title: Ethical community-engaged research: a literature review.
abstract: Health research has relied on ethical principles, such as those of the Belmont Report, to protect the rights and well-being of research participants. Community-based participatory research (CBPR), however, must also consider the rights and well-being of communities. This requires additional ethical considerations that have been extensively discussed but not synthesized in the CBPR literature. We conducted a comprehensive thematic literature review and summarized empirically grounded discussions of ethics in CBPR, with a focus on the value of the Belmont principles in CBPR, additional essential components of ethical CBPR, the ethical challenges CBPR practitioners face, and strategies to ensure that CBPR meets ethical standards. Our study provides a foundation for developing a working definition and a conceptual model of ethical CBPR.
authors.affiliation: Lisa Mikesell is with the Communication Department, School of Communication and Information, Rutgers University, New Brunswick, NJ. Elizabeth Bromley is with the Semel Institute Center for Health Services and Society, Department of Psychiatry and Biobehavioral Sciences, University of California, Los Angeles, and the Greater Los Angeles VA Healthcare System. Dmitry Khodyakov is with the RAND Corporation, Santa Monica, CA.
authors.forename: Lisa
authors.initials: L
authors.lastname: Mikesell
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Bromley
authors.forename: Dmitry
authors.initials: D
authors.lastname: Khodyakov
mesh_terms: D055812:Community-Based Participatory Research / Q000941:ethics*; D006801:Humans; D011634:Public Health