title: Concordance of National Cancer Registration with self-reported breast, bowel and lung cancer in England and Wales: a prospective cohort study within the UK Collaborative Trial of Ovarian Cancer Screening.
abstract: BACKGROUND
  It has been suggested that lower UK cancer survival may be due to incomplete case ascertainment by cancer registries.
  
  
  METHODS
  We assessed concordance between self-reported breast, bowel and lung cancer and cancer registration (CR) for 1995-2007 in England and Wales in the UK Collaborative Trial of Ovarian Cancer Screening.
  
  
  RESULTS
  Concordance of breast cancer CR was higher (94.7%:95% CI: 94.1-95.3%) than for bowel (85.1%:95% CI: 82.1-87.8%) and lung (85.4%:95% CI: 76.3-92.0%). CR concordance was lower in breast cancer (94.5% vs 98.8%) survivors compared with deceased but the difference was small. No difference was found for bowel (85.3% vs 94.6%) or lung (87.1% vs 90.5%) cancer.
  
  
  CONCLUSIONS
  Concordance of CR and self-reported cancer is high. Incomplete registration is unlikely to be a major cause of lower UK survival rates.
authors.affiliation: Gynaecological Cancer Research Centre, Women's Cancer, Institute for Women's Health, University College London, London, UK.
authors.forename: A
authors.initials: A
authors.lastname: Gentry-Maharaj
authors.forename: E-O
authors.initials: EO
authors.lastname: Fourkala
authors.forename: M
authors.initials: M
authors.lastname: Burnell
authors.forename: A
authors.initials: A
authors.lastname: Ryan
authors.forename: S
authors.initials: S
authors.lastname: Apostolidou
authors.forename: M
authors.initials: M
authors.lastname: Habib
authors.forename: A
authors.initials: A
authors.lastname: Sharma
authors.forename: M
authors.initials: M
authors.lastname: Parmar
authors.forename: I
authors.initials: I
authors.lastname: Jacobs
authors.forename: U
authors.initials: U
authors.lastname: Menon
mesh_terms: D000368:Aged; D001943:Breast Neoplasms / Q000453:epidemiology*; D015331:Cohort Studies; D055088:Early Detection of Cancer / Q000706:statistics & numerical data*; D004739:England / Q000453:epidemiology; D005260:Female; D006801:Humans; D007414:Intestinal Neoplasms / Q000453:epidemiology*; D008175:Lung Neoplasms / Q000453:epidemiology*; D008875:Middle Aged; D011446:Prospective Studies; D012042:Registries / Q000592:standards*; D057566:Self Report; D014852:Wales / Q000453:epidemiology