title: Coping with SLE: just in case vs. just in time: nurse's perspective.
abstract: This paper considers the experiences of people with lupus in comparison with those with diabetes, and discusses the impact of lupus specialist nurses in information-giving and education under the guise of 'just in case' vs. 'just in time'. Now recognized as a difficult condition to diagnose, lupus can lead to significant worry and distress especially during delays to diagnosis and times of high disease activity. Providing appropriate, individualized information to people with lupus is embedded in specialist nursing practice and enables individuals to use the tools of self-management approaches in gaining control over everyday symptoms.
authors.affiliation: Royal National Hospital for Rheumatic Diseases NHS Foundation Trust, Bath, UK.
authors.forename: S
authors.initials: S
authors.lastname: Brown
mesh_terms: D000223:Adaptation, Psychological; D003920:Diabetes Mellitus / Q000451:nursing; D006801:Humans; D008180:Lupus Erythematosus, Systemic / Q000451:nursing* / Q000503:physiopathology / Q000523:psychology; D024802:Nurse's Role; D010353:Patient Education as Topic / Q000379:methods*; D012648:Self Care / Q000379:methods; D012720:Severity of Illness Index; D013041:Specialties, Nursing
keywords: Lupus specialist nurses; communication; education; information; self-management