title: Breaking through the silence: the experience of living with HIV-positive serostatus, and its implications on disclosure.
abstract: AIDS has reached pandemic proportions and despite advances in medical treatment both the medical and social consequences of HIV-positive serostatus continue to be of concern throughout the world. In countries with greater access to antiretroviral therapy (ARV), HIV/AIDS it is no longer defined as fatal, but rather a chronic disease, thereby this study seeks to understand the experience of individuals living with HIV-positive serostatus, a multifaceted disease, from the time the infection is diagnosed through the four post-diagnosis years, and in particular its implications on the issue of disclosure. A qualitative analysis was conducted, based on 13 in-depth interviews with participants who are HIV-positive and the data was analyzed by inductive content analysis. The results identify six themes, four central elements that compose the experience of living with HIV: the emotional experience, the stigma attached to HIV, the inner dialogue, and disclosure. A three-phase coping process and personality differences were found, all of which will be discussed. The issue of disclosure was found to be cardinal and problematic in its impact on the patient's wellbeing.
authors.affiliation: a Bob Shapell School of Social Work, Tel Aviv University , Tel Aviv , Israel.
authors.forename: Rena
authors.initials: R
authors.lastname: Feigin
authors.forename: Yaffa
authors.initials: Y
authors.lastname: Sapir
authors.forename: Naama
authors.initials: N
authors.lastname: Patinkin
authors.forename: Dan
authors.initials: D
authors.lastname: Turner
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D030881:Disclosure; D005260:Female; D006679:HIV Seropositivity / Q000523:psychology* / Q000628:therapy; D006801:Humans; D007407:Interviews as Topic; D007557:Israel; D008297:Male; D008875:Middle Aged; D036301:Qualitative Research; D012725:Sexual Behavior / Q000523:psychology; D057545:Social Stigma; D012944:Social Support; D013315:Stress, Psychological