title: Development of a Decision Aid about fertility preservation for women with breast cancer in The Netherlands.
abstract: OBJECTIVE
  To improve information provision about fertility preservation for breast cancer patients in the Netherlands, a web-based Decision Aid (DA) with additional values clarification exercise was developed according to the International Patient Decision Aid Standards criteria. This study reports on development of the DA.
  
  
  METHODS
  Development consisted of four stages: (I) development of a draft DA, (II) acceptability of the draft DA to patients, (III) understanding (knowledge) in healthy populations, (IV) acceptability of the revised DA among patients and physicians. The study population consisted of 185 participants: 20 patients, 17 physicians and 148 healthy volunteers.
  
  
  RESULTS
  The draft DA was considered to be relevant and understandable by patients, physicians and healthy volunteers. The values clarification exercise needed adaptation in explanation and navigation, which was done after stage II. Knowledge scores improved by 18% for lower educated women (from 4.1 (41%) to 5.9 (59%) correct answers), and by 34% for higher educated women after viewing the website (from 3.9 (39%) to 7.3 (73%) correct answers). Design of the DA was evaluated to be clear, but not always very appealing.
  
  
  CONCLUSIONS
  The DA was regarded as a relevant source of information that seemed coherent and understandable.
authors.affiliation: Department of Gynecology, Leiden University Medical Center (LUMC) , Leiden , the Netherlands .
authors.forename: Mirjam M
authors.initials: MM
authors.lastname: Garvelink
authors.forename: Moniek M
authors.initials: MM
authors.lastname: ter Kuile
authors.forename: Maarten J
authors.initials: MJ
authors.lastname: Fischer
authors.forename: Leoni A
authors.initials: LA
authors.lastname: Louwé
authors.forename: Carina G J M
authors.initials: CG
authors.lastname: Hilders
authors.forename: Judith R
authors.initials: JR
authors.lastname: Kroep
authors.forename: Anne M
authors.initials: AM
authors.lastname: Stiggelbout
mesh_terms: D000328:Adult; D001943:Breast Neoplasms / Q000601:surgery*; D003657:Decision Making; D003661:Decision Support Techniques; D005260:Female; D059247:Fertility Preservation / Q000523:psychology*; D006801:Humans; D009426:Netherlands; D011795:Surveys and Questionnaires; D014930:Women