title: A novel intervention using interactive technology and personal narratives to reduce cancer disparities: African American breast cancer survivor stories.
abstract: OBJECTIVE
  There has been a paucity of interventions developed for African American women to address persistent health disparities between African American and Caucasian breast cancer patients. We developed and piloted a technologically innovative, culturally targeted, cancer-communication intervention for African American breast cancer patients using African American breast cancer survivor stories.
  
  
  METHODS
  We rated 917 clips from a video library of survivors' stories for likability, clarity and length, and emotional impact (scaled responses) and categorized each clip by theme (Coping, Support and Relationships, Healthcare Experiences, Follow-up Care, Quality of Life, and Treatment Side Effects). We selected 207 clips told by 35 survivors (32-68 years old; 4-30 years after diagnosis), fitting one of 12 story topics, for inclusion in the interactive video program loaded onto a touch-screen computer. Videos can be searched by storyteller or story topics; stories with the strongest emotional impact were displayed first in the video program.
  
  
  RESULTS
  We pilot tested the video program with ten African American breast cancer survivors (mean age, 54; range 39-68 years), who, after training, watched videos and then evaluated the stories and video-program usability. Survivor stories were found to be "interesting and informative," and usability was rated highly. Participants identified with storytellers (e.g., they "think a lot like me," "have values like mine") and agreed that the stories convinced them to receive recommended surveillance mammograms.
  
  
  CONCLUSIONS
  This novel, cancer-communication technology using survivor stories was very favorably evaluated by breast cancer survivors and is now being tested in a randomized controlled clinical trial.
  
  
  CONCLUSIONS
  Breast cancer survivors can draw support and information from a variety of sources, including from other breast cancer survivors. We developed the survivor stories video program specifically for African American survivors to help improve their quality of life and adherence to follow-up care. Breast cancer survivors' experiences with treatment and living with cancer make them especially credible messengers of cancer information. Our novel, interactive technology is being tested in a randomized controlled trial and will be more broadly disseminated to reach a wider audience.
authors.affiliation: Washington University School of Medicine, 660 S. Euclid, Saint Louis, MO, 63110, USA, mperez@dom.wustl.edu.
authors.forename: Maria
authors.initials: M
authors.lastname: Pérez
authors.forename: Julianne A
authors.initials: JA
authors.lastname: Sefko
authors.forename: Deb
authors.initials: D
authors.lastname: Ksiazek
authors.forename: Balaji
authors.initials: B
authors.lastname: Golla
authors.forename: Chris
authors.initials: C
authors.lastname: Casey
authors.forename: Julie A
authors.initials: JA
authors.lastname: Margenthaler
authors.forename: Graham
authors.initials: G
authors.lastname: Colditz
authors.forename: Matthew W
authors.initials: MW
authors.lastname: Kreuter
authors.forename: Donna B
authors.initials: DB
authors.lastname: Jeffe
mesh_terms: D000328:Adult; D001741:Black or African American / Q000523:psychology*; D000368:Aged; D001294:Attitude to Health; D042241:Early Diagnosis; D004644:Emotions; D005260:Female; D006293:Health Promotion / Q000379:methods*; D054625:Healthcare Disparities; D006801:Humans; D008327:Mammography / Q000523:psychology; D008875:Middle Aged; D033262:Narration; D009369:Neoplasms / Q000523:psychology*; D010342:Patient Acceptance of Health Care; D010349:Patient Compliance; D010353:Patient Education as Topic / Q000379:methods*; D010865:Pilot Projects; D016032:Randomized Controlled Trials as Topic / Q000379:methods; D012107:Research Design; D012959:Socioeconomic Factors; D017741:Survivors / Q000523:psychology*; D014741:Video Recording
references.citation: Patient Educ Couns. 2010 Dec;81 Suppl:S6-14
references.pmid: 21071167
references.citation: Patient Educ Couns. 2010 Dec;81 Suppl:S15-21
references.pmid: 20850258
references.citation: World J Surg Oncol. 2008 Feb 25;6:26
references.pmid: 18298840
references.citation: J Natl Cancer Inst. 1994 May 4;86(9):705-12
references.pmid: 7908990
references.citation: J Pers Soc Psychol. 1988 Jun;54(6):1063-70
references.pmid: 3397865
references.citation: Am J Epidemiol. 2000 Nov 15;152(10):940-9
references.pmid: 11092436
references.citation: J Clin Oncol. 2007 Jun 20;25(18):2516-21
references.pmid: 17577028
references.citation: Cancer. 2007 Nov 15;110(10):2169-77
references.pmid: 17924374
references.citation: J Health Commun. 2005;10 Suppl 1:195-218
references.pmid: 16377608
references.citation: J Clin Oncol. 2006 Mar 20;24(9):1357-62
references.pmid: 16549830
references.citation: Breast Cancer Res Treat. 2011 Feb;126(1):167-76
references.pmid: 20686836
references.citation: J Surg Res. 2009 May 1;153(1):105-13
references.pmid: 19084242
references.citation: J Clin Oncol. 2009 May 1;27(13):2120-1
references.pmid: 19307493
references.citation: J Gen Intern Med. 2001 Jul;16(7):435-45
references.pmid: 11520380
references.citation: Cancer. 2007 Nov 1;110(9):1880-8
references.pmid: 17876835
references.citation: Health Psychol. 2011 Nov;30(6):674-82
references.pmid: 21895370
references.citation: J Cancer Surviv. 2008 Mar;2(1):33-44
references.pmid: 18648985
references.citation: Cancer. 2000 Jan 1;88(1):114-23
references.pmid: 10618613
references.citation: Menopause. 2010 Sep-Oct;17(5):924-37
references.pmid: 20461020
references.citation: J Med Internet Res. 2009 Nov 30;11(4):e50
references.pmid: 19945948
references.citation: Ann Behav Med. 2007 Jun;33(3):221-35
references.pmid: 17600449
references.citation: Oncol Nurs Forum. 2004 Jul 13;31(4):801-8
references.pmid: 15252434
references.citation: Health Educ Behav. 2007 Oct;34(5):777-92
references.pmid: 17200094
references.citation: J Clin Oncol. 2009 May 1;27(13):2157-62
references.pmid: 19307504
references.citation: Am J Public Health. 1987 Dec;77(12):1515-7
references.pmid: 2823619
references.citation: Arch Intern Med. 2000 Jul 24;160(14):2101-7
references.pmid: 10904452
references.citation: Oncologist. 2004;9(6):606-16
references.pmid: 15561805
references.citation: Patient Educ Couns. 2010 Dec;81 Suppl:S48-53
references.pmid: 21081261
references.citation: Appl Nurs Res. 2012 Feb;25(1):3-16
references.pmid: 20974079
references.citation: J Commun. 2008 Jun;58(2):238-257
references.pmid: 21804645
references.citation: J Pers Soc Psychol. 1992 Aug;63(2):198-211
references.pmid: 1403611
references.citation: Lancet. 2000 Oct 14;356(9238):1326-7
references.pmid: 11073026
references.citation: Health Educ Res. 2012 Jun;27(3):523-36
references.pmid: 22327806
references.citation: Br J Cancer. 2006 May 8;94(9):1245-52
references.pmid: 16670704
references.citation: Arch Intern Med. 2003 Jan 13;163(1):49-56
references.pmid: 12523916
references.citation: Cancer Detect Prev. 2006;30(6):535-44
references.pmid: 17110056
references.citation: Breast Cancer Res Treat. 2011 Nov;130(1):165-73
references.pmid: 21553295
references.citation: Patient Educ Couns. 2008 Mar;70(3):348-56
references.pmid: 18201859
references.citation: J Clin Oncol. 2005 May 1;23(13):3052-60
references.pmid: 15860863