So hard to say goodbye: transition from paediatric to adult cardiology care.
Important medical advances have created a large and growing population of adults who were diagnosed with congenital or paediatric-onset cardiovascular conditions as children and now require specialized cardiac care as adults. Although some adult patients continue to be cared for by paediatric cardiology programmes, guidelines recommend that patients transfer from paediatric to adult care at 18-21 years of age. Unfortunately, lapses in care during the transfer period are common and associated with poor health outcomes. Comprehensive transition programmes are necessary to maintain continuity of care and effectively prepare adolescents and young adults for the differences between paediatric and adult cardiac care programmes. Transition, unlike transfer, is an extended process that begins during childhood or early adolescence and focuses on patient education and fostering self-management skills and appropriate interdependence. The perspectives of patients, families, and care providers should be recognized and incorporated into transition programmes, and should be used to adapt strategies to meet the needs of individual patients and families. This Review summarizes the current knowledge on the transition of young patients from paediatric to adult cardiology care from the perspectives of all stakeholders, and offers practical recommendations for the development of transition programmes.
Toronto Congenital Cardiac Centre for Adults, Peter Munk Cardiac Centre, University Health Network, 585 University Avenue, Toronto, ON M5G 2N2, Canada.
Adrienne H
AH
Kovacs
Labatt Family Heart Centre, The Hospital for Sick Children, 555 University Avenue, Toronto, ON M5G 1X8, Canada.
Brian W
BW
McCrindle
D000293:Adolescent; D000328:Adult; D002309:Cardiology / Q000379:methods*; D002318:Cardiovascular Diseases / Q000628:therapy*; D002648:Child; D003266:Continuity of Patient Care / Q000458:organization & administration*; D006801:Humans; D010372:Pediatrics / Q000379:methods*; D060305:Transition to Adult Care / Q000458:organization & administration*; D055815:Young Adult