title: Paradigm shifts in disability and health: toward more ethical public health research.
abstract: Disability is often considered a health outcome disproportionately experienced by minority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address ethical challenges and promote safe, respectful public health research. Examples include applying human rights frameworks, providing accommodations, attending to power, countering legacies of deficits-based models of disability, and transforming access to science more broadly. Collectively, these strategies can encourage broader engagement in safe, respectful, inclusive public health research aimed at promoting the health and well-being of people with developmental disabilities.
authors.affiliation: Katherine E. McDonald is with the Department of Public Health, Food Studies, and Nutrition and the Burton Blatt Institute, Syracuse University, Syracuse, NY. Dora M. Raymaker is with the Academic Autistic Spectrum Partnership in Research and Education and the Systems Science Program, Portland State University, Portland, OR.
authors.forename: Katherine E
authors.initials: KE
authors.lastname: McDonald
authors.forename: Dora M
authors.initials: DM
authors.lastname: Raymaker
mesh_terms: D003068:Coercion; D006233:Persons with Disabilities; D032984:Ethics, Research; D006806:Human Rights; D006801:Humans; D011634:Public Health / Q000941:ethics*; D014481:United States