title: Creating research capacity through a tribally based institutional review board.
abstract: Tribal groups work tirelessly to maintain sovereignty rights, preserving and upholding tribal authority and protection over their land, people, businesses, and health. Moreover, the conduct of health science research by outsiders has had its share of an unethical, misguided, and abusive past. Tribally based institutional review boards (IRBs) are addressing these issues in an effort to control new health science research, set their own research agenda, and protect their people in the same spirit as has been accomplished through the perpetuation of sovereignty rights. We describe the success of a tribally based IRB at creating new capacity for health research and enhanced levels of trust, including bidirectional cultural education between academic researchers and tribal IRB committee members.
authors.affiliation: Deborah J. Morton and Joely Proudfit are with the California Indian Culture and Sovereignty Center, California State University, San Marcos. Daniel Calac, Martina Portillo, and Romelle Majel-McCauley are with Indian Health Council Inc, Pauma Valley, CA. Geneva Lofton-Fitzsimmons, Theda Molina, Raymond Flores, and Barbara Lawson-Risso are Luiseño tribal community leaders.
authors.forename: Deborah J
authors.initials: DJ
authors.lastname: Morton
authors.forename: Joely
authors.initials: J
authors.lastname: Proudfit
authors.forename: Daniel
authors.initials: D
authors.lastname: Calac
authors.forename: Martina
authors.initials: M
authors.lastname: Portillo
authors.forename: Geneva
authors.initials: G
authors.lastname: Lofton-Fitzsimmons
authors.forename: Theda
authors.initials: T
authors.lastname: Molina
authors.forename: Raymond
authors.initials: R
authors.lastname: Flores
authors.forename: Barbara
authors.initials: B
authors.lastname: Lawson-Risso
authors.forename: Romelle
authors.initials: R
authors.lastname: Majel-McCauley
mesh_terms: D035843:Biomedical Research / Q000941:ethics; D002170:Canada; D057191:Capacity Building / Q000941:ethics / Q000379:methods*; D019058:Community Networks; D054521:Cultural Competency / Q000458:organization & administration; D028744:Ethics Committees, Research; D006801:Humans; D007198:Indians, North American; D014481:United States