title: The burden of caring for dementia patients: caregiver reports from a cross-sectional hospital-based study in China.
abstract: The impact of dementia care on caregivers' professional, personal, emotional and social well-being was measured in a cohort of 1,387 caregivers in seven regions across mainland China, using a Chinese version of the Zarit Burden Interview (ZBI) and four supplementary questions. Caregivers also estimated costs of care and medical resource utilization. Caregiver burden was generally low to moderate. Dementia care had the greatest impact on caregivers' professional lives, with 25.5% reporting a reduced work schedule in the past month. Lost work time was greater for caregivers of patients with previously diagnosed dementia than for those with newly diagnosed dementia. Average monthly out-of-pocket costs of dementia care exceeded national average monthly incomes of rural and urban residents. These findings highlight the obstacles facing the country with the fastest-growing elderly population in the world.
authors.affiliation: Latin America and Primary Care, Emerging Markets & Established Products Business Unit, Outcomes Research and Epidemiology, Pfizer Inc., 235 East 42nd Street, NY, USA.
authors.forename: Joaquín F
authors.initials: JF
authors.lastname: Mould-Quevedo
authors.forename: Boxiong
authors.initials: B
authors.lastname: Tang
authors.forename: Eran
authors.initials: E
authors.lastname: Harary
authors.forename: Ricky
authors.initials: R
authors.lastname: Kurzman
authors.forename: Sharon
authors.initials: S
authors.lastname: Pan
authors.forename: Jiyue
authors.initials: J
authors.lastname: Yang
authors.forename: Juan
authors.initials: J
authors.lastname: Qiao
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000191:economics / Q000523:psychology*; D002681:China; D015331:Cohort Studies; D017281:Cost of Illness; D003430:Cross-Sectional Studies; D003704:Dementia / Q000191:economics / Q000628:therapy*; D005260:Female; D005382:Financing, Personal / Q000706:statistics & numerical data*; D006801:Humans; D008297:Male; D008875:Middle Aged; D010549:Personal Satisfaction; D011795:Surveys and Questionnaires; D013997:Time Factors