title: Invisible hands: the role of highly involved families in long-term residential care.
abstract: Care work by family and friends is recognized as a cornerstone of community-based care for older adults; however, the role of families in institutional-based care work has been less well understood and researched. Drawing on findings from a critical ethnographic study, this article aims to examine the unique role of highly involved family members within long-term residential care. The study took place between October 2006 and April 2008 in two facilities in British Columbia, Canada. A purposive sample of 11 highly involved family members participated in in-depth interviews and participant observations. The main themes were "Hands-On," "Hands-Off," "Surveillance," and "Interlopers." These themes illuminate the ways in which highly involved family members engaged in care work, including how they positioned themselves and were positioned by staff and administrators. Implications of the study focus on the need to include families in philosophies of care and policies that shape care work in long-term residential care.
authors.affiliation: 1University of British Columbia, Vancouver, Canada.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Baumbusch
authors.forename: Alison
authors.initials: A
authors.lastname: Phinney
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D001955:British Columbia; D003256:Community Participation; D005190:Family / Q000523:psychology*; D005260:Female; D006707:Homes for the Aged / Q000458:organization & administration*; D006801:Humans; D008134:Long-Term Care / Q000379:methods*; D008297:Male; D008875:Middle Aged; D009723:Nurse-Patient Relations; D009735:Nursing Homes / Q000458:organization & administration*; D009740:Nursing Staff / Q000523:psychology*; D012944:Social Support
keywords: care work; critical ethnography; family; long-term residential care