title: Health education literacy in patients with chronic musculoskeletal diseases: development of a new questionnaire and sociodemographic predictors.
abstract: It was our aim to develop a questionnaire for patients with chronic musculoskeletal diseases to self-report their health education literacy, to analyse the psychometric properties of the instrument and to test hypotheses concerning sociodemographic predictors of health education literacy. A total of 577 patients with chronic back pain or osteoarthritis who underwent inpatient rehabilitation were surveyed. The resulting 'HELP questionnaire' (health education literacy of patients with chronic musculoskeletal diseases) consists of 18 items and three scales (comprehension of medical information, applying medical information, communicative competence in provider interactions). The instrument's psychometric properties are good (Cronbach's alpha between 0.88 and 0.95, unidimensionality and Rasch model fit established). Our sample's average level of self-reported health education literacy is quite high. However, 20-30% of the patients admitted to having difficulty understanding important aspects of health education programmes (i.e. comprehending what medical information means in relation to their disease). The variance explained by sociodemographic and basic medical variables is small (4-8%). Greater effort is required to make health education programmes easier to understand. There is a need for more research on interindividual variability of complex aspects of health literacy.
authors.affiliation: Institute of Quality Management and Social Medicine, University Freiburg - Medical Center, Engelbergerstr. 21, D-79106 Freiburg, Germany.
authors.forename: Erik
authors.initials: E
authors.lastname: Farin
authors.forename: Antje
authors.initials: A
authors.lastname: Ullrich
authors.forename: Michaela
authors.initials: M
authors.lastname: Nagl
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001416:Back Pain / Q000534:rehabilitation*; D002908:Chronic Disease; D003142:Communication; D004522:Educational Status; D005260:Female; D006266:Health Education / Q000592:standards*; D057220:Health Literacy; D006801:Humans; D008297:Male; D008875:Middle Aged; D010003:Osteoarthritis / Q000534:rehabilitation*; D011369:Professional-Patient Relations; D011594:Psychometrics; D011795:Surveys and Questionnaires