[Brazilian experiences in the participation of users and family members in mental health research].
In this paper the authors describe and contextualize the participation of users and family members in mental health research in Brazil, addressing the recent tradition of the experiences of recovery and empowerment to define the analysis of some Brazilian experiences of evaluative research and intervention projects, which count on these social actors to act as researchers. The experiences of Self-Help Groups and the Guide to Autonomous Medication Management are described briefly, in order to analyze the limits and possibilities of participation of users and their family members in research, which is still incipient and sporadic in the Brazilian reality. The authors also recommend the creation of an agenda in public health policy that encourages this participation.
Rodrigo Fernando
RF
Presotto
Marília
M
Silveira
Pedro Gabriel Godinho
PG
Delgado
Eduardo Mourão
EM
Vasconcelos
D035843:Biomedical Research; D001938:Brazil; D003256:Community Participation; D005190:Family; D006801:Humans; D008603:Mental Health