title: Ethical, legal and social implications of rare diseases and orphan drugs in Europe: meeting report of a Brocher symposium.
abstract: Ethical, legal and social implications of rare diseases and orphan drugs in Europe (Brocher symposium) Geneva, Switzerland 18-19 April 2013 As part of the Scientific Program of the Fondation Brocher, a two-day symposium on orphan drugs and rare diseases was held on the shores of Lac Léman in Geneva. Specific focus was on the ethical, legal and social implications of rare diseases and orphan drugs in Europe. The symposium gathered about 30 international stakeholders and experts, representing different scientific disciplines, the pharmaceutical industry and patient representatives.
authors.affiliation: KU Leuven Department of Pharmaceutical and Pharmacological Sciences, Herestraat 49, PO Box 521, 3000 Leuven, Belgium.
authors.forename: Eline
authors.initials: E
authors.lastname: Picavet
authors.forename: David
authors.initials: D
authors.lastname: Cassiman
authors.forename: Wim
authors.initials: W
authors.lastname: Pinxten
authors.forename: Steven
authors.initials: S
authors.lastname: Simoens
mesh_terms: D002986:Clinical Trials as Topic / Q000379:methods; D004345:Drug Industry / Q000379:methods*; D005060:Europe; D006801:Humans; D009965:Orphan Drug Production / Q000941:ethics / Q000331:legislation & jurisprudence / Q000379:methods*; D035583:Rare Diseases / Q000188:drug therapy* / Q000191:economics