title: Who receives home-based perinatal palliative care: experience from Poland.
abstract: BACKGROUND
  The current literature suggests that perinatal palliative care (PPC) programs should be comprehensive, initiated early, and integrative. So far there have been very few publications on the subject of home-based PC of newborns and neonates. Most publications focus on hospital-based care, mainly in the neonatal intensive care units.
  
  
  OBJECTIVE
  To describe the neonates and infants who received home-based palliative care in Lodz Region between 2005 and 2011.
  
  
  METHODS
  A retrospective review of medical records.
  
  
  RESULTS
  53 neonates and infants were admitted to a home hospice in Lodz Region between 2005 and 2011. In general, they are a growing group of patients referred to palliative care. Congenital diseases (41%) were the primary diagnoses; out of 53 patients 16 died, 20 were discharged home, and 17 stayed under hospice care until 2011. The most common cause of death (56%) was cardiac insufficiency. Neurological symptoms (72%) and dysphagia (58%) were the most common clinical problems. The majority of children (45%) had a feeding tube inserted and were oxygen dependent (45%); 39 families received psychological care and 31 social supports.
  
  
  CONCLUSIONS
  For terminally ill neonates and infants, perinatal palliative care is an option which improves the quality of their lives and provides the family with an opportunity to say goodbye.
authors.affiliation: Pediatric Palliative Care Unit, Department of Pediatrics, Oncology, Hematology and Diabetology, Medical University of Lodz, 36/50 Sporna Street, 91-738 Lodz, Poland ; Gajusz Foundation, Pediatric Palliative Care Center, Home Hospice for Children of Lodz Region, 87 Dąbrowskiego Street, 93-271 Lodz, Poland.
authors.forename: Aleksandra
authors.initials: A
authors.lastname: Korzeniewska-Eksterowicz
authors.forename: Łukasz
authors.initials: Ł
authors.lastname: Przysło
authors.forename: Bogna
authors.initials: B
authors.lastname: Kędzierska
authors.forename: Małgorzata
authors.initials: M
authors.lastname: Stolarska
authors.forename: Wojciech
authors.initials: W
authors.lastname: Młynarski
mesh_terms: D006699:Home Care Services; D017051:Hospice Care; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D010166:Palliative Care; D018743:Perinatal Care; D004364:Pharmaceutical Preparations; D011044:Poland; D015995:Prevalence
chemical_list: D004364:Pharmaceutical Preparations