title: [Need for creating Polish registry of multiple sclerosis patients].
abstract: Multiple sclerosis (MS) is the most common cause of neurological disability of young people. It is estimated that 40 000-60 000 people in the country suffer from MS, and approximately 2000 new cases are diagnosed annually. These are, however, estimated data and require verification by nation-wide research. Results published so far concern only certain regions of Poland. It is also vital to precisely describe the needs of patients in terms of immunomodulating treatment and to perform detailed pharmacoeconomical analysis. In order to estimate basic epidemiological parameters there is a need of creating, in imitation of many other countries, a national register of MS patients which would concentrate all assets concerning MS around this project. The article presented the most important of American and European databases and explained the basis of the Polish register of MS patients, which is already functioning in one of the regions.
authors.affiliation: dr n. med. Waldemar Brola, Oddział Neurologii, Szpital Specjalistyczny im. oew. £ukasza, ul. Gimnazjalna 41 B, 26-200 Końskie, tel. +48 41 390 22 59, 60 131 34 15, faks: +48 41 390 23 64, e-mail: wbrola@wp.pl.
authors.forename: W
authors.initials: W
authors.lastname: Brola
authors.forename: M
authors.initials: M
authors.lastname: Fudala
authors.forename: S
authors.initials: S
authors.lastname: Flaga
authors.forename: D
authors.initials: D
authors.lastname: Ryglewicz
mesh_terms: D016208:Databases, Factual / Q000706:statistics & numerical data; D018450:Disease Progression; D005062:European Union; D006301:Health Services Needs and Demand / Q000706:statistics & numerical data*; D006801:Humans; D007391:International Cooperation; D009103:Multiple Sclerosis / Q000453:epidemiology* / Q000517:prevention & control; D011044:Poland / Q000453:epidemiology; D011785:Quality Assurance, Health Care; D012042:Registries; D015203:Reproducibility of Results; D012720:Severity of Illness Index