title: Renal transplantation in the Roma ethnicity-do all patients have equal chance for transplantation?
abstract: Racial and ethnic disparities exist in access to kidney transplantation worldwide. The Roma people are often socially deprived, uneducated, and unemployed. We investigated all dialysis centers in Croatia to determine number of Roma people on dialysis as well as their access and reasons for eventual failure to enter the waiting list. There are 9463 registered Roma people in Croatia, however, the estimated number reaches 40,000. Twenty-five Roma patients required renal replacement therapy, giving a prevalence of 830 per million people (pmp), compared with 959 pmp among the general population. Average age at the start of dialysis was 29 vs 67 years; waiting time to kidney transplantation was 48.9 vs 53.5 months; mean age at the time of transplantation was 33.18 vs 48.01 years in Roma versus the general population respectively. One patient received a kidney allograft from a living unrelated spousal donor, and all others from deceased individuals. Patients were followed for 51.5 months (range, 6-240). The most frequent post-transplant complications were urinary tract infections. One patient lost a graft due to severe acute rejection caused by noncompliance. Two young patients were also noncompliant with immunosuppressive medications. One patient died with a functioning graft at 20 years after transplantation due to cardiovascular disease. Among 14 Roma patients currently been treated with hemodialysis in Croatia, 10 are old with clinical contraindications for transplantation; 1 is on the waiting list; 1 left hospitalization for pretransplant evaluation twice; 1 refused evaluation; and 1 is currently being evaluated for the waiting list. The Roma people have excellent access to renal transplantation in Croatia. Many of them refuse evaluation. More efforts should be invested in their education to improve compliance and their post-transplant outcomes.
authors.affiliation: Department of Nephrology, Arterial Hypertension, Dialysis and Transplantation, University Hospital Centre Zagreb, and School of Medicine University of Zagreb, Zagreb, Croatia. Electronic address: nina_basic@net.hr.
authors.forename: N
authors.initials: N
authors.lastname: Basic-Jukic
authors.forename: D
authors.initials: D
authors.lastname: Novosel
authors.forename: I
authors.initials: I
authors.lastname: Juric
authors.forename: P
authors.initials: P
authors.lastname: Kes
mesh_terms: D000328:Adult; D000368:Aged; D017523:Croatia; D005006:Ethnicity; D006801:Humans; D016030:Kidney Transplantation; D008875:Middle Aged; D017582:Renal Replacement Therapy; D006178:Romani People; D012935:Social Justice