title: 'Going between worlds': Travelling with children with complex needs.
abstract: In this ethically approved hermeneutic phenomenological study conducted in Ireland, mothers' experiences in caring for children with complex needs were explored. The sample comprised mothers (n = 17) at home caring for children with complex needs. Data were analysed from multiple interviews (n = 48) and diary records (n = 11). Care is provided in a going between world of travel. Providing care when travelling is challenging, and all journeys require careful preparation and pre-emptive care. Few unnecessary journeys are undertaken. Unnecessary travelling could be avoided by careful and coordinated service planning.
authors.affiliation: Trinity College, Ireland nichollh@tcd.ie.
authors.forename: Honor
authors.initials: H
authors.lastname: Nicholl
mesh_terms: D000293:Adolescent; D000328:Adult; D017028:Caregivers / Q000523:psychology; D002648:Child; D002675:Child, Preschool; D019988:Children with Disabilities; D005260:Female; D006699:Home Care Services; D006801:Humans; D007223:Infant; D007407:Interviews as Topic; D007494:Ireland; D008297:Male; D009035:Mothers / Q000523:psychology; D012720:Severity of Illness Index; D014195:Travel; D055815:Young Adult
keywords: Caregiving; complex needs; disability; home care; mothers; travel