title: Rethinking the vulnerability of minority populations in research.
abstract: The Belmont Report, produced in 1979 by a United States government commission, includes minority populations among its list of vulnerable research participants. In this article, we consider some previous attempts to understand the vulnerability of minorities in research, and then provide our own account. First we examine the question of the representation of minorities in research. Then we argue that the best understanding of minorities, vulnerability, and research will begin with a broad understanding of the risk of individual members of minority groups to poor health outcomes. We offer a typology of vulnerability to help with this task. Finally, we show how researchers should be guided by this broad analysis in the design and execution of their research.
authors.affiliation: Wendy Rogers is with the Department of Philosophy and the Australian School of Advanced Medicine, Macquarie University, Sydney. Margaret Meek Lange is with the Department of Philosophy, Macquarie University.
authors.forename: Wendy
authors.initials: W
authors.lastname: Rogers
authors.forename: Margaret Meek
authors.initials: MM
authors.lastname: Lange
mesh_terms: D035843:Biomedical Research / Q000941:ethics; D017408:Guidelines as Topic; D006805:Human Experimentation / Q000941:ethics; D006801:Humans; D008913:Minority Groups; D014481:United States; D035862:Vulnerable Populations