[Rare diseases, a public health issue].
Under the influence of patients' associations, rare diseases have gradually become recognised as a public health issue. A first Rare Diseases National Plan, from 2005-2008, endeavoured to facilitate diagnosis and access to care. A second Plan, for 2011-2014, aims to improve patient management and develop research and international cooperation. The Rare Diseases Platform provides an essential resource for families and professionals.
Alliance Maladies Rares, Plateforme Maladies Rares, 96 rue Didot, 75014 Paris, France.
Alain
A
Donnart
Viviane
V
Viollet
Marie
M
Roinet-Tournay
D005602:France; D006291:Health Policy; D006801:Humans; D011634:Public Health; D035583:Rare Diseases / Q000175:diagnosis* / Q000453:epidemiology / Q000628:therapy*