title: Registration of Alzheimer's disease in Taiwan: patient and informant.
abstract: BACKGROUND
  To obtain updated data of patients with Alzheimer's disease (AD) and their informants in Taiwan with the aim of fostering and supporting collaborative research.
  
  
  METHODS
  In total, 691 patients with the diagnosis of AD were recruited at 6 sites in Taiwan. The Uniform Data Set (UDS; form A) was administrated.
  
  
  RESULTS
  The mean age of the patients with AD was 79.3 ± 7.7 years and the mean age of informants was 57.5 ± 13.7 years. In all, 69% of the informants lived with patients and 77% of patients lived with spouse, partner, or children; 11% had 1 sibling with dementia, 1.8% had 2 siblings with dementia, and 0.5% had 3 or more siblings with dementia.
  
  
  CONCLUSIONS
  We have reported the updated status of AD in Taiwan through a UDS that will foster future collaboration among countries using UDS. The updated information of patients with AD and their informants will direct the future care of AD in Taiwan.
authors.affiliation: 1Department of Neurology, Changhua Christian Hospital, Changhua, Taiwan.
authors.forename: Wen-Fu
authors.initials: WF
authors.lastname: Wang
authors.forename: Pai-Yi
authors.initials: PY
authors.lastname: Chiu
authors.forename: Yu-Te
authors.initials: YT
authors.lastname: Lin
authors.forename: Chaur-Jong
authors.initials: CJ
authors.lastname: Hu
authors.forename: Jong-Ling
authors.initials: JL
authors.lastname: Fuh
authors.forename: Yuan-Han
authors.initials: YH
authors.lastname: Yang
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D000544:Alzheimer Disease / Q000453:epidemiology*; D017028:Caregivers / Q000706:statistics & numerical data*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D012042:Registries; D012111:Residence Characteristics / Q000706:statistics & numerical data*; D013624:Taiwan / Q000453:epidemiology
keywords: Alzheimer’s disease; Taiwan; Uniform Data Set; informant; living situation; registration