title: [A therapeutic educational program in Parkinson's disease: ETPARK].
abstract: We developed a therapeutic educational program in Parkinson's disease (PD). The needs analysis for this program was performed through a survey involving 41 PD patients. This survey questionnaire was elaborated through the analysis of 395 patients' semi-directive interviews, performed in our specialized hospitalisation unit during explanation workshops between 2005 and 2007. We managed to design an educational program tailored to specificities of PD and according to the recommendations of the High Authority of Health in France (HAS). This program was based on individual sessions conducted by a nurse experienced in PD and trained in education. Collective workshops concerning specific themes such as physical therapy, communication, social supports, sleep disorders, stress management, therapies in PD could be proposed to volunteer patients and were performed by the nurse, a physiotherapist and a specialized practitioner. This program focused on skills structured in knowledge, expertise, and learning. It was intended for patients without any motor or cognitive severe impairment. We educated 231 patients between 2008 and 2012 individually and 113 in collective workshops. Patients had an interesting improvement in their self-esteem (6.2±1.4 before and 7.3±1.1 after one year of this educational program). This program has been validated by our regional medical agency and we performed a medico-economic study demonstrating a significant improvement in quality-of-life of educated patients without extra costs.
authors.affiliation: Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France. Electronic address: ory.f@chu-toulouse.fr.
authors.forename: F
authors.initials: F
authors.lastname: Ory Magne
authors.affiliation: Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France.
authors.forename: C
authors.initials: C
authors.lastname: Arcari
authors.affiliation: Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France.
authors.forename: C
authors.initials: C
authors.lastname: Canivet
authors.affiliation: Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France.
authors.forename: M
authors.initials: M
authors.lastname: Sarrail
authors.affiliation: Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France.
authors.forename: M H
authors.initials: MH
authors.lastname: Fabre
authors.affiliation: Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France.
authors.forename: C
authors.initials: C
authors.lastname: Mohara
authors.affiliation: Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France; UMR 825 Inserm, imagerie cérébrale et handicaps neurologiques, université Toulouse III - Paul-Sabatier, CHU Purpan, pavillon Baudot, place du Dr-Joseph-Baylac, 31024 Toulouse cedex 3, France; Service de pharmacologie clinique, faculté de médecine, 37, allées Jules-Guesde, 31000 Toulouse, France.
authors.forename: C
authors.initials: C
authors.lastname: Brefel Courbon
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D003131:Combined Modality Therapy; D005602:France; D007722:Health Knowledge, Attitudes, Practice; D006293:Health Promotion / Q000379:methods*; D006801:Humans; D008875:Middle Aged; D010300:Parkinson Disease / Q000628:therapy*; D010353:Patient Education as Topic; D026741:Physical Therapy Modalities; D011788:Quality of Life; D011795:Surveys and Questionnaires
keywords: Education; Educational objective; Educational program; Maladie de Parkinson; Objectifs éducatifs; Parkinson's disease; Programme éducatifs; Therapeutic education; Éducation thérapeutique