[Pierre Robin syndrome and support from associations].
Pierre Robin syndrome is a combination of three face and mouth malformations that affect nutrition, teething, language and sometimes breathing. In a context where information is lacking about this rare disease that affects one in 10,000 children, associations can facilitate access to specialised teams while providing families with helpful support and advice.
Association Tremplin, syndromes de Pierre Robin, 64 rue de Verdun prolongée, 62231 Blériot-Plage, France. contact@tremplin-spr.org
Eric
E
Brochard
Régine
R
Decotte
D002648:Child; D006801:Humans; D009939:Organizations, Nonprofit; D010855:Pierre Robin Syndrome / Q000628:therapy*; D012944:Social Support