Describing the impact of aphasia on close family members using the ICF framework.
OBJECTIVE
Aphasia is a communication disorder associated with impairments in spoken language, understanding, reading and writing that impacts upon daily activities, participation in society and the quality of life of those with the condition and their family members. Despite existing literature demonstrating the pervasive and significant effects of aphasia on family members, rehabilitation programming, policy and funding are not well developed. The aim of this qualitative study was to describe the impact of aphasia on family members in the context of changes to their functioning and disability using the framework of the International Classification of Functioning, Disability and Health (ICF). Application of ICF concept of disability or "third-party disability" to family members of people with a health condition is discussed.


METHODS
Twenty family members participated in individual in-depth semi-structured interviews. Interviews were analyzed using qualitative content analysis. Research codes generated were subsequently mapped to the ICF.


RESULTS
The results of this study showed that family members experienced positive, neutral and/or negative changes to their body functions and activities and participation due to their significant other's aphasia. Moreover, some family members attributed the development of a health condition or exacerbation of an existing health condition to the aphasia.


CONCLUSIONS
Interpreted within the framework of the ICF, the results of this qualitative study reveal that family members of people with aphasia experience changes to their functioning and disability, known as "third-party functioning and disability", as a consequence of the health condition of a significant other.
Department of Communication Disorders, University of Canterbury, Christchurch , New Zealand and.
Meghann
M
Grawburg
Tami
T
Howe
Linda
L
Worrall
Nerina
N
Scarinci
D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001037:Aphasia / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation*; D017028:Caregivers / Q000523:psychology*; D015331:Cohort Studies; D004185:Disability Evaluation; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D038801:International Classification of Diseases; D008297:Male; D008875:Middle Aged; D009520:New Zealand; D036301:Qualitative Research; D011788:Quality of Life; D012720:Severity of Illness Index; D055815:Young Adult
Aphasia; ICF; caregivers; stroke; third-party disability