title: [Perception of family members and health professionals on end of life care within the scope of primary health care].
abstract: The objective of this study is to reflect on care for people with terminal illnesses in primary health care. This study is relevant in the current context of demographic and epidemiological transition, in which there is an increase in the aging population and a rise in the prevalence of chronic degenerative diseases. By means of qualitative research with a critical hermeneutic focus, individual interviews were conducted with seven family members, three professionals from the Family Health Strategy and two professionals from the Home Care Program. The analysis established two empirical categories: end of life care from the perception of family members and that of health professionals. The results showed that, despite the humanization discourse, reflected in the prerogative of living the final moments of life with the family, a serious problem in the discontinuity of care is concealed. It was concluded that, despite the efforts, little is achieved in improving the quality of life for those who die from terminal diseases at home in the Unified Health System in municipalities distant from large centers.
authors.affiliation: Faculdade Luciano Feijão, Av. Dom José 225, Centro, 62.010-290 Sobral CE, Brazil. anahelenabqueiroz@gmail.com
authors.forename: Ana Helena Araújo Bomfim
authors.initials: AH
authors.lastname: Queiroz
authors.forename: Ricardo José Soares
authors.initials: RJ
authors.lastname: Pontes
authors.forename: Ângela Maria Alves
authors.initials: ÂM
authors.lastname: e Souza
authors.forename: Thamy Braga
authors.initials: TB
authors.lastname: Rodrigues
mesh_terms: D000328:Adult; D001291:Attitude of Health Personnel; D001293:Attitude to Death; D001294:Attitude to Health; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D008875:Middle Aged; D011320:Primary Health Care; D036301:Qualitative Research; D013727:Terminal Care