q000209:etiology; D017281:Cost of Illness; D003430:Cross-Sectional Studies; D003863:Depression / Q000209:etiology; D006233:Persons with Disabilities / Q000523:psychology / Q000706:statistics & numerical data; D004526:Efficiency; D004827:Epilepsy / Q000150:complications / Q000191:economics* / Q000453:epidemiology* / Q000523:psychology; D005260:Female; D017048:Health Care Costs / Q000706:statistics & numerical data*; D006304:Health Status; D006801:Humans; D006814:Hungary / Q000453:epidemiology; D008297:Male; D008875:Middle Aged; D010146:Pain / Q000209:etiology; D010415:Pensions; D011788:Quality of Life; D012640:Seizures / Q000191:economics; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires