title: Development and validation of a pediatric IBD knowledge inventory device: the IBD-KID.
abstract: OBJECTIVE
  Questionnaires exist to assess inflammatory bowel disease (IBD)-related knowledge of adults. Owing to wording and content concerns, these were believed to be inappropriate for use in pediatric patients. The aim of this study was to develop a questionnaire to assess disease-related knowledge of pediatric patients with IBD and their parents.
  
  
  METHODS
  Following a formal process of item generation and reduction, the IBD-Knowledge Inventory Device was developed and pilot tested. It was administered to 10- to 17-year-old patients with IBD, and to 1 of each of their parents. To evaluate its discriminatory validity, pediatric residents, nurses, and ward clerks completed the questionnaire.
  
  
  RESULTS
  A total of 99 patients (mean 42, Crohn disease 46, age 14(±2) years) and 99 parents completed the IBD-Knowledge Inventory Device. Parent knowledge scores, 15(±4), were higher than those of patients, 11(±4), P < 0.001. Patient and parent knowledge scores were strongly correlated (r = 0.62, P < 0.001). Patient knowledge score was significantly related to disease type (Crohn disease scored higher than ulcerative colitis, P = 0.004) and to perceived knowledge level (P < 0.001) by regression analysis. Similarly, parent knowledge score was significantly related to sex (girls scored higher, P = 0.014), postsecondary education (P < 0.001), and perceived knowledge level (P = 0.002). The questionnaire scores of 23 were 19, 16, and 10, respectively, for residents, nurses, and ward clerks. Both residents and nurses scored significantly higher than ward clerks (P = 0.001 for both).
  
  
  CONCLUSIONS
  A valid IBD-related knowledge assessment questionnaire was developed for use in older children and adolescents with IBD and their parents.
authors.affiliation: *Department of Pediatrics, Division of Gastroenterology, Dalhousie University, Halifax, Nova Scotia, Canada †Department of Paediatrics, University of Otago (Christchurch), Christchurch, New Zealand.
authors.forename: Derek
authors.initials: D
authors.lastname: Haaland
authors.forename: Andrew S
authors.initials: AS
authors.lastname: Day
authors.forename: Anthony
authors.initials: A
authors.lastname: Otley
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D003093:Colitis, Ulcerative; D003424:Crohn Disease; D004522:Educational Status; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D010290:Parents; D011788:Quality of Life; D012044:Regression Analysis; D012737:Sex Factors; D011795:Surveys and Questionnaires / Q000592:standards*