title: Differences in perception of hearing handicap between cochlear implant users and their spouses.
abstract: OBJECTIVE
  To examine the relationship between patient and proxy ratings of health-related quality of life (HRQL) in patients with cochlear implants.
  
  
  METHODS
  Prospective survey.
  
  
  METHODS
  Eighty-two adult cochlear implant recipients and their spouses/partners were asked to complete the Nijmegen Cochlear Implant Questionnaire (NCIQ) and the Hearing Participation Scale (HPS) that were mailed to them.
  
  
  RESULTS
  For the NCIQ, there were 38 useable responses from recipients and 31 useable responses from the partners. There were 27 paired and useable questionnaires (i.e., from both the recipient and his/her partner). For the HPS, there were 42 useable responses from recipients and 36 useable responses from the partners. Of these, there were 35 paired questionnaires. There was good agreement between partners and patients with both the HPS (r = 0.62) and the NCIQ (r = 0.80). There was a significant statistical difference in the scoring of the Basic Sound Perception subscale between the two groups (P = .039), with spouses under-rating performance in this subscale.
  
  
  CONCLUSIONS
  For patients with cochlear implants, patients' partners corroborate patients' self-reported HRQL. In cases in which patients have sensory impairment, there may be an additional role for proxy ratings of HRQL to give a more complete assessment of functional limitations.
authors.affiliation: Division of Otolaryngology-Head and Neck Surgery, Department of Surgery, Dalhousie University, Halifax, Nova Scotia.
authors.forename: Dipan
authors.initials: D
authors.lastname: Mistry
authors.forename: Jillian
authors.initials: J
authors.lastname: Ryan
authors.forename: Heather
authors.initials: H
authors.lastname: Maessen
authors.forename: Manohar
authors.initials: M
authors.lastname: Bance
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001307:Auditory Perception; D003054:Cochlear Implants; D012048:Correction of Hearing Impairment / Q000379:methods*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D019986:Persons with Hearing Disabilities / Q000534:rehabilitation*; D011446:Prospective Studies; D011788:Quality of Life; D018454:Spouses; D011795:Surveys and Questionnaires
keywords: Quality of life; cochlear implant; proxy rating