title: Reliability and validity of a Spanish version of the Impact of Pediatric Epilepsy Scale in a Cuban population.
abstract: The Impact of Pediatric Epilepsy Scale (IPES) is a brief, accurate, and acceptable measurement scale of the impact of pediatric epilepsy on the health-related quality of life (HRQOL) of both the child and the child's family as perceived by the child's parent(s). The aim of this study was to validate a Spanish language version of the IPES in Cuban children with epilepsy. The IPES was translated and adapted to Cuban culture and administered to 76 parents of children with epilepsy. The principal component analysis indicated that two factors accounted for 72% of the variance of the IPES (family relationships and health and social well-being). The IPES was also able to detect differences in HRQOL between subjects according to epilepsy severity. The internal consistency coefficient was 0.962, and the test-retest reliability was 0.979. The Cuban version of IPES can be used to measure a child's epilepsy-specific HRQOL in Cuba.
authors.affiliation: Neuropediatric Department, Cuban Institute of Neurology and Neurosurgery, Havana, Cuba. Electronic address: nicogaro@infomed.sld.cu.
authors.forename: Nicolás
authors.initials: N
authors.lastname: Garófalo Gómez
authors.forename: Otman
authors.initials: O
authors.lastname: Fernández Concepción
authors.forename: Ana María
authors.initials: AM
authors.lastname: Gómez García
mesh_terms: D000704:Analysis of Variance; D003462:Cuba / Q000453:epidemiology; D004827:Epilepsy / Q000175:diagnosis* / Q000453:epidemiology* / Q000523:psychology; D005260:Female; D006801:Humans; D008297:Male; D010372:Pediatrics; D011788:Quality of Life; D015203:Reproducibility of Results; D018434:Sickness Impact Profile; D014175:Translating; D064232:Visual Analog Scale
keywords: Childhood epilepsy; Health-related quality of life; Impact of Pediatric Epilepsy Scale; Reliability; Spanish version; Validity