title: Leveraging effective clinical registries to advance medical care quality and transparency.
abstract: Policy makers, payers, and the general public are increasingly focused on health care quality improvement. Measuring quality requires robust data systems that collect data over time, can be integrated with other systems, and can be analyzed easily for trends. The goal of this project was to study effective tools and strategies in the design and use of clinical registries with the potential to facilitate quality improvement, value-based purchasing, and public reporting on the quality of care. The research team worked with an expert panel to define characteristics of effectiveness, and studied examples of effective registries in cancer, cardiovascular care, maternity, and joint replacement. The research team found that effective registries were successful in 1 or more of 6 key areas: data standardization, transparency, accuracy/completeness of data, participation by providers, financial sustainability, and/or providing feedback to providers. The findings from this work can assist registry designers, sponsors, and researchers in implementing strategies to increase the use of clinical registries to improve patient care and outcomes.
authors.affiliation: 1 University of the Sciences , Philadelphia, Pennsylvania.
authors.forename: Tamar
authors.initials: T
authors.lastname: Klaiman
authors.forename: Valerie
authors.initials: V
authors.lastname: Pracilio
authors.forename: Laura
authors.initials: L
authors.lastname: Kimberly
authors.forename: Kate
authors.initials: K
authors.lastname: Cecil
authors.forename: Mark
authors.initials: M
authors.lastname: Legnini
mesh_terms: D032722:Advance Care Planning / Q000592:standards* / Q000639:trends; D019090:Case Management / Q000458:organization & administration; D032882:Comprehension; D005260:Female; D006801:Humans; D007256:Information Systems / Q000458:organization & administration*; D008297:Male; D011787:Quality of Health Care / Q000592:standards* / Q000639:trends; D012042:Registries; D012680:Sensitivity and Specificity; D014481:United States