title: The caregiving perspective in heart failure: a population based study.
abstract: BACKGROUND
  Heart failure (HF) is a frequent condition in the elderly and mortality is high. This study sought to describe the profile of those providing care in the community and their needs.
  
  
  METHODS
  The South Australian Health Omnibus is an annual, random, face-to-face, cross sectional survey conducted within the state. Having standardized data to the whole population, the study describes the subset of the population who identify that they actively cared for someone at the end of life with HF in the five years before survey administration.
  
  
  RESULTS
  Three hundred and seventy three respondents (2.0% of the whole population; 4.9% of caregivers) reported being a caregiver of someone with HF. There were 84 active caregivers (day-to-day or intermittent hands on caregivers) for people with HF. Mean age for caregivers for those with HF was much higher than other caregivers (55.7 vs 49.4; p < 0.001) with care lasting for an average of 48.9 months (SD 66.2). People caring for those with HF were far less likely to access specialist palliative care services (38.1% vs 60.9%; p < 0.0001) despite having much greater levels of unmet needs for physical care 28.3% vs 14.1%; p = 0.008).
  
  
  CONCLUSIONS
  Study findings suggest that there is a significant burden placed on caregivers for people with HF over extended periods in the community. There are differences in access to services for these caregivers compared to those dying from other conditions, particularly cancer.
authors.affiliation: Centre for Cardiovascular and Chronic Care, Faculty of Health, University of Technology Sydney, PO Box 123, Level 7, Building 10 Jones Street, Broadway, Sydney, NSW 2007, Australia. patriciamary.davidson@uts.edu.au.
authors.forename: Patricia M
authors.initials: PM
authors.lastname: Davidson
authors.forename: Amy P
authors.initials: AP
authors.lastname: Abernethy
authors.forename: Phillip J
authors.initials: PJ
authors.lastname: Newton
authors.forename: Katherine
authors.initials: K
authors.lastname: Clark
authors.forename: David C
authors.initials: DC
authors.lastname: Currow
mesh_terms: D000368:Aged; D017028:Caregivers / Q000458:organization & administration / Q000523:psychology*; D017281:Cost of Illness; D003430:Cross-Sectional Studies; D006333:Heart Failure / Q000523:psychology / Q000628:therapy*; D006801:Humans; D008297:Male; D008875:Middle Aged; D013021:South Australia; D013727:Terminal Care / Q000458:organization & administration / Q000523:psychology; D013997:Time Factors