title: Health-related information exchange experiences of Jordanian women at breast cancer diagnosis.
abstract: The aim of this study was to explore Jordanian women's experiences of information exchange following diagnosis of early stage breast cancer. A purposive sample of 28 women who had surgery for early stage breast cancer within 6 months prior to the interview and had treatment at three hospitals in Central and Northern Jordan was recruited for the study. Data were collected using semi-structured individual interviews focused on women's communication experiences at diagnosis and during cancer treatment. Interviews were audio taped, transcribed verbatim in Arabic, and analyzed using conventional content analysis. Three main themes associated with information exchange were revealed as follows: (1) knowledge about breast cancer and its treatment, (2) communication of cancer diagnosis and treatment, and (3) educating on treatment side effects. Misconceptions about breast cancer risk factors, consequences of breast cancer treatment, and breast cancer-related symptoms were common among participants. Women made important health-related decisions based on misconceptions. Physician's information giving, availability, and responses to women's questions varied by their level of education and the type and location of treatment facility. Informational exchange experiences vary among Jordanian women diagnosed with breast cancer and raise concern over opportunities offered these women to engage in informed decision making. Findings suggest a need for nurses to assess the information needs of Jordanian women newly diagnosed with breast cancer and provide education tailored to individual needs. There is also a need to develop Arabic educational materials and make these available for patients at treatment facilities in all regions of Jordan.
authors.affiliation: Faculty of Nursing, Zarqa University, 257D Khawarezmi Building, Zarqa, Jordan, robeidat@buffalo.edu.
authors.forename: Rana F
authors.initials: RF
authors.lastname: Obeidat
authors.forename: Robin M
authors.initials: RM
authors.lastname: Lally
mesh_terms: D000328:Adult; D000368:Aged; D001294:Attitude to Health; D001943:Breast Neoplasms / Q000175:diagnosis* / Q000523:psychology* / Q000628:therapy; D003142:Communication; D003657:Decision Making; D019033:Delivery of Health Care, Integrated / Q000706:statistics & numerical data*; D005260:Female; D066275:Health Information Exchange; D007722:Health Knowledge, Attitudes, Practice; D006282:Health Personnel; D006801:Humans; D008875:Middle Aged; D010353:Patient Education as Topic; D010358:Patient Participation; D036301:Qualitative Research