'I'm not complaining because I'm alive': barriers to the emergence of a discourse of cancer-related fatigue.
OBJECTIVE
Cancer-related fatigue (CRF) is a potentially chronic condition that is inadequately discussed, diagnosed and treated. This study examined the factors that contribute to the absence of a discourse of CRF.


METHODS
A thematic discourse analysis was carried out on the 'additional comments' left by 73 fatigued cancer patients and survivors as part of a questionnaire study on CRF.


RESULTS
The findings indicated that conflict between patients' own conceptualisations of CRF and those of family/friends and/or medical professionals hampers social and medical dialogue of CRF. Fatigue forms a part of patients' ongoing cancer identity even after cancer treatment has been completed; however, because of the dominance of wider social discourses on recovery from illness and cancer survivorship, others fail to recognise individual narratives of CRF when these deviate from or oppose such established discourses. Furthermore, the development of a discourse of CRF is actively obstructed because the enormity of cancer invalidates and overshadows patients' postcancer experiences.


CONCLUSIONS
'Additional comments' are a rich source of data that can give insight into issues facing patients. Beyond the lack of recognition, support and interventions available for CRF, broader discourses of health, illness and cancer hamper communication regarding this side effect.
a School of Psychology , Trinity College Dublin , Dublin , Ireland.
Maria M
MM
Pertl
Jean
J
Quigley
David
D
Hevey
D000328:Adult; D001294:Attitude to Health; D003142:Communication; D005221:Fatigue / Q000209:etiology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000150:complications* / Q000523:psychology; D036301:Qualitative Research; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology*