title: Clinical trial preparedness in facioscapulohumeral dystrophy: outcome measures and patient access: 8-9 April 2013, Leiden, The Netherlands.
authors.affiliation: Department of Neurology, University of Rochester Medical Center, Rochester, NY, United States. Electronic address: rabi_tawil@URMC.rochester.edu.
authors.forename: R
authors.initials: R
authors.lastname: Tawil
authors.affiliation: Department of Radiology, Seattle Children's Hospital, Seattle, WA, United States.
authors.forename: D W
authors.initials: DW
authors.lastname: Shaw
authors.affiliation: Department of Human Genetics, Leiden University Medical Center, Leiden, The Netherlands.
authors.forename: S M
authors.initials: SM
authors.lastname: van der Maarel
authors.affiliation: Division of Human Biology, Fred Hutchinson Cancer Research Center, Seattle, WA, United States.
authors.forename: S J
authors.initials: SJ
authors.lastname: Tapscott
mesh_terms: D015415:Biomarkers / Q000032:analysis; D002986:Clinical Trials as Topic; D006801:Humans; D020391:Muscular Dystrophy, Facioscapulohumeral / Q000628:therapy*; D012042:Registries; D016896:Treatment Outcome
chemical_list: D015415:Biomarkers