title: Can I access my personal genome? The current legal position in the UK.
abstract: This paper discusses the nature of genomic information, and the moral arguments in support of an individual's right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue.
authors.affiliation: *Department of Population Health, University of Oxford, Oxford, UK.
authors.forename: Jane
authors.initials: J
authors.lastname: Kaye
authors.forename: Nadja
authors.initials: N
authors.lastname: Kanellopoulou
authors.forename: Naomi
authors.initials: N
authors.lastname: Hawkins
authors.forename: Heather
authors.initials: H
authors.lastname: Gowans
authors.forename: Liam
authors.initials: L
authors.lastname: Curren
authors.forename: Karen
authors.initials: K
authors.lastname: Melham
mesh_terms: D030541:Databases, Genetic; D030661:Genetic Privacy / Q000941:ethics / Q000331:legislation & jurisprudence*; D036281:Genetic Research / Q000941:ethics / Q000331:legislation & jurisprudence*; D005820:Genetic Testing / Q000941:ethics / Q000331:legislation & jurisprudence*; D015894:Genome, Human; D006801:Humans; D033283:Patient Access to Records / Q000941:ethics / Q000331:legislation & jurisprudence*; D006113:United Kingdom
keywords: DNA sequencing; bioethics; genetic research; genome; research ethics; research findings