title: [Life with haemophilia. The patient's perspective of ageing].
abstract: Patients with haemophilia are growing older and may be faced with age-dependent co-morbidities. To evaluate the impact of growing age in patients with haemophilia, a questionaire was sent to members of German patients' organisations DHG and IGH with focus on medical care and psychosocial questions. This questionnaire was answered by 466 individuals (aged 50 years, 21-85 years), predominantly suffering from severe haemophilia. The majority of individuals considered the question of substitution of factor concentrates in case of bleeding as most important. Concerns were expressed regarding the financial situation and lack of medical care in higher age. The results provide an insight into issues of growing age from the patient's perspective.
authors.affiliation: Priv.-Doz. Dr. Wolfgang Miesbach, Hämophiliezentrum Medizinische Klinik III, Institut für Transfusionsmedizin, J.-W.-Goethe-Universität Theodor-Stern-Kai 7, 60590 Frankfurt am Main, Tel. 069/63 01 50 51, Fax 069/603 01 67 38, E-Mail: Wolfgang.Miesbach@kgu.de.
authors.forename: W
authors.initials: W
authors.lastname: Miesbach
authors.forename: G
authors.initials: G
authors.lastname: Schelle
authors.forename: W
authors.initials: W
authors.lastname: Kalnins
mesh_terms: D000328:Adult; D017677:Age Distribution; D000368:Aged; D000369:Aged, 80 and over; D000375:Aging / Q000523:psychology*; D001294:Attitude to Health; D001779:Blood Coagulation Factors / Q000627:therapeutic use*; D005260:Female; D005858:Germany / Q000453:epidemiology; D057220:Health Literacy / Q000706:statistics & numerical data*; D006467:Hemophilia A / Q000188:drug therapy* / Q000453:epidemiology / Q000523:psychology*; D006801:Humans; D008297:Male; D008875:Middle Aged; D017678:Sex Distribution; D011795:Surveys and Questionnaires
chemical_list: D001779:Blood Coagulation Factors
keywords: Haemophilia; age; medical care