title: Deciding together? Best interests and shared decision-making in paediatric intensive care.
abstract: In the western healthcare, shared decision making has become the orthodox approach to making healthcare choices as a way of promoting patient autonomy. Despite the fact that the autonomy paradigm is poorly suited to paediatric decision making, such an approach is enshrined in English common law. When reaching moral decisions, for instance when it is unclear whether treatment or non-treatment will serve a child's best interests, shared decision making is particularly questionable because agreement does not ensure moral validity. With reference to current common law and focusing on intensive care practice, this paper investigates what claims shared decision making may have to legitimacy in a paediatric intensive care setting. Drawing on key texts, I suggest these identify advantages to parents and clinicians but not to the child who is the subject of the decision. Without evidence that shared decision making increases the quality of the decision that is being made, it appears that a focus on the shared nature of a decision does not cohere with the principle that the best interests of the child should remain paramount. In the face of significant pressures toward the displacement of the child's interests in a shared decision, advantages of a shared decision to decisional quality require elucidation. Although a number of arguments of this nature may have potential, should no such advantages be demonstrable we have cause to revise our commitment to either shared decision making or the paramountcy of the child in these circumstances.
authors.affiliation: Centre for Ethics in Medicine, University of Bristol, Canynge Hall, 39 Whatley Road, Bristol, BS8 2PS, UK, giles.birchley@bristol.ac.uk.
authors.forename: Giles
authors.initials: G
authors.lastname: Birchley
mesh_terms: D002648:Child; D003657:Decision Making / Q000941:ethics*; D006801:Humans; D015278:Intensive Care Units, Pediatric; D007883:Legislation, Medical; D010290:Parents / Q000523:psychology; D010358:Patient Participation; D011788:Quality of Life