title: Mothers' lived experiences of support when living with young children with congenital heart defects.
abstract: OBJECTIVE
  The purpose of this study was to illuminate the meanings of support as disclosed by mothers of children with congenital heart defects (CHD).
  
  
  METHODS
  Narrative interviews were conducted with 10 mothers of children with CHD. A phenomenological-hermeneutic method was used for interpretation of the transcribed interviews.
  
  
  RESULTS
  The comprehensive understanding of mothers' lived experiences of support emerged as the experiences of receiving good support, receiving "poor support," and absence of support.
  
  
  CONCLUSIONS
  Mothers receiving person-centered and family-centered care feel more supported and are more likely to adapt to the stresses of parenting a child with CHD.
authors.affiliation: Department of Nursing, Umeå University, Örnsköldsvik, Sweden.
authors.forename: Elisabeth
authors.initials: E
authors.lastname: Bruce
authors.forename: Catrine
authors.initials: C
authors.lastname: Lilja
authors.forename: Karin
authors.initials: K
authors.lastname: Sundin
mesh_terms: D005192:Family Health; D006330:Heart Defects, Congenital / Q000523:psychology / Q000628:therapy; D006801:Humans; D007407:Interviews as Topic; D008019:Life Style; D009035:Mothers / Q000523:psychology*; D018907:Privacy; D036301:Qualitative Research; D012944:Social Support; D013315:Stress, Psychological
keywords: Children; congenital heart defect; mother; phenomenological-hermeneutic method; support