title: Moving forward: breaking the cycle of mistrust between American Indians and researchers.
abstract: American Indians (AIs) have some of the poorest documented health outcomes of any racial/ethnic group. Research plays a vital role in addressing these health disparities. Historical and recent instances of unethical research, specifically the Havasupai diabetes project, have generated mistrust in AI communities. To address the concerns about unethical research held by some AIs in the Heartland (Midwest), the Center for American Indian Community Health (CAICH) has launched a series of efforts to inform AIs about research participants' rights. CAICH educates health researchers about the importance of learning and respecting a community's history, culture, values, and wishes when engaging in research with that community. Through community-based participatory research, CAICH is also empowering AIs to assert their rights as research participants.
authors.affiliation: Christina M. Pacheco, Travis Brown, Melissa Filippi, K. Allen Greiner, and Christine M. Daley are with the Center for American Indian Community Health, University of Kansas Medical Center, Kansas City. Sean M. Daley is with the Center for American Indian Studies, Johnson County Community College, Overland Park, KS.
authors.forename: Christina M
authors.initials: CM
authors.lastname: Pacheco
authors.forename: Sean M
authors.initials: SM
authors.lastname: Daley
authors.forename: Travis
authors.initials: T
authors.lastname: Brown
authors.forename: Melissa
authors.initials: M
authors.lastname: Filippi
authors.forename: K Allen
authors.initials: KA
authors.lastname: Greiner
authors.forename: Christine M
authors.initials: CM
authors.lastname: Daley
mesh_terms: D001130:Arizona; D001800:Blood Specimen Collection / Q000941:ethics; D019058:Community Networks; D003920:Diabetes Mellitus / Q000453:epidemiology / Q000208:ethnology*; D032984:Ethics, Research; D063365:Genocide / Q000266:history; D049672:History, 19th Century; D049673:History, 20th Century; D006801:Humans; D007198:Indians, North American / Q000706:statistics & numerical data; D054525:Minority Health; D035502:Trust