Understanding the lived experience of Latino adolescent and young adult survivors of childhood cancer.
OBJECTIVE
The purpose of this study was to investigate the experience of surviving cancer for Latino adolescents and young adult (AYA) survivors of pediatric cancer.


METHODS
Using a phenomenological approach, this study focused on the experience of cancer survivorship through in-depth interviews with 14 Latino AYA survivors (16-29 years) diagnosed as young children (0-15 years) and at least 1 year post-treatment


RESULTS
Four essential themes about the Latino AYA experience as childhood cancer survivors emerged from analysis: borrowed strength of family and hospital staff; sustained positive attitude; perceived vulnerability; branded a cancer survivor. According to these participants, the lived experience of surviving cancer was predominately positive. These emerging adults were able to focus on the positive lessons learned from their cancer experience such as the importance of personal relationships and an optimistic outlook on life. Yet, it was clear that long after these survivors had been labeled "cured" by the medical team, cancer continued to be a large part of their existence.


CONCLUSIONS
The results indicate that these emerging adults faced their cancer experience with optimism, leaned on relationships with family and health care professionals, and demonstrated resilience through their cancer treatment and beyond.


CONCLUSIONS
This unique description of Latino survivors' experiences demonstrates that they simultaneously face uncertainty and identify positive influences of the cancer experience in particular unwavering familial support. These findings provide opportunities for health care providers to better understand this rapidly growing population and to create culturally resonant programs that can promote their long-term health and well being.
School of Social Work, University of Texas at Austin, 1 University Station, D3500, Austin, TX, 78712, USA, farya@utexas.edu.
Farya
F
Phillips
Barbara L
BL
Jones
D000293:Adolescent; D000328:Adult; D017668:Age of Onset; D001294:Attitude to Health; D005195:Family Relations; D006630:Hispanic or Latino / Q000523:psychology*; D065026:Hope; D006801:Humans; D009369:Neoplasms / Q000453:epidemiology / Q000523:psychology*; D011369:Professional-Patient Relations; D011788:Quality of Life; D057545:Social Stigma; D012944:Social Support; D017741:Survivors / Q000523:psychology*; D055815:Young Adult