title: [Collection and processing of personal data to evaluate cancer screening programmes - results of a survey of the German population in light of the bill 'early detection of cancer and cancer registries'].
abstract: In a representative German sample, 62.1% of participants of cancer screening interventions indicated willingness to provide personal data for data-linkage with cancer registries. An agreement of over 90% is deemed necessary to conduct a meaningful population-based evaluation. The 'early detection of cancer and cancer regis-tries' bill proposed a procedure based on the use of pseudonyms only. This way personal consent is not required but participants are granted the right to object.
authors.affiliation: Arbeitsgemeinschaft Dermatologische Prävention e.V., Hamburg.
authors.forename: F
authors.initials: F
authors.lastname: Greiner
authors.forename: S
authors.initials: S
authors.lastname: Nolte
authors.forename: A
authors.initials: A
authors.lastname: Waldmann
authors.forename: A
authors.initials: A
authors.lastname: Katalinic
authors.forename: E W
authors.initials: EW
authors.lastname: Breitbart
mesh_terms: D055088:Early Detection of Cancer / Q000706:statistics & numerical data*; D057286:Electronic Health Records / Q000706:statistics & numerical data*; D005858:Germany / Q000453:epidemiology; D055991:Health Records, Personal; D006801:Humans; D007258:Informed Consent / Q000706:statistics & numerical data*; D009369:Neoplasms / Q000453:epidemiology*; D010349:Patient Compliance; D057240:Patient Preference / Q000706:statistics & numerical data*; D012042:Registries / Q000706:statistics & numerical data*